Rishi N Modi, Jessica D Blum, Burçin Ataseven, Caitlyn C Belza, Edna Montes, Karen L Leung, Michelle Zaldana-Flynn, Chelsea S Rapoport, Alyssa K Choi, Emily Ewing, Vanessa L Malcarne, Amanda A Gosman
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Stepwise multivariate linear regressions were performed for each QoL domain.</p><p><strong>Setting: </strong>Urban tertiary care center.</p><p><strong>Patients, participants: </strong>Pediatric patients with facial differences, and their parents.</p><p><strong>Intervention: </strong>Survey study.</p><p><strong>Main outcome measure(s): </strong>Demographic, diagnostic, and surgical characteristics were collected. Surgical burden was calculated as the standard deviation from the mean number of surgeries per diagnostic cohort.</p><p><strong>Result: </strong>Patients (<i>N</i> = 168) were majority female (57.1%) and Hispanic (64.3%). Diagnoses were cleft lip and/or palate (CLP,<i>n</i> = 99) or other craniofacial conditions (CFC,<i>n</i> = 69). Average patient age was 2.3 ± 5.6 years at first reconstructive surgery and 12.3 ± 3.4 years at study enrollment. Patients received an average of 4.3 ± 4.1 reconstructive surgeries.Worse Bullying was associated with higher surgical burden. Worse Peer Problems was associated with higher surgical burden, but only for children with non-CLP CFCs. Worse Family Support was associated with CFC diagnosis, female sex, and higher surgical burden. Worse Psychological Impact was associated with higher surgical burden. Worse Appearance Satisfaction was associated with younger age and with lower surgical burden. Greater Desire for Appearance Change was associated with older age, higher surgical burden, CLP diagnosis, female sex, and non-Hispanic ethnicity. Socioeconomic status did not predict QoL per patient self- or parent-proxy report.</p><p><strong>Conclusions: </strong>Higher surgical burden was associated with worse QoL outcomes in multiple domains.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"1632-1638"},"PeriodicalIF":1.2000,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"To Operate or Not to Operate? 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Stepwise multivariate linear regressions were performed for each QoL domain.</p><p><strong>Setting: </strong>Urban tertiary care center.</p><p><strong>Patients, participants: </strong>Pediatric patients with facial differences, and their parents.</p><p><strong>Intervention: </strong>Survey study.</p><p><strong>Main outcome measure(s): </strong>Demographic, diagnostic, and surgical characteristics were collected. Surgical burden was calculated as the standard deviation from the mean number of surgeries per diagnostic cohort.</p><p><strong>Result: </strong>Patients (<i>N</i> = 168) were majority female (57.1%) and Hispanic (64.3%). Diagnoses were cleft lip and/or palate (CLP,<i>n</i> = 99) or other craniofacial conditions (CFC,<i>n</i> = 69). Average patient age was 2.3 ± 5.6 years at first reconstructive surgery and 12.3 ± 3.4 years at study enrollment. Patients received an average of 4.3 ± 4.1 reconstructive surgeries.Worse Bullying was associated with higher surgical burden. Worse Peer Problems was associated with higher surgical burden, but only for children with non-CLP CFCs. Worse Family Support was associated with CFC diagnosis, female sex, and higher surgical burden. Worse Psychological Impact was associated with higher surgical burden. Worse Appearance Satisfaction was associated with younger age and with lower surgical burden. Greater Desire for Appearance Change was associated with older age, higher surgical burden, CLP diagnosis, female sex, and non-Hispanic ethnicity. Socioeconomic status did not predict QoL per patient self- or parent-proxy report.</p><p><strong>Conclusions: </strong>Higher surgical burden was associated with worse QoL outcomes in multiple domains.</p>\",\"PeriodicalId\":55255,\"journal\":{\"name\":\"Cleft Palate-Craniofacial Journal\",\"volume\":\" \",\"pages\":\"1632-1638\"},\"PeriodicalIF\":1.2000,\"publicationDate\":\"2024-10-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Cleft Palate-Craniofacial Journal\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/10556656231176879\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2023/5/29 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q3\",\"JCRName\":\"DENTISTRY, ORAL SURGERY & MEDICINE\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Cleft Palate-Craniofacial Journal","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/10556656231176879","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/5/29 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"DENTISTRY, ORAL SURGERY & MEDICINE","Score":null,"Total":0}
引用次数: 0
摘要
目的：采用颅面状况生活质量量表（CFC-QoL）评估手术负担与生活质量之间的关系：采用颅面状况生活质量量表（CFC-QoL）评估手术负担与生活质量（QoL）之间的关系：设计： 患者-家长二人组完成 CFC-QoL，该量表询问以下 QoL 领域：设计：患者和家长二人一组完成 CFC-QoL，该问卷调查以下 QoL 领域：欺凌、同伴问题、心理影响、家庭支持、外貌满意度和改变外貌的愿望。对每个 QoL 领域进行逐步多元线性回归：城市三级医疗中心：干预措施：调查研究：干预措施：调查研究：收集人口统计学、诊断和手术特征。结果：患者（N = 168）中大多数人都有面部差异：患者（N = 168）多数为女性（57.1%）和西班牙裔（64.3%）。诊断结果为唇裂和/或腭裂（CLP，n = 99）或其他颅面疾病（CFC，n = 69）。患者首次接受整形手术时的平均年龄为（2.3 ± 5.6）岁，加入研究时的平均年龄为（12.3 ± 3.4）岁。患者平均接受了 4.3 ± 4.1 次整形手术。较差的同伴问题与较高的手术负担有关，但仅适用于非CLP CFCs患儿。较差的家庭支持与氯氟化碳诊断、女性性别和较高的手术负担有关。较差的心理影响与较高的手术负担有关。外貌满意度较差与年龄较小和手术负担较轻有关。对外貌改变的更大渴望与年龄较大、手术负担较重、CLP 诊断、女性和非西班牙裔有关。根据患者本人或家长代理人的报告，社会经济状况并不能预测患者的 QoL：结论：较高的手术负担与多个领域的 QoL 结果较差有关。
To Operate or Not to Operate? Reconstructive Surgical Burden and Quality of Life of Pediatric Patients with Facial Differences.
Objective: The Craniofacial Condition Quality of Life Scale (CFC-QoL) was used to evaluate the relationship between surgical burden and quality of life (QoL).
Design: Patient-parent dyads completed the CFC-QoL which queries the following QoL domains: Bullying, Peer Problems, Psychological Impact, Family Support, Appearance Satisfaction, and Desire for Appearance Change. Stepwise multivariate linear regressions were performed for each QoL domain.
Setting: Urban tertiary care center.
Patients, participants: Pediatric patients with facial differences, and their parents.
Intervention: Survey study.
Main outcome measure(s): Demographic, diagnostic, and surgical characteristics were collected. Surgical burden was calculated as the standard deviation from the mean number of surgeries per diagnostic cohort.
Result: Patients (N = 168) were majority female (57.1%) and Hispanic (64.3%). Diagnoses were cleft lip and/or palate (CLP,n = 99) or other craniofacial conditions (CFC,n = 69). Average patient age was 2.3 ± 5.6 years at first reconstructive surgery and 12.3 ± 3.4 years at study enrollment. Patients received an average of 4.3 ± 4.1 reconstructive surgeries.Worse Bullying was associated with higher surgical burden. Worse Peer Problems was associated with higher surgical burden, but only for children with non-CLP CFCs. Worse Family Support was associated with CFC diagnosis, female sex, and higher surgical burden. Worse Psychological Impact was associated with higher surgical burden. Worse Appearance Satisfaction was associated with younger age and with lower surgical burden. Greater Desire for Appearance Change was associated with older age, higher surgical burden, CLP diagnosis, female sex, and non-Hispanic ethnicity. Socioeconomic status did not predict QoL per patient self- or parent-proxy report.
Conclusions: Higher surgical burden was associated with worse QoL outcomes in multiple domains.
期刊介绍：
The Cleft Palate-Craniofacial Journal (CPCJ) is the premiere peer-reviewed, interdisciplinary, international journal dedicated to current research on etiology, prevention, diagnosis, and treatment in all areas pertaining to craniofacial anomalies. CPCJ reports on basic science and clinical research aimed at better elucidating the pathogenesis, pathology, and optimal methods of treatment of cleft and craniofacial anomalies. The journal strives to foster communication and cooperation among professionals from all specialties.
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