肯塔基州农村和城市癌症患者减少财务毒性的癌症治疗方法的可得性和可及性。

Jean Edward, William Bowling, Holly Chitwood, Robin Vanderpool
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引用次数: 0

摘要

背景:解决癌症患者财务毒性的癌症护理提供方法尚未建立,特别是在农村社区。目的:以肯塔基州农村癌症幸存者为重点,确定医疗保健人员对癌症患者经历的财务毒性的看法,并研究解决财务毒性的工作人员和系统级癌症护理交付方法。方法:我们使用半结构化访谈指南对肯塔基州15个癌症中心的癌症中心工作人员进行了关键信息访谈,这些工作人员为肿瘤患者及其护理人员提供财务指导和/或帮助。结果:本研究的结果揭示了与患者、工作人员和系统层面的癌症护理提供方法的可用性和可及性相关的几个关键因素,以减少经济毒性并改善农村和城市癌症幸存者获得护理的机会。参与者认为癌症患者(特别是农村地区)的财务毒性较高,这与癌症治疗费用高、患者参与治疗费用对话的能力有限、与费用相关的健康素养低以及在癌症治疗中遇到的挑战有关。专门为癌症患者提供帮助的训练有素的财务导游员/顾问的可用性是有限的,对财务毒性的标准化和主动筛查方法的使用也是有限的。虽然经常利用内部和外部财政援助方案,但导航员在根据保险范围提供成本估算和协助患者申请健康保险方面的能力有限。在减少患者财务毒性的癌症护理提供方法方面存在的差距包括:加强交通选择、增加财务导航人员、早期评估患者的财务障碍和担忧、提高成本透明度以及加强患者与临床医生之间的医疗成本对话。结论:建立可持续的肿瘤学指定的财务导航角色对于扩大患者支持和改善癌症患者的健康和财务结果至关重要。未来的研究需要收集证据,为旨在减轻农村社区癌症患者经济毒性的项目提供信息。
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Availability and Accessibility of Cancer Care Delivery Approaches to Reduce Financial Toxicity of Rural and Urban Cancer Patients in Kentucky.

Background: Cancer care delivery approaches to address financial toxicity among cancer patients are not well-established, especially in rural communities.

Objectives: To identify healthcare staff perspectives of financial toxicity experienced by cancer patients and to examine staff- and systems-level cancer care delivery approaches for addressing financial toxicity, with a focus on rural cancer survivors in Kentucky.

Methods: We conducted key informant interviews using a semistructured interview guide with cancer center staff who provided financial navigation and/or assistance to oncology patients and their caregivers at 15 cancer centers in Kentucky.

Results: Findings from this study revealed several key factors related to the availability and accessibility of cancer care delivery approaches at patient, staff, and system levels for reducing financial toxicity and improving access to care for rural and urban cancer survivors. Participants perceived high financial toxicity among cancer patients, especially in rural regions, related to the high cost of cancer care, as well the patients' limited ability to engage in cost-of-care conversations, low cost-related health literacy, and challenges in navigating cancer care. The availability of trained financial navigators/counselors dedicated solely to assisting the cancer patient population was limited, as was the use of standardized and proactive screening methods for financial toxicity. While in-house and external financial assistance programs were frequently tapped into, there were limitations in the navigators' ability to provide cost estimates based on insurance coverage and in assisting patients with applying for health insurance. Gaps in cancer care delivery approaches to reduce financial toxicity of patients included enhanced transportation options, additional financial navigation staff, early assessment of patient financial barriers and concerns, increased cost transparency, and enhanced cost-of-care conversations between patients and clinicians.

Conclusion: Establishing sustainable oncology-designated financial navigation roles is imperative to expanding patient support and improving health and financial outcomes of cancer patients. Future research is needed to gather evidence that informs programs targeted at mitigating financial toxicity of cancer patients in rural communities.

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