公众对生物库的认知和参与意愿:社会价值取向的调节作用

IF 1.5 Q4 GENETICS & HEREDITY Journal of Community Genetics Pub Date : 2023-06-01 DOI:10.1007/s12687-023-00634-2
Matúš Grežo, Martin Sedlár
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引用次数: 1

摘要

尽管对生物银行的认识被认为是参与生物银行意愿的关键因素,但关于它们之间关系的经验证据并不一致。本研究考察了社会价值取向在这一关系中的解释作用。600名斯洛伐克人的代表性样本完成滑块测量来评估他们的社会价值取向。之后,他们报告了他们对生物银行的认识程度,以及他们向生物银行提供生物标本和个人信息的意愿。结果显示,意识和意愿之间存在正相关关系。虽然社会价值取向不是调节因素,但我们发现这种关系仅在利他主义者和个人主义者群体中显著。在将社会人口统计和机构信任因素考虑在内后,结果仍然稳健。我们的研究结果表明,生物库意识项目应该同时强调亲社会动机和专业动机,以吸引具有不同社会价值取向的人参与生物库。
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Public's awareness of biobanks and willingness to participate in biobanking: the moderating role of social value orientation.

Although the awareness of biobanks is considered to be a key factor in the willingness to participate in biobanking, the empirical evidence on their relationship is inconsistent. The present study investigated social value orientation as an explanatory factor in this relationship. A representative sample of 600 Slovaks completed Slider Measure to assess their social value orientation. Thereafter, they reported their level of awareness of biobanks and their willingness to provide biospecimens and personal information to biobanks. The results showed a positive relationship between awareness and willingness. Although social value orientation was not the moderator, we found that this relationship was significant only in the groups of altruists and individualists. The results remained robust after taking sociodemographic and institutional trust factors into account. Our findings imply that biobank awareness programmes should highlight both prosocial and proself motives to attract people with various social value orientations to participate in biobanking.

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来源期刊
Journal of Community Genetics
Journal of Community Genetics GENETICS & HEREDITY-
CiteScore
3.30
自引率
5.30%
发文量
54
期刊介绍: The Journal of Community Genetics is an international forum for research in the ever-expanding field of community genetics, the art and science of applying medical genetics to human communities for the benefit of their individuals. Community genetics comprises all activities which identify persons at increased genetic risk and has an interest in assessing this risk, in order to enable those at risk to make informed decisions. Community genetics services thus encompass such activities as genetic screening, registration of genetic conditions in the population, routine preconceptional and prenatal genetic consultations, public education on genetic issues, and public debate on related ethical issues. The Journal of Community Genetics has a multidisciplinary scope. It covers medical genetics, epidemiology, genetics in primary care, public health aspects of genetics, and ethical, legal, social and economic issues. Its intention is to serve as a forum for community genetics worldwide, with a focus on low- and middle-income countries. The journal features original research papers, reviews, short communications, program reports, news, and correspondence. Program reports describe illustrative projects in the field of community genetics, e.g., design and progress of an educational program or the protocol and achievement of a gene bank. Case reports describing individual patients are not accepted.
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