结核病和COVID-19相关的耻辱:葡萄牙患者的经历。

IF 2.5 Q2 RESPIRATORY SYSTEM Tuberculosis and Respiratory Diseases Pub Date : 2023-07-01 DOI:10.4046/trd.2022.0062
Ana Alfaiate, Rita Rodrigues, Ana Aguiar, Raquel Duarte
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引用次数: 1

摘要

背景:结核病(TB)相关的病耻感已被充分记录。自2019冠状病毒病(COVID-19)出现以来,不同组织都注意到耻辱可能再次出现的事实。鉴于耻辱感的负面影响,本定性研究旨在通过评估以下方面来探讨患者的耻辱感:COVID-19耻辱感及其在大流行中的时间进展;不同结核病患者在COVID-19大流行之前和期间的耻辱感;感染两种疾病的个体所感知到的差异。方法:根据现有文献,采用半结构化访谈法。该研究于2022年在获得签署的知情同意书后单独进行。参与者采用有目的的抽样方法,通过搜索医疗记录来招募。包括目前或以前患有肺结核和/或COVID-19的患者。对数据进行了专题分析。结果:共访谈9例患者,其中女性6例,占66.7%。患者中位年龄为51±14.7岁。4名参与者(44.4%)完成了高中学业,4名参与者(44.4%)从不吸烟。其中三人同时患有结核病和COVID-19。其中4人只有结核病,2人只有COVID-19。访谈确定了八个主要主题:知识和信念,并确定了一些误解;对疾病的态度,从社会支持到排斥;被认为极其重要的知识和教育;内化耻辱,自我排斥;经历过耻辱和歧视事件;预期的病耻感,修改避免病耻感的行动;感知到的耻辱,加上他人的判断占了上风;以及柱头的时间进化。结论:个体对这两种疾病都表现出强烈的耻辱感。消除呼吸道传染病的污名化对于限制污名化的负面影响至关重要。
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Tuberculosis and COVID-19 Related Stigma: Portuguese Patients Experiences.

Background: Tuberculosis (TB)-related stigma has been well-documented. Since the emergence of the coronavirus disease 2019 (COVID-19), different organizations have been alerted to the fact that stigma could arise again. Due to stigma's negative effects, this qualitative study aimed to explore the stigma felt by patients by evaluating the following: COVID-19 stigma and its temporal progression through the pandemic; stigma perceived by different patients with TB before and during COVID-19 pandemic; and difference perceived by individuals who contracted both diseases.

Methods: A semi-structured interview was developed according to the available literature on the theme. It was performed individually in 2022 upon receiving signed informed consent. Participants were recruited with a purposive sampling approach by searching medical records. Those who currently or previously had pulmonary TB and/ or COVID-19 were included. Data were subjected to thematic analysis.

Results: Nine patients were interviewed, including six (66.7%) females. The median age of patients was 51±14.7 years. Four participants (44.4%) had completed high school and four (44.4%) were never smokers. Three had both TB and COVID-19. Four only had TB and two only had COVID-19. Interviews identified eight main themes: knowledge and beliefs, with several misconceptions identified; attitudes towards the disease, varying from social support to exclusion; knowledge and education, assumed as of extreme importance; internalized stigma, with self-rejection; experienced stigma, with discrimination episodes; anticipated stigma, modifying actions for avoiding stigma; perceived stigma, with judgment by others prevailed; and temporal evolution of stigma.

Conclusion: Individuals expressed strong stigma for both diseases. De-stigmatization of respiratory infectious diseases is crucial for limiting stigma's negative impact.

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来源期刊
CiteScore
5.30
自引率
0.00%
发文量
42
审稿时长
12 weeks
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