肾小球肾炎和肾血管炎患者的健康素养。

Cynthia Ciwei Lim, Irene Y J Mok, Hui Zhuan Tan, Claire Tan, Fiona Yeo, Jason C J Choo
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引用次数: 3

摘要

目的:肾小球肾炎是世界范围内进行性慢性肾脏疾病的主要原因之一,治疗需要共同决策,以提高自我保健和计划免疫抑制治疗。然而,关于肾小球肾炎患者健康素养(HL)的信息很少。我们的目的是评估患有肾小球肾炎的多民族人群中的HL。方法:在肾脏病门诊接受诱导免疫抑制剂治疗的肾小球肾炎患者进行单中心横断面研究,这些患者完成匿名自我填写的HLS-EU-47问卷。标准化HL指数和领域项目平均得分与参与者的社会人口学特征进行比较。结果:在就诊超过一个月的65名患者中,27人同意参与调查。在排除了显著缺失信息的应答后,我们纳入了23名参与者(16名华人、4名马来人、2名印度人和1名其他种族)。中位年龄为39岁(四分位数间距为27,60岁)。一般HL指数中位数为26.2(19.8,29.8)。在卫生保健相关信息的获取、理解、评价和应用领域,项目平均得分分别为2.64(2.43,2.77)、2.45(2.09,2.72)、2.33(2.17,2.58)和2.50(2.25,2.75)。男性患者HL指数和健康信息获取与评价得分均显著高于男性患者,个人收入越高,健康知识应用得分越高。结论:肾小球肾炎患者在健康信息评价领域HL最低。需要进一步研究有针对性的干预措施,以改善肾小球肾炎患者在评估治疗方案和疫苗接种方面的HL。
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Health Literacy in Glomerulonephritis and Renal Vasculitis Attending Nephrology Clinics.

Aims: Glomerulonephritis is one of the leading causes of progressive chronic kidney disease worldwide and treatment requires shared decision-making to improve self-care and plan immunosuppressant therapy. However, information on health literacy (HL) in patients with glomerulonephritis is scanty. We aimed to assess HL in our multiethnic population with glomerulonephritis.

Methods: Single-center cross-sectional study of patients with glomerulonephritis receiving induction immunosuppressants at the ambulatory nephrology clinic and who completed the anonymized self-administered HLS-EU-47 questionnaire. The standardized HL index and domain item mean scores were compared with participant sociodemographic characteristics.

Results: Among 65 patients who attend the clinics over a month, 27 agreed to participate in the survey. After excluding responses with significant missing information, we included 23 participants (16 Chinese, 4 Malay, 2 Indian, and 1 other ethnicity) in the analysis. The median age was 39 (interquartile range 27, 60 years). The median general HL index was 26.2 (19.8, 29.8). The item mean scores were 2.64 (2.43, 2.77), 2.45 (2.09, 2.72), 2.33 (2.17, 2.58), and 2.50 (2.25, 2.75) for the domains of accessing, understanding, appraising, and applying health-care-related information, respectively. Male patients had significantly higher HL indices and higher scores for accessing and appraising health information, while higher personal income was significantly associated with higher score for applying health knowledge.

Conclusion: Patients with glomerulonephritis had lowest HL in the domain of appraising health information. Further research on targeted interventions to improve the HL in appraising treatment options and vaccinations in patients with glomerulonephritis is required.

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