Exploring the impact of caring for an individual with neurogenic orthostatic hypotension: a qualitative study.

IF 2.3 Q3 CLINICAL NEUROLOGY Neurodegenerative disease management Pub Date : 2023-06-01 DOI:10.2217/nmt-2022-0016
Katy Gallop, Ngan Pham, Grant Maclaine, Emma Saunders, Bonnie Black, Sarah Acaster
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Abstract

Aim: This study aimed to explore the impact of caring for an individual with neurogenic orthostatic hypotension (nOH). Methods: Informal caregivers of individuals with nOH and either Parkinson's disease, multiple system atrophy, pure autonomic failure or dementia with Lewy bodies completed semi-structured interviews. Data were analyzed using thematic analysis; the identified concepts were used to develop a conceptual model. Results: Twenty informal caregivers were interviewed. Analysis identified several areas of caregiver impact due to nOH including impact on their time, particularly a need to supervise the patient to prevent falls as well as a lack of freedom and negative physical, work and social impacts. Many reported negative emotional impacts, including worry, stress or fear about the patient falling, depression and frustration. The conceptual model shows the relationships between concepts. Conclusion: The results highlight the wide-ranging impact of nOH, and the specific impact of the fear of falls on informal caregivers' lives.

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探讨神经源性直立性低血压患者护理的影响:一项定性研究。
目的:本研究旨在探讨护理对神经源性直立性低血压(nOH)患者的影响。方法:nOH合并帕金森病、多系统萎缩、纯自主神经衰竭或路易体痴呆患者的非正式护理人员完成半结构化访谈。数据采用专题分析;确定的概念被用来开发一个概念模型。结果:对20名非正式护理人员进行了访谈。分析确定了nOH对护理人员的几个方面的影响,包括对他们时间的影响,特别是需要监督患者以防止跌倒,以及缺乏自由和负面的身体,工作和社会影响。许多人报告了负面的情绪影响,包括担心、压力或对病人摔倒的恐惧、抑郁和沮丧。概念模型显示了概念之间的关系。结论:研究结果突出了nOH的广泛影响,以及对跌倒的恐惧对非正式照顾者生活的具体影响。
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CiteScore
4.30
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发文量
35
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