Perinatal palliative care

Á. Laoire, D. Nuzum, M. O'Reilly, Marie Twomey, K. O’Donoghue, M. Devins
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Abstract

Perinatal palliative care (PNPC) is a holistic multidisciplinary model of care for both baby and family in the event of a perinatal diagnosis of a life-limiting condition. It aims to provide optimal symptom control and end-of-life care to the baby as well as specialized support to families from diagnosis through to birth, death, and bereavement. This chapter aims to address the challenging clinical, ethical, and practical issues specific to perinatal palliative care. It describes antenatal life-limiting diagnoses, the role of anticipatory bereavement care, a palliative care approach to pregnancy, and outlines the complex planning and models of care required to optimally provide for the baby, mother, and family throughout. This chapter ultimately aims to provide management strategies to guide multidisciplinary teams (MDT) to deliver high-quality PNPC to the family as a whole.
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围产期姑息治疗
围产期姑息治疗(PNPC)是在围产期诊断出限制生命的疾病时为婴儿和家庭提供的一种全面的多学科护理模式。它旨在为婴儿提供最佳的症状控制和临终关怀,并为家庭提供从诊断到出生、死亡和丧亲的专业支持。本章旨在解决具有挑战性的临床,伦理和实际问题,具体围产期姑息治疗。它描述了产前限制生命的诊断,预期丧亲护理的作用,对怀孕的姑息治疗方法,并概述了为婴儿、母亲和家庭提供最佳护理所需的复杂计划和模式。本章的最终目的是提供管理策略,以指导多学科团队(MDT)为整个家庭提供高质量的PNPC。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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Perinatal palliative care Research in children’s palliative care Impact on the family Children’s views of death Overview of symptoms and their assessment in life-limiting illness
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