在危机时刻,癌症患者和护理人员希望从沟通中获得什么?COVID-19大流行初期的定性研究》。

IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES American Journal of Hospice & Palliative Medicine Pub Date : 2024-05-01 Epub Date: 2023-06-30 DOI:10.1177/10499091231187351
Nainwant Singh, Karleen F Giannitrapani, Raziel C Gamboa, Claire E O'Hanlon, Soraya Fereydooni, Laura M Holdsworth, Charlotta Lindvall, Anne M Walling, Karl A Lorenz
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引用次数: 0

摘要

背景:人际沟通是以患者为中心的护理的基石。我们旨在确定癌症患者和护理人员在公共卫生危机期间可能希望从沟通中获得什么:我们采访了来自美国不同地区、种族和民族背景的 15 名患者(8 名退伍军人,7 名非退伍军人)和护理人员,他们就 COVID-19 大流行期间的重症护理和护理质量进行了讨论:结果:参与者的身份分别为白人(10 人)、拉丁裔(3 人)、亚裔(1 人)和黑人(1 人)。(1) 通过直接、主动地传达医疗信息,帮助患者和护理人员为危机期间的护理做好准备。(2) 解释危机如何影响医疗建议和对疾病康复的影响。(3) 利用关键信使来改善基层团队、患者和护理人员之间的沟通。(4) 当护理人员和家属无法亲临现场时,让他们参与沟通。(5) 促进与患者和家属的双向沟通,让他们在脆弱时期参与共同决策:结论:在公共卫生危机期间,沟通至关重要,但不堪重负的临床医生可能无法进行有效沟通。即使在 COVID-19 大流行之前,与护理人员和家属沟通、透明和及时的沟通、确保不同的医疗服务提供者保持一致以及有效倾听都是已知的不足之处。临床医生可能需要进行快速干预,如关于护理目标的教育,以提醒他们重症患者及其护理人员希望从沟通中获得什么,并在危机期间提供以患者为中心的护理。
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What Patients Facing Cancer and Caregivers Want From Communication in Times of Crisis: A Qualitative Study in the Early Months of the COVID-19 Pandemic.

Background: Interpersonal communication is a cornerstone of patient-centered care. We aimed to identify what patients with cancer and caregivers may want from communication during a public health crisis.

Methods: We interviewed 15 patients (8 Veteran, 7 non-Veteran) and caregivers from regionally, racially, and ethnically diverse backgrounds across the US about serious illness care and quality of care during the COVID-19 pandemic Using an iterative, inductive and deductive process, 2 coders analyzed content associated with the code "Communication," which appeared 71 times, and identified 5 themes.

Results: Participants identified as White (10), Latino/a (3), Asian (1), and Black (1). (1) Help patients and caregivers prepare for care during crisis by communicating medical information directly and proactively. (2) Explain how a crisis might influence medical recommendations and impact on recovery from illness. (3) Use key messengers to improve communication between primary teams, patients, and caregivers. (4) Include caregivers and families in communication when they cannot be physically present. (5) Foster bidirectional communication with patients and families to engage them in shared decision-making during a vulnerable time.

Conclusion: Communication is critical during a public health crisis yet overwhelmed clinicians may not be able to communicate effectively. Communicating with caregivers and family, transparent and timely communication, ensuring diverse providers are on the same page, and effective listening are known gaps even before the COVID-19 pandemic. Clinicians may need quick interventions, like education about goals of care, to remind them about what seriously ill patients and their caregivers want from communication and offer patient-centered care during crises.

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来源期刊
American Journal of Hospice & Palliative Medicine
American Journal of Hospice & Palliative Medicine HEALTH CARE SCIENCES & SERVICES-
CiteScore
3.80
自引率
5.30%
发文量
169
审稿时长
6-12 weeks
期刊介绍: American Journal of Hospice & Palliative Medicine (AJHPM) is a peer-reviewed journal, published eight times a year. In 30 years of publication, AJHPM has highlighted the interdisciplinary team approach to hospice and palliative medicine as related to the care of the patient and family. This journal is a member of the Committee on Publication Ethics (COPE).
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