直接面向消费者的基因检测的认识论危害。

IF 2.3 2区 哲学 Q1 ETHICS Medicine Health Care and Philosophy Pub Date : 2023-12-01 Epub Date: 2023-07-25 DOI:10.1007/s11019-023-10164-w
Yasmin Haddad
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引用次数: 0

摘要

在本文中,我对直接面向消费者(DTC)的基因检测广泛营销所造成的危害进行了认识论评估。虽然基因检测在由医生开具处方的情况下是一种有价值的辅助诊断工具,但如果直接向消费者销售,则会产生不同的影响。我旨在说明,DTC 基因检测的广泛商品化会带来认识论和非认识论上的危害。我认为,在有关该主题的讨论中,DTC 基因检测产生的认识论伤害被忽视了。借鉴促成认识论不公正的概念,我强调了两个相关的认识论伤害:(1)未能采纳个人对其身份的表述;(2)主导的还原论框架忽略了有用的诠释学资源。然后,我提出了减轻这些伤害的方法。
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The epistemic harms of direct-to-consumer genetic tests.

In this paper, I provide an epistemic evaluation of the harms that result from the widespread marketing of direct-to-consumer (DTC) genetic tests. While genetic tests are a valuable accessory diagnostic tool when ordered by a medical practitioner, there are different implications when they are sold directly to consumers. I aim to show that there are both epistemic and non-epistemic harms associated with the widespread commoditization of DTC genetic tests. I argue that the epistemic harms produced by DTC genetic tests have been disregarded in discussions on the topic. Drawing on the notion of contributory epistemic injustices, I highlight two pertinent epistemic harms: (1) a failure to uptake an individual's articulations about their identity and (2) the presiding reductionist framework dismisses useful hermeneutical resources. I then propose ways to mitigate these harms.

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来源期刊
CiteScore
4.30
自引率
4.80%
发文量
64
期刊介绍: Medicine, Health Care and Philosophy: A European Journal is the official journal of the European Society for Philosophy of Medicine and Health Care. It provides a forum for international exchange of research data, theories, reports and opinions in bioethics and philosophy of medicine. The journal promotes interdisciplinary studies, and stimulates philosophical analysis centered on a common object of reflection: health care, the human effort to deal with disease, illness, death as well as health, well-being and life. Particular attention is paid to developing contributions from all European countries, and to making accessible scientific work and reports on the practice of health care ethics, from all nations, cultures and language areas in Europe.
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