遗传和基因组研究人员对乌干达合作研究中生物样本共享的看法:一项定性研究。

David Kaawa-Mafigiri, Deborah Ekusai Sebatta, Ian Munabi, Erisa Sabakaki Mwaka
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引用次数: 1

摘要

生物样本共享产生了许多伦理、法律和社会问题。本研究探讨了遗传学和基因组学研究人员在国际合作研究中生物样本共享的观点。对15名研究人员进行了定性深入访谈。与会者对生物库持积极态度,赞赏跨境共享生物样本的好处,但指出这种做法对当地能力建设工作产生了不利影响。对管理样本共享的伦理和监管框架的理解有限。研究人员强调了在生物银行研究中尊重文化价值的重要性。还提出了有关管理不善和利益分享不公平的问题。有必要进行公平和公平的国际合作,在这种合作中,所有的研究人员都受到尊重,并被视为平等的伙伴。
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Genetic and Genomic Researchers' Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study.

Numerous ethical, legal, and social issues arise with biological sample sharing. The study explored the perspectives of genetic and genomic researchers on the sharing of biological samples in international collaborative research. Qualitative in-depth interviews were conducted with 15 researchers. Participants expressed positive attitudes towards biobanking and appreciated the benefits of cross-border sharing of biological samples but noted that this practice had adversely affected local capacity building efforts. There was limited understanding of the ethical and regulatory frameworks governing sample sharing. Researchers emphasized the importance of respecting cultural values in biobanking research. Issues concerning poor governance and inequitable benefit sharing were also raised. There is a need for fair and equitable international collaborations where all researchers are treated with respect and as equal partners.

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来源期刊
CiteScore
3.50
自引率
7.70%
发文量
30
审稿时长
>12 weeks
期刊介绍: The Journal of Empirical Research on Human Research Ethics (JERHRE) is the only journal in the field of human research ethics dedicated exclusively to empirical research. Empirical knowledge translates ethical principles into procedures appropriate to specific cultures, contexts, and research topics. The journal''s distinguished editorial and advisory board brings a range of expertise and international perspective to provide high-quality double-blind peer-reviewed original articles.
期刊最新文献
Ready, Set, Sort! A User-Guide to Card Sorts for Community-Engaged Empirical Bioethics. Understanding of Key Considerations for Effective Community Engagement in Genetics and Genomics Research: A Qualitative Study of the Perspectives of Research Ethics Committee Members and National Research Regulators in a low Resource Setting. Vulnerable Research Participant Policies at U.S. Academic Institutions. Considerations for the Design of Informed Consent in Digital Health Research: Participant Perspectives. Public Perspectives on Consent for and Governance of Biobanking in Japan.
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