Pub Date : 2024-09-09DOI: 10.1080/14636778.2024.2398415
Jeannette Pols
Published in New Genetics and Society: Critical Studies of Contemporary Biosciences (Vol. 43, No. 1, 2024)
发表于《新遗传学与社会》：当代生物科学批判研究》（第 43 卷第 1 期，2024 年）
{"title":"A place for science and technology studies. Observation, collaboration and intervention","authors":"Jeannette Pols","doi":"10.1080/14636778.2024.2398415","DOIUrl":"https://doi.org/10.1080/14636778.2024.2398415","url":null,"abstract":"Published in New Genetics and Society: Critical Studies of Contemporary Biosciences (Vol. 43, No. 1, 2024)","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"19 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142183147","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-07DOI: 10.1080/14636778.2024.2368893
Ameil Alghrani
Published in New Genetics and Society: Critical Studies of Contemporary Biosciences (Vol. 43, No. 1, 2024)
发表于《新遗传学与社会》：当代生物科学批判研究》（第 43 卷第 1 期，2024 年）
{"title":"“Law at the frontiers of biomedicine”","authors":"Ameil Alghrani","doi":"10.1080/14636778.2024.2368893","DOIUrl":"https://doi.org/10.1080/14636778.2024.2368893","url":null,"abstract":"Published in New Genetics and Society: Critical Studies of Contemporary Biosciences (Vol. 43, No. 1, 2024)","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"8 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141568377","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-07DOI: 10.1080/14636778.2024.2367206
Courtney McMahon
Research in epigenetics is demonstrating the importance of maternal care towards offspring early in life for long-term health and behavioral outcomes. Although most of this research has been conduc...
{"title":"Constructing maternal responsibility: narratives of “motherly love” and maternal blame in epigenetics research","authors":"Courtney McMahon","doi":"10.1080/14636778.2024.2367206","DOIUrl":"https://doi.org/10.1080/14636778.2024.2367206","url":null,"abstract":"Research in epigenetics is demonstrating the importance of maternal care towards offspring early in life for long-term health and behavioral outcomes. Although most of this research has been conduc...","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"366 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141568375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-22DOI: 10.1080/14636778.2024.2332310
Kerryn Drysdale, J. L. Scully, L. Kint, K.-J. Laginha, J. Hodgson, I. Holmes, K. L. MacKay, A. J. Newson
Genomic testing in prenatal care is rapidly advancing and it is now possible to obtain an entire fetal genome via a blood test administered in early pregnancy. In the pursuit of reproductive autono...
{"title":"The salience of genomic information to reproductive autonomy: Australian healthcare professionals’ views on a changing prenatal testing landscape","authors":"Kerryn Drysdale, J. L. Scully, L. Kint, K.-J. Laginha, J. Hodgson, I. Holmes, K. L. MacKay, A. J. Newson","doi":"10.1080/14636778.2024.2332310","DOIUrl":"https://doi.org/10.1080/14636778.2024.2332310","url":null,"abstract":"Genomic testing in prenatal care is rapidly advancing and it is now possible to obtain an entire fetal genome via a blood test administered in early pregnancy. In the pursuit of reproductive autono...","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"95 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140635250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-05DOI: 10.1080/14636778.2024.2332307
Elodie Edwards-Grossi, Joan Donovan
How do white nationalists use genetic ancestry tests? This article provides a qualitative analysis of posts from Stormfront, a white nationalist message board, to understand how white nationalists ...
{"title":"Goffman against DNA: genetic stigma and the use of genetic ancestry tests by white nationalists","authors":"Elodie Edwards-Grossi, Joan Donovan","doi":"10.1080/14636778.2024.2332307","DOIUrl":"https://doi.org/10.1080/14636778.2024.2332307","url":null,"abstract":"How do white nationalists use genetic ancestry tests? This article provides a qualitative analysis of posts from Stormfront, a white nationalist message board, to understand how white nationalists ...","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"9 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140599216","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-03DOI: 10.1080/14636778.2024.2332306
Matthew Kearney
This study investigates prospective fathers’ reaction to epigenetics and its implications for heredity. Mounting scientific evidence that epigenetic changes transmit through fathers, not just mothe...
{"title":"Genetic subjectivities of prospective fathers: men’s attitudes toward epigenetics","authors":"Matthew Kearney","doi":"10.1080/14636778.2024.2332306","DOIUrl":"https://doi.org/10.1080/14636778.2024.2332306","url":null,"abstract":"This study investigates prospective fathers’ reaction to epigenetics and its implications for heredity. Mounting scientific evidence that epigenetic changes transmit through fathers, not just mothe...","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"93 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140599226","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-16DOI: 10.1080/14636778.2024.2317709
Rachel Thorpe, Vera Raivola, Barbara Masser
This study examines how the institutional context informs the ways in which healthy recipients relate to genomic information. Through focus group data, it considers the trend of blood collection ag...
{"title":"Recoding the gift relationship: views on introducing genomic testing to blood donation","authors":"Rachel Thorpe, Vera Raivola, Barbara Masser","doi":"10.1080/14636778.2024.2317709","DOIUrl":"https://doi.org/10.1080/14636778.2024.2317709","url":null,"abstract":"This study examines how the institutional context informs the ways in which healthy recipients relate to genomic information. Through focus group data, it considers the trend of blood collection ag...","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"26 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-02-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139770665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-13DOI: 10.1080/14636778.2024.2305956
Anindita Majumdar
Published in New Genetics and Society: Critical Studies of Contemporary Biosciences (Vol. 43, No. 1, 2024)
发表于《新遗传学与社会》：当代生物科学批判研究》（第 43 卷第 1 期，2024 年）
{"title":"Toxic disruptions: polycystic ovary syndrome in urban India","authors":"Anindita Majumdar","doi":"10.1080/14636778.2024.2305956","DOIUrl":"https://doi.org/10.1080/14636778.2024.2305956","url":null,"abstract":"Published in New Genetics and Society: Critical Studies of Contemporary Biosciences (Vol. 43, No. 1, 2024)","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"6 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139769533","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2197583
Fatos Selita, R. Chapman, Y. Kovas, Vanessa Smereczynska, M. Likhanov, Teemu Toivainen
Timely effective regulation of genetic advances presents a challenge for justice systems. We used a 51-item battery to examine views on major genetics-related issues of those at the forefront of regulating this area – Supreme Court judges ( N = 73). We also compared their views with those of other justice stakeholders ( N = 210) from the same country (Romania). Judges showed greater endorsement and less variability in views on the use of genetic data and technologies than the other groups. The agreement among the judges was strikingly strong for some controversial issues, including gene editing; patenting of genetic fi ndings; and the State using genetic information for crime prevention. Judges and other lawyers recognized the need for amending the relevant laws. Without appropriate regulation, genetic science has a risk of propelling inequality rather than ful fi lling its promise to improve people ’ s lives.
{"title":"Consensus too soon: judges’ and lawyers’ views on genetic information use","authors":"Fatos Selita, R. Chapman, Y. Kovas, Vanessa Smereczynska, M. Likhanov, Teemu Toivainen","doi":"10.1080/14636778.2023.2197583","DOIUrl":"https://doi.org/10.1080/14636778.2023.2197583","url":null,"abstract":"Timely effective regulation of genetic advances presents a challenge for justice systems. We used a 51-item battery to examine views on major genetics-related issues of those at the forefront of regulating this area – Supreme Court judges ( N = 73). We also compared their views with those of other justice stakeholders ( N = 210) from the same country (Romania). Judges showed greater endorsement and less variability in views on the use of genetic data and technologies than the other groups. The agreement among the judges was strikingly strong for some controversial issues, including gene editing; patenting of genetic fi ndings; and the State using genetic information for crime prevention. Judges and other lawyers recognized the need for amending the relevant laws. Without appropriate regulation, genetic science has a risk of propelling inequality rather than ful fi lling its promise to improve people ’ s lives.","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"62 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84997269","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/14636778.2023.2193318
Siobhan Pokorney
{"title":"Healthcare activism: markets, morals, and the collective good","authors":"Siobhan Pokorney","doi":"10.1080/14636778.2023.2193318","DOIUrl":"https://doi.org/10.1080/14636778.2023.2193318","url":null,"abstract":"","PeriodicalId":54724,"journal":{"name":"New Genetics and Society","volume":"2 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74038683","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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