促进与父母和智障及/或自闭症谱系障碍人士组成的包容性研究咨询小组的经验。

IF 1.6 4区 医学 Q2 NURSING Advances in Nursing Science Pub Date : 2023-04-20 DOI:10.1097/ANS.0000000000000497
Andrew Cashin, Michelle Kersten, Virginia Howie, Amy Pracilio, Julia Morphet, Ken Griffin, Julian N Trollor, Nathan J Wilson
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引用次数: 0

摘要

很少有护理方面的研究,涉及到在自闭症和/或智力残疾患者或这些群体的父母/照顾者中开展包容性项目咨询小组的过程问题。通过描述性定性设计,本文旨在分析过程,挑战和解决方案时,促进这些群体在澳大利亚的护理项目。利用反身性专题分析分析实地记录和会议纪要。结果强调需要在研究人员和咨询小组、熟练的促进者之间建立一个明确的、健全的沟通过程,并仔细规划小组在项目生命周期中什么时候可以做出有意义的贡献。该项目为研究咨询小组的生活经验的宝贵贡献提供了一个拟议的框架。
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The Experience of Facilitating Inclusive Research Advisory Groups With Parents and People With Intellectual Disability and/or Autism Spectrum Disorder.

There is little nursing research about process issues in conducting inclusive project advisory groups of people with autism and/or intellectual disability or those who are parents/carers of this cohort. Through a descriptive qualitative design, this article aims to analyze the processes, challenges, and solutions when facilitating these groups for a nursing project in Australia. Reflexive thematic analysis was utilized to analyze field notes and meeting minutes. Results highlight the need for a defined, robust communication process between researchers and advisory groups, skilled facilitators, and careful planning of when in the life of the project the groups can contribute meaningfully. This project offers a proposed framework for the valuable contribution of lived experiences from research advisory groups.

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来源期刊
CiteScore
2.80
自引率
6.20%
发文量
93
审稿时长
>12 weeks
期刊介绍: Consistently ranked as one of the most-read and most assigned journals by faculties of graduate programs in nursing, Advances in Nursing Science (ANS) is intellectually challenging, innovative and progressive, and features articles from a wide range of scholarly traditions. The journal particularly encourages works that speak to the need for global sustainability and that take an intersectional approach, recognizing class, color, sexual and gender identity, and other dimensions of human experience related to health. Articles in ANS are peer-reviewed and chosen for their pioneering perspectives and for their significance in contributing the evolution of the discipline of nursing.
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