Kid-Ney's Journey: A game to support treatment selection for people with chronic kidney failure

A. Vis
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引用次数: 2

Abstract

The number of people suffering from chronic kidney failure is rising, due to the growing population of elderly, longer life-expectancy, and the increasing number of people with other lifestyle related diseases that affect the kidneys. People with severe chronic kidney failure are dependent on some form of kidney replacement treatment to survive. They are often eligible for several treatment methods and here the patient should be involved in the decision making, especially when the medical outcome is expected to be similar. This is important, as people are the experts on their life, values and believes and the different treatment methods each have unlike effects on daily life. However, knowledge is a barrier for these patients to actively take part in such discussions with their medical professional. This paper discusses a game-concept that is developed to give people more insight in the effects of a treatment on daily life, as well as helping them to evaluate the different treatment methods. The goal of this paper is to contribute to the development of additional patient information sources that focus on values and beliefs, and the effects of treatment on daily life, in order to empower patients in discussions with their medical professionals.
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Kid-Ney’s Journey:一款支持慢性肾衰竭患者选择治疗方案的游戏
由于老年人口的增加、预期寿命的延长以及患有其他影响肾脏的生活方式相关疾病的人数的增加,慢性肾衰竭的人数正在上升。患有严重慢性肾衰竭的人依赖某种形式的肾脏替代治疗来生存。他们通常有资格接受几种治疗方法,在这种情况下,患者应该参与决策,特别是在预期医疗结果相似的情况下。这一点很重要,因为人们对自己的生活、价值观和信仰都是专家,不同的治疗方法对日常生活的影响也不同。然而,知识是这些患者积极参与与他们的医疗专业人员讨论的障碍。本文讨论了一个游戏概念,它的发展是为了让人们更深入地了解治疗对日常生活的影响,并帮助他们评估不同的治疗方法。本文的目标是帮助开发更多的患者信息源,重点关注价值观和信仰,以及治疗对日常生活的影响,以便使患者能够与其医疗专业人员进行讨论。
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