重新调整移植资格标准:确保智障人士公平获得器官移植。

IF 0.5 4区 社会学 Q3 LAW American Journal of Law & Medicine Pub Date : 2022-12-01 DOI:10.1017/amj.2023.3
Adam Peña
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引用次数: 0

摘要

《美国残疾人法案》(ADA)和《康复法案》第504条在防止器官移植评估过程中基于残疾的歧视方面进展甚微。智力和发育障碍(I/DD)对移植团队和移植医生来说是一个独特的问题,因为智力和发育障碍可能同时是移植的合法禁忌症,也是对智力残疾者的一种令人反感的歧视机制。残障歧视持续存在的罪魁祸首是移植中心制定自己的资格标准的权力。虽然对资格的医学标准通常是确定的,但社会心理标准——移植后成功的各种风险因素——可以作为I/ dd患者社会价值决定的表面中立的伪装。因此,患有I/ dd的个人被不合理地剥夺了器官移植和移植相关服务的资格。本文首先指出当前联邦反歧视立法的缺陷。然后讨论了众议院决议(H.R.) 8981的可预见的好处和缺点,这是最近提出的一项联邦法案,明确禁止在器官移植评估过程中基于残疾的歧视。文章最后为专业组织和移植中心提供了潜在的解决方案,旨在为智障人士提供公平的器官移植和移植相关服务。
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Recalibrating Transplant Eligibility Criteria: Ensuring Equitable Access to Organ Transplantation for Intellectually Disabled Persons.

The American with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act have made little progress towards preventing disability-based discrimination within the organ transplant evaluation process. Intellectual and developmental disabilities (I/DD) pose a unique problem for transplant teams and transplant physicians because I/DDs can simultaneously be a legitimate contraindication for transplantation and a mechanism for invidious discrimination against intellectually disabled persons. A culprit for ongoing disability-based discrimination is a transplant center's authority to develop its own eligibility criteria. While medical criteria for eligibility are generally well-settled, psychosocial criteria - an amorphous constellation of risk factors for post-transplant success - can serve as a facially neutral disguise for social worth determinations of individuals with I/DDs. Consequently, individuals with I/DDs are unjustifiably denied eligibility for organ transplantation and transplant-related services.This Article begins by identifying the pitfalls of current federal antidiscrimination legislation. It then discusses the foreseen benefits and drawbacks of House Resolution (H.R.) 8981, a recently proposed federal bill, that expressly prohibits disability-based discrimination within the organ transplant evaluation process. The Article ends by offering potential solutions for professional organizations and transplant centers that aim to provide for equitable access to organ transplantation and transplant-related services for intellectually disabled individuals.

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来源期刊
CiteScore
0.80
自引率
16.70%
发文量
8
期刊介绍: desde Enero 2004 Último Numero: Octubre 2008 AJLM will solicit blind comments from expert peer reviewers, including faculty members of our editorial board, as well as from other preeminent health law and public policy academics and professionals from across the country and around the world.
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