Chai Eng Tan MMed, Sie Chong Doris Lau MMed, Zarina Abdul Latiff Msc, MMed, Chee Chan Lee MMed, Kok Hoi Teh MRCPCH, Sherina Mohd Sidik PhD
{"title":"癌症患儿的家长需要健康扫盲支持，以满足他们的信息需求。","authors":"Chai Eng Tan MMed, Sie Chong Doris Lau MMed, Zarina Abdul Latiff Msc, MMed, Chee Chan Lee MMed, Kok Hoi Teh MRCPCH, Sherina Mohd Sidik PhD","doi":"10.1111/hir.12491","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>Timely and relevant information helps parents to cope when a child is diagnosed with cancer. However, obtaining and understanding information is not a straightforward process for parents.</p>\n </section>\n \n <section>\n \n <h3> Objectives</h3>\n \n <p>This article aims to explain paediatric cancer parents' information behaviour related to the care of their child.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>Qualitative in-depth interviews were conducted with fourteen Malaysian paediatric cancer parents and eight healthcare professionals who worked with paediatric cancer patients. Reflexivity and inductive approaches were used to interpret the data to identify meaningful themes and subthemes.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Three themes about how paediatric cancer parents interact with information emerged: Acquiring information, internalising information, and using information. Information may be actively sought or passively acquired. Cognitive and affective aspects influence how information is internalised into meaningful knowledge. Knowledge then leads to further action including further information gathering.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>Paediatric cancer parents need health literacy support to meet their information needs. They require guidance in identifying and appraising suitable information resources. Development of suitable supporting materials is needed to facilitate parents' ability to comprehend information related to their child's cancer. Understanding parents' information behaviour could assist healthcare professionals in providing information support in the context of paediatric cancer.</p>\n </section>\n </div>","PeriodicalId":47580,"journal":{"name":"Health Information and Libraries Journal","volume":null,"pages":null},"PeriodicalIF":2.2000,"publicationDate":"2023-06-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Parents of children with cancer require health literacy support to meet their information needs\",\"authors\":\"Chai Eng Tan MMed, Sie Chong Doris Lau MMed, Zarina Abdul Latiff Msc, MMed, Chee Chan Lee MMed, Kok Hoi Teh MRCPCH, Sherina Mohd Sidik PhD\",\"doi\":\"10.1111/hir.12491\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Background</h3>\\n \\n <p>Timely and relevant information helps parents to cope when a child is diagnosed with cancer. However, obtaining and understanding information is not a straightforward process for parents.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Objectives</h3>\\n \\n <p>This article aims to explain paediatric cancer parents' information behaviour related to the care of their child.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Methods</h3>\\n \\n <p>Qualitative in-depth interviews were conducted with fourteen Malaysian paediatric cancer parents and eight healthcare professionals who worked with paediatric cancer patients. Reflexivity and inductive approaches were used to interpret the data to identify meaningful themes and subthemes.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Three themes about how paediatric cancer parents interact with information emerged: Acquiring information, internalising information, and using information. Information may be actively sought or passively acquired. Cognitive and affective aspects influence how information is internalised into meaningful knowledge. Knowledge then leads to further action including further information gathering.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Conclusion</h3>\\n \\n <p>Paediatric cancer parents need health literacy support to meet their information needs. They require guidance in identifying and appraising suitable information resources. Development of suitable supporting materials is needed to facilitate parents' ability to comprehend information related to their child's cancer. Understanding parents' information behaviour could assist healthcare professionals in providing information support in the context of paediatric cancer.</p>\\n </section>\\n </div>\",\"PeriodicalId\":47580,\"journal\":{\"name\":\"Health Information and Libraries Journal\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":2.2000,\"publicationDate\":\"2023-06-18\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health Information and Libraries Journal\",\"FirstCategoryId\":\"91\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/hir.12491\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"INFORMATION SCIENCE & LIBRARY SCIENCE\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health Information and Libraries Journal","FirstCategoryId":"91","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/hir.12491","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"INFORMATION SCIENCE & LIBRARY SCIENCE","Score":null,"Total":0}
Parents of children with cancer require health literacy support to meet their information needs
Background
Timely and relevant information helps parents to cope when a child is diagnosed with cancer. However, obtaining and understanding information is not a straightforward process for parents.
Objectives
This article aims to explain paediatric cancer parents' information behaviour related to the care of their child.
Methods
Qualitative in-depth interviews were conducted with fourteen Malaysian paediatric cancer parents and eight healthcare professionals who worked with paediatric cancer patients. Reflexivity and inductive approaches were used to interpret the data to identify meaningful themes and subthemes.
Results
Three themes about how paediatric cancer parents interact with information emerged: Acquiring information, internalising information, and using information. Information may be actively sought or passively acquired. Cognitive and affective aspects influence how information is internalised into meaningful knowledge. Knowledge then leads to further action including further information gathering.
Conclusion
Paediatric cancer parents need health literacy support to meet their information needs. They require guidance in identifying and appraising suitable information resources. Development of suitable supporting materials is needed to facilitate parents' ability to comprehend information related to their child's cancer. Understanding parents' information behaviour could assist healthcare professionals in providing information support in the context of paediatric cancer.
期刊介绍：
Health Information and Libraries Journal (HILJ) provides practitioners, researchers, and students in library and health professions an international and interdisciplinary forum. Its objectives are to encourage discussion and to disseminate developments at the frontiers of information management and libraries. A major focus is communicating practices that are evidence based both in managing information and in supporting health care. The Journal encompasses: - Identifying health information needs and uses - Managing programmes and services in the changing health environment - Information technology and applications in health - Educating and training health information professionals - Outreach to health user groups
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