保密、公共利益和科学的人权:什么时候可以将机密信息用于更广泛的社会利益?

IF 2.5 2区 哲学 Q1 ETHICS Journal of Law and the Biosciences Pub Date : 2023-01-01 DOI:10.1093/jlb/lsad013
Edward S Dove
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引用次数: 0

摘要

本文探讨了科学人权是否可以作为公共利益的法律依据来支持机密信息的使用和披露。语境焦点是科学研究;管辖权的焦点是英格兰。《世界人权宣言》(第27条)和《经济、社会及文化权利国际公约》(第15条)所反映的科学人权迄今尚未被援引来支持合法披露的公共利益基础,但本文提出的论点是,在法理上可能有发展这一权利的余地。基于法律和政策的理由,并与最近英国政府在COVID-19大流行期间合法使用机密患者信息的“COPI通知”的基本理由相一致,我认为,科学的人权很可能成为合法共享机密信息的压倒一切的公共利益理由的宝贵司法支持。然而,这只能发生在公共利益明显的有限情况下,即研究对一般人群的严重、迫在眉睫的健康威胁,这些研究依赖于在现有法定门户之外获取的机密信息,而不是更常规的科学努力。
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Confidentiality, public interest, and the human right to science: when can confidential information be used for the benefit of the wider community?

This article explores whether the human right to science can support the public interest as a legal basis to use and disclose confidential information. The contextual focus is scientific research; the jurisdictional focus is England. The human right to science, as reflected in the Universal Declaration of Human Rights (Article 27) and the International Covenant on Economic, Social and Cultural Rights (Article 15), hitherto has not been invoked in support of a public interest basis for lawful disclosure, but the argument is made herein that there may be scope to develop this jurisprudentially. On grounds of both law and policy, and in line with the underlying rationale of recent UK Government deployment of 'COPI Notices' for lawful use of confidential patient information in the course of the COVID-19 pandemic, I contend that the human right to science may well serve as a valuable juridical buttress to an overriding public interest justification to lawfully share confidential information. However, this could occur only in restricted circumstances where the public interest is clearly manifest, namely studies researching serious, imminent health threats to the general population that rely on confidential information accessed outside of existing statutory gateways, and not more routine scientific endeavors.

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来源期刊
Journal of Law and the Biosciences
Journal of Law and the Biosciences Medicine-Medicine (miscellaneous)
CiteScore
7.40
自引率
5.90%
发文量
35
审稿时长
13 weeks
期刊介绍: The Journal of Law and the Biosciences (JLB) is the first fully Open Access peer-reviewed legal journal focused on the advances at the intersection of law and the biosciences. A co-venture between Duke University, Harvard University Law School, and Stanford University, and published by Oxford University Press, this open access, online, and interdisciplinary academic journal publishes cutting-edge scholarship in this important new field. The Journal contains original and response articles, essays, and commentaries on a wide range of topics, including bioethics, neuroethics, genetics, reproductive technologies, stem cells, enhancement, patent law, and food and drug regulation. JLB is published as one volume with three issues per year with new articles posted online on an ongoing basis.
期刊最新文献
The new EU-US data protection framework's implications for healthcare. The new regulation of non-medical neurotechnologies in the European Union: overview and reflection. Implementing the human right to science in the context of health: introduction to the special issue. Biosimilar approval pathways: comparing the roles of five medicines regulators. Industry price guarantees for publicly funded medicines: learning from Project NextGen for pandemics and beyond.
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