The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.

IF 1.3 4区 医学 Q4 BIOTECHNOLOGY & APPLIED MICROBIOLOGY New Genetics and Society Pub Date : 2022-01-01 DOI:10.1080/14636778.2022.2115349
Simon M Outram, Sara L Ackerman, Matthew Norstad, Barbara Koenig
{"title":"The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.","authors":"Simon M Outram,&nbsp;Sara L Ackerman,&nbsp;Matthew Norstad,&nbsp;Barbara Koenig","doi":"10.1080/14636778.2022.2115349","DOIUrl":null,"url":null,"abstract":"<p><p>Addressing health disparities has become a central remit for conducting health research. In the following paper, we explore the conceptual and methodological challenges posed by the call to recruit medically underserved populations. This exploration of challenges is undertaken from the perspective of social science researchers embedded in a large within a clinical genomics research study. We suggest that these challenges are found in respect to the development of recruiting strategies, analysis of the data in respect to understanding and interpreting the experiences of being medically underserved, and in comparing the experiences of being medically underserved compared to not being underserved. By way of conclusion, it is argued that there is important role for social scientists with large health research studies which, if achieved successfully, can benefit study teams and society as a whole.</p>","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"41 3","pages":"216-226"},"PeriodicalIF":1.3000,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10035592/pdf/nihms-1832308.pdf","citationCount":"1","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"New Genetics and Society","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/14636778.2022.2115349","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"BIOTECHNOLOGY & APPLIED MICROBIOLOGY","Score":null,"Total":0}
引用次数: 1

Abstract

Addressing health disparities has become a central remit for conducting health research. In the following paper, we explore the conceptual and methodological challenges posed by the call to recruit medically underserved populations. This exploration of challenges is undertaken from the perspective of social science researchers embedded in a large within a clinical genomics research study. We suggest that these challenges are found in respect to the development of recruiting strategies, analysis of the data in respect to understanding and interpreting the experiences of being medically underserved, and in comparing the experiences of being medically underserved compared to not being underserved. By way of conclusion, it is argued that there is important role for social scientists with large health research studies which, if achieved successfully, can benefit study teams and society as a whole.

查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
招募不同人群进入健康研究的挑战:一个嵌入的社会科学视角。
消除卫生差距已成为开展卫生研究的一项核心任务。在下面的论文中,我们探讨了呼吁招募医疗服务不足人群所带来的概念和方法挑战。这种挑战的探索是从嵌入在一个大型临床基因组学研究中的社会科学研究人员的角度进行的。我们认为,这些挑战存在于招聘战略的制定、有关理解和解释医疗服务不足经验的数据分析,以及比较医疗服务不足与医疗服务不足经验方面。综上所述,有人认为社会科学家在大型健康研究中扮演着重要的角色,如果成功的话,可以使研究团队和整个社会受益。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 去求助
来源期刊
New Genetics and Society
New Genetics and Society 生物-生物工程与应用微生物
CiteScore
4.30
自引率
16.70%
发文量
19
审稿时长
>12 weeks
期刊介绍: New Genetics and Society: Critical Studies of Contemporary Biosciences is a world-leading journal which: -Provides a focus for interdisciplinary and multi-disciplinary, leading-edge social science research on the new genetics and related biosciences; -Publishes theoretical and empirical contributions reflecting its multi-faceted development; -Provides an international platform for critical reflection and debate; -Is an invaluable research resource for the many related professions, including health, medicine and the law, wishing to keep abreast of fast changing developments in contemporary biosciences. New Genetics and Society publishes papers on the social aspects of the new genetics (widely defined), including gene editing, genomics, proteomics, epigenetics and systems biology; and the rapidly developing biosciences such as biomedical and reproductive therapies and technologies, xenotransplantation, stem cell research and neuroscience. Our focus is on developing a better understanding of the social, legal, ethical and policy aspects, including their local and global management and organisation.
期刊最新文献
A place for science and technology studies. Observation, collaboration and intervention Constructing maternal responsibility: narratives of “motherly love” and maternal blame in epigenetics research “Law at the frontiers of biomedicine” The salience of genomic information to reproductive autonomy: Australian healthcare professionals’ views on a changing prenatal testing landscape Goffman against DNA: genetic stigma and the use of genetic ancestry tests by white nationalists
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1