Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy

J. Beal, S. Moshé
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Abstract

Epilepsy is a disease that hijacks the lives of millions of people around the world, affecting people of any age, ethnicity, or socioeconomic status. It is an unpredictable, often debilitating disorder that imposes a serious health burden worldwide. Ongoing advocacy efforts have made great strides towards fighting stigma, improving epilepsy education for medical professionals and the public, and closing the treatment gap for those with epilepsy. Going forward, it is vital that we continue to advocate for government agencies to make epilepsy a priority. Medical professionals need to be educated on how to manage epilepsy, and appropriate diagnostic tools and treatments must be made widely available. We must work to improve public education and establish clear therapeutic and research guidelines. Through collaboration between advocacy groups, governments, and individuals we can bring epilepsy out of the shadows and work towards a world in which no one’s life is limited by epilepsy.
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倡导癫痫:从阴影走向中心舞台:为癫痫挺身而出
癫痫是一种夺走全世界数百万人生命的疾病,影响任何年龄、种族或社会经济地位的人。它是一种不可预测的、常常使人衰弱的疾病,在全世界造成严重的健康负担。正在进行的宣传工作在消除耻辱感、改善对医疗专业人员和公众的癫痫教育以及缩小癫痫患者的治疗差距方面取得了巨大进展。展望未来,至关重要的是,我们必须继续倡导政府机构将癫痫列为优先事项。医疗专业人员需要接受如何管理癫痫的教育,并且必须广泛提供适当的诊断工具和治疗方法。我们必须努力改善公众教育,并制定明确的治疗和研究指南。通过倡导团体、政府和个人之间的合作,我们可以使癫痫走出阴影,努力建设一个没有人的生命受到癫痫限制的世界。
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Results, outlook, and goals of this book Using PR tools for advocacy Advocacy, campaigning, lobbying: Good or bad? Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy Physician autonomy and the pharmaceutical industry
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