Preferences for Participation Measurement Among Individuals Diagnosed With Cancer: A Qualitative Content Analysis.

IF 1.5 4区医学 Q3 REHABILITATION Otjr-Occupation Participation and Health Pub Date : 2024-04-01 Epub Date: 2023-06-24 DOI:10.1177/15394492231181104

Allison J L'Hotta, Taniya E Varughese, Kathleen D Lyons, Audrey Trebelhorn, Annamayil Manohar, Allison A King

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Abstract

Individuals with cancer experience occupational participation restrictions, but there is no consensus on how to measure this construct. The objective of this study is to describe the perspectives and preferences of individuals with cancer regarding participation measurement. Forty individuals with brain, breast, colorectal, and lung cancer provided feedback on three participation measures in semi-structured interviews. Through an iterative, team-based content analysis approach, interview text was coded using the study codebook and organized into themes. Core themes included (a) participation measures highlighted occupational priorities, (b) measuring participation can identify supportive care needs, (c) measures must balance thoroughness with speed of completion, (d) measurement timeframe varies by treatment phase, and (e) evaluating community engagement is not a priority for some individuals with cancer. Integrating participation measures into cancer care can support referrals to occupational therapy and supportive services. It is essential to consider time since cancer diagnosis and client priorities when selecting participation measures.

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癌症患者对参与测量的偏好：定性内容分析。

癌症患者在参与职业活动方面会受到限制，但对于如何衡量这一因素还没有达成共识。本研究旨在描述癌症患者对参与度测量的观点和偏好。40 名脑癌、乳腺癌、结直肠癌和肺癌患者在半结构化访谈中就三种参与度测量方法提供了反馈意见。通过以团队为基础的迭代式内容分析方法，使用研究编码手册对访谈文本进行了编码，并将其整理成主题。核心主题包括：（a）参与度测量突出了职业优先事项；（b）测量参与度可以确定支持性护理需求；（c）测量必须兼顾全面性和完成速度；（d）测量时限因治疗阶段而异；以及（e）评估社区参与度对某些癌症患者来说并非优先事项。将参与度测量纳入癌症护理可为职业治疗和支持性服务的转介提供支持。在选择参与度测量方法时，必须考虑癌症确诊后的时间和客户的优先级。

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来源期刊

Otjr-Occupation Participation and Health REHABILITATION-

CiteScore

2.60

自引率

7.10%

发文量

期刊介绍： The aim of OTJR: Occupation, Participation and Health is to advance knowledge and science in occupational therapy and related fields, nationally and internationally, through the publication of scholarly literature and research. The journal publishes research that advances the understanding of occupation as it relates to participation and health.