为患有限制生命疾病的儿童提供姑息治疗服务的挑战和机遇:系统综述。

IF 0.4 4区 医学 Q3 MEDICINE, GENERAL & INTERNAL National Medical Journal of India Pub Date : 2022-09-01 DOI:10.25259/NMJI_349_2022
Uma Shanker Agrawal, Jyoti Sarin, Sameer Bakhshi, Rakesh Garg
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引用次数: 0

摘要

儿童姑息治疗是一种创新方法,有助于改善患有限制生命疾病的儿童及其家庭成员的生活质量。世卫组织承认姑息治疗是全民健康覆盖的一部分。然而,在世界大多数地区,为儿童提供的姑息治疗服务不足且分配不公平。我们回顾了现有的文献来评估(i)为患有限制生命的疾病的儿童提供姑息治疗服务的挑战以及(ii)克服这些挑战的策略或机会。方法系统检索PubMed和Scopus数据库,检索近10年(2011年1月至2020年12月)发表的文章。采用人口、概念和上下文(PCC)框架设计了电子数据库的搜索策略。结果通过检索数据库及其他来源共检索到文献1562篇。对文章的标题和摘要进行筛选,筛选出206篇文章进行全文综述。经过审查,28篇文章符合纳入标准。在政策、组织、医疗保健提供者和患者/家庭层面确定了为儿童提供姑息治疗服务的障碍和机会。结论我们发现,通过采用研究驱动的策略,可以解决为患有限制生命的疾病的儿童提供姑息治疗服务的大多数障碍。为了改善儿童及其家庭成员的生活质量,需要充分和公平地分配姑息治疗服务。
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Challenges and opportunities in providing palliative care services to children with a life-limiting illness: A systematic review.

Background Palliative care for children is an innovative approach that helps improve the quality of life of children suffering from life-limiting illnesses, and their family members. The WHO recognized palliative care as a part of universal health coverage. However, there is inadequate availability and inequitable distribution of palliative care services for children in most parts of the world. We reviewed the existing literature to assess (i) the challenges in providing palliative care services for children suffering from life-limiting illnesses and (ii) the strategies or opportunities to overcome these challenges. Methods We conducted systematic searches in the PubMed and Scopus databases to find articles published in the past 10 years (January 2011 to December 2020). The population, concept and context (PCC) framework was used to devise a search strategy in an electronic database. Results A total of 1562 articles were found by searching the database and other sources. Title and abstracts of articles were screened, and 206 articles were selected for full-text review. After scrutiny 28 articles met the inclusion criteria. Barriers to and opportunities in the provision of palliative care services for children were identified at policy, organizational, healthcare provider, and patient/family levels. Conclusion We found that the majority of barriers to provision of palliative care services for children with life-limiting illnesses can be addressed by adopting research-driven strategies. Adequate and equitable distribution of palliative care services is required for improving children and their family members' quality of life.

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来源期刊
National Medical Journal of India
National Medical Journal of India 医学-医学:内科
CiteScore
0.50
自引率
0.00%
发文量
171
审稿时长
>12 weeks
期刊介绍: The journal will cover technical and clinical studies related to health, ethical and social issues in field of health policy and health provider training through sections on ‘Medicine and society’ and ‘Medical education’.. Articles with clinical interest and implications will be given preference.
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