结核病幸存者和政策制定者对结核病后残疾的看法。

IF 1.3 Q4 RESPIRATORY SYSTEM Public Health Action Pub Date : 2023-03-21 DOI:10.5588/pha.22.0050
O Nkereuwem, E Nkereuwem, O Owolabi, P Johm, U Egere, K Mortimer, B Kampmann, T Togun
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引用次数: 2

摘要

背景:2021年11月在西非冈比亚举办了一次多利益攸关方参与国际研讨会。目的:探讨研讨会参与者在结核病治疗后的健康和福祉方面的经验、挑战和建议。方法:采用探索性、描述性、定性的方法,通过主持人引导的小组讨论收集数据。讲习班的参加者包括青少年和成年结核病幸存者,以及结核病倡导团体和政策部门的代表。讨论被录音并逐字抄录,数据用演绎主题方法进行分析。结果:总共有来自6个西非国家的38名参与者(22名女性)参加了研讨会,其中包括33名结核病幸存者和倡导团体代表,以及5名来自政策部门的参与者。虽然一些结核病幸存者指出进行体育活动的能力有所提高,但其他人的家庭生活、社会交往、身体健康和持续的耻辱继续受到不利影响。决策者强调缺乏关于结核病后致残的数据和明确的指导方针。结论:一些结核病幸存者甚至在治疗完成后继续遭受疾病的有害影响。然而,现有的结核病后残疾数据不足以支持政策的采纳。因此,迫切需要加强宣传、提高认识和研究,以弥合知识差距。
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Perspectives of TB survivors and policymakers on post-TB disability.

Background: An international multistakeholder participatory workshop was hosted in the Gambia, West Africa, in November 2021.

Objectives: To explore the experiences, challenges and recommendations of workshop participants on health and wellbeing after TB treatment.

Methods: An exploratory, descriptive, qualitative approach was used for data collection through facilitator-guided group discussions. Workshop participants included adolescent and adult TB survivors, and representatives of TB advocacy groups and the policy sector. Discussions were audio-recorded and transcribed verbatim, and the data were analysed using a deductive thematic approach.

Results: Overall, 38 participants (22 women) from six West African countries participated in the workshop, comprising 33 TB survivors and advocacy group representatives and 5 participants from the policy sector. Although some TB survivors noted improved ability to carry out physical activities, others continued to experience detrimental effects on their family life, social interactions, physical health and ongoing stigma. Policymakers emphasised the lack of data and clear guidelines on post-TB disability.

Conclusions: Some TB survivors continue to suffer detrimental effects of the illness even after treatment completion. However, available data on post-TB disability is inadequate to support policy adoption. Therefore, there is an urgent need for increased advocacy, awareness and research to bridge knowledge gaps.

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来源期刊
Public Health Action
Public Health Action RESPIRATORY SYSTEM-
自引率
0.00%
发文量
29
期刊介绍: Launched on 1 May 2011, Public Health Action (PHA) is an official publication of the International Union Against Tuberculosis and Lung Disease (The Union). It is an open access, online journal available world-wide to physicians, health workers, researchers, professors, students and decision-makers, including public health centres, medical, university and pharmaceutical libraries, hospitals, clinics, foundations and institutions. PHA is a peer-reviewed scholarly journal that actively encourages, communicates and reports new knowledge, dialogue and controversy in health systems and services for people in vulnerable and resource-limited communities — all topics that reflect the mission of The Union, Health solutions for the poor.
期刊最新文献
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