确定产妇对新生儿筛查的态度和知识:土耳其样本。

IF 1.5 Q4 GENETICS & HEREDITY Journal of Community Genetics Pub Date : 2023-12-01 Epub Date: 2023-08-03 DOI:10.1007/s12687-023-00659-7
Türkan Kadiroğlu, Gamzegül Altay, Gamze Akay, Çiğdem Can Bayrak
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引用次数: 0

摘要

本研究旨在了解产妇对新生儿筛查的态度和相关知识。这项描述性研究的对象是居住在土耳其北部和东部三个省份中心的产后母亲。样本包括年龄在 18 岁以上、会读写土耳其语、婴儿出生后第 24 小时和第 72 小时、自愿参加研究的母亲。共有 407 名母亲完成了这项研究。研究人员使用 "描述性信息表 "和 "产妇对新生儿筛查的态度和知识调查",通过面对面访谈的方式收集数据。结果显示,40.3% 的母亲年龄在 25 岁至 30 岁之间,52.8% 的母亲接受过新生儿筛查的相关信息,61.1% 的母亲在怀孕期间接受过相关信息(27.3% 的母亲在怀孕前三个月接受,33.8% 的母亲在怀孕后三个月接受),大部分信息是由医疗保健专业人员提供的(77.8%)。研究发现,只有一个孩子的母亲(p = .001)和核心家庭的母亲(p = .024)对新生儿筛查的态度和知识水平较低。研究表明,土耳其母亲对新生儿疾病筛查的了解程度普遍不足。尤其是核心家庭的母亲、只有一个孩子的母亲以及在怀孕期间没有进行定期检查的母亲,对新生儿筛查的了解和态度都不够充分。提高母亲们对筛查测试的了解将使筛查计划的实施更加成功,并能更早地发现和护理患有疾病的新生儿。
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Identification of maternal attitudes and knowledge about newborn screenings: a Turkey sample.

This study was planned to determine maternal attitudes and knowledge about newborn screening. The universe of the descriptive study consisted of postpartum mothers living in the centers of three provinces in the north and east of Turkey. The sample included mothers who were older than 18 years of age, who could read and write Turkish, whose babies were in the 24th and 72nd hour after birth, and who volunteered to take part in the study. The study was completed with 407 mothers. The data were collected with the face-to-face interview method by the researchers using the "Descriptive Information Form" and the "Maternal Attitudes and Knowledge Survey about Newborn Screening." The results showed that 40.3% of the mothers were between the ages of 25 and 30 years, 52.8% received information about newborn screening, 61.1% received this information during pregnancy (27.3% in the first trimester and 33.8% in the last trimester), and most of the information was provided by a healthcare professional (77.8%). Mothers with only one child (p = .001) and those with nuclear families (p = .024) were found to have lower maternal attitudes and knowledge about newborn screening. The study showed that the level of knowledge of Turkish mothers about newborn screening is inadequate in general. In particular, the knowledge and attitudes of mothers with nuclear families, those with one child, and those not having regular check-ups during pregnancy are inadequate. Improving mothers' understanding of screening tests will lead to more successful screening program implementation and earlier detection and care of newborns with a disease.

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来源期刊
Journal of Community Genetics
Journal of Community Genetics GENETICS & HEREDITY-
CiteScore
3.30
自引率
5.30%
发文量
54
期刊介绍: The Journal of Community Genetics is an international forum for research in the ever-expanding field of community genetics, the art and science of applying medical genetics to human communities for the benefit of their individuals. Community genetics comprises all activities which identify persons at increased genetic risk and has an interest in assessing this risk, in order to enable those at risk to make informed decisions. Community genetics services thus encompass such activities as genetic screening, registration of genetic conditions in the population, routine preconceptional and prenatal genetic consultations, public education on genetic issues, and public debate on related ethical issues. The Journal of Community Genetics has a multidisciplinary scope. It covers medical genetics, epidemiology, genetics in primary care, public health aspects of genetics, and ethical, legal, social and economic issues. Its intention is to serve as a forum for community genetics worldwide, with a focus on low- and middle-income countries. The journal features original research papers, reviews, short communications, program reports, news, and correspondence. Program reports describe illustrative projects in the field of community genetics, e.g., design and progress of an educational program or the protocol and achievement of a gene bank. Case reports describing individual patients are not accepted.
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