Intersectionality: A Framework for Children with Special HealthCare Needs Research

Abstract

Introduction: The experience of children with special healthcare needs (CSHCN) who hold multiply marginalized identities is underrepresented in healthcare research literature. Even less research investigates the impact of multiple systems of oppression on CSHCN experiences with healthcare providers, services, and systems. Methods: To identify gaps and areas of future research, in early 2020, a scoping review of current CSHCN healthcare literature that includes an explicit intersectionality framework or analysis was conducted. Findings:  Based on the literature search results, there were zero peer reviewed articles within the CSHCN research literature that included a framework or analysis of intersectionality. Implication: CSHCN have diverse lived experiences. An explicitly intersectional approach is best suited to creating programs, treatments, interventions, and service provision that address the truly complex needs of this population within the U.S. dominant culture. Promising frameworks and future research needs are discussed.