1型糖尿病自我管理的成人网络应用程序适应青少年使用行为改变轮来定制医疗保健过渡的需求:定性访谈研究。

Q2 Medicine JMIR Diabetes Pub Date : 2023-04-26 DOI:10.2196/42564
Li Feng Xie, Asmaa Housni, Meranda Nakhla, Rosemarie Cianci, Catherine Leroux, Deborah Da Costa, Anne-Sophie Brazeau
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引用次数: 0

摘要

背景:患有1型糖尿病(T1D)的青少年(14-24岁)在糖尿病自我管理(DSM)方面面临越来越多的挑战,特别是在向成人护理过渡的过程中。尽管DSM的教育和支持是必要的,但关于如何开发适合其需求的基于网络的数字工具的信息不足。目的:在行为改变轮的基础上,本研究旨在识别青少年T1D患者在医疗转型背景下的需求和影响其DSM的因素,并为成人自我引导web应用程序(Support)的适应性(内容和功能)提供信息。方法:采用现象学研究设计,对21名青少年进行基于互联网的半结构化个人访谈,并采用概念映射归纳法对访谈记录进行分析。结果:影响T1D自我管理的因素分为障碍因素和促进因素,再分为外部因素和内部因素。影响信息可及性、增加支持感和工具使用的特征被积极接受。与他们对数字工具使用或导航困难的期望无关的功能被认为是负面的。参与者表示对可靠、实用和新颖的教育内容感兴趣。虽然青年认为医疗专业人员提供的信息很重要,但同龄人交流被认为是获得实际观点和实际例子的必要条件。结论:与成年人相比,在为青少年构建DSM教育和支持数字工具时,除了定制内容和简化信息搜索过程外,还应选择鼓励有监督的同伴交流的功能。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Adaptation of an Adult Web Application for Type 1 Diabetes Self-management to Youth Using the Behavior Change Wheel to Tailor the Needs of Health Care Transition: Qualitative Interview Study.

Background: Youth (aged 14-24 years) living with type 1 diabetes (T1D) encounter increased challenges in their diabetes self-management (DSM), especially during the transition to adult care. Although DSM education and support are imperative, there is insufficient information on how web-based digital tools tailored to their demands can be developed.

Objective: On the basis of the Behavior Change Wheel, this study aims to identify, among youth living with T1D, the needs and factors influencing their DSM in the context of health care transition and to inform the adaptation (content and features) of an adult self-guided web application (Support).

Methods: Internet-based semistructured individual interviews based on a phenomenological study design were conducted with 21 youths, and transcripts were analyzed using an inductive approach with concept mapping.

Results: Factors influencing T1D self-management were categorized into barriers and facilitators and then as external or internal. Features influencing the accessibility to information, increasing the sense of support, and use of the tool were positively accepted. Features unrelated to their expectations of digital tool use or difficulty navigating were viewed negatively. Participants expressed an interest in reliable, practical, and novel educational content. Although youth considered the information provided by medical professionals to be important, peer exchange was deemed necessary to obtain a practical perspective and real-life examples.

Conclusions: Compared with the adult population, in addition to tailored content and a simplified information search process, when building a DSM education and support digital tool for youth, features should be selected to encourage supervised peer exchange.

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来源期刊
JMIR Diabetes
JMIR Diabetes Computer Science-Computer Science Applications
CiteScore
4.00
自引率
0.00%
发文量
35
审稿时长
16 weeks
期刊最新文献
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