Experiences of Persons with Disabilities and their Quality of Life in Two Namibian Villages

T. Shumba, I. Moodley
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Abstract

Purpose: The study aimed to determine the convergence and divergence of the Photovoice method and the WHOQOL-BREF assessment in integrating the experiences of persons with disabilities with Community-Based Rehabilitation and their quality of life respectively. It also aimed to propose a shared framework for Community-Based Rehabilitation (CBR) programme evaluation in Namibia. Method: A qualitative phenomenological design was utilised. Twelve participants were part of this study.The primary data sets used for analysis were photographs taken during a study using the Photovoice method and the results from the WHOQOL-BREF questionnaire. The Photovoice process preceded completion of the WHOQOL-BREF questionnaire. Information about the participants was gathered during the two phases. The CBR Matrix developed by the World Health Organisation was utilised to determine themes for the Photovoice method. Results of the Photovoice study were integrated with those of the WHOQOL-BREF to determine convergence and divergence. Results: Notably, most participants (n=8) in both study sites had low scores regarding their quality of social relationships and environment. Furthermore, the Photovoice method revealed negative experiences of the participants regarding the environment (physical safety and security, home environment, financial resources, health and social care, access to information, recreation and leisure, physical environment, and transport). By and large there was a stronger convergence than divergence of the Photovoice method and WHOQOL-BREF assessment. Conclusion and Implications: Notwithstanding the in-depth investigation, the small sample size limits generalisability of the research findings. A study with a larger sample size is needed to confirm the findings, especially regarding the WHOQOL-BREF assessment. This study proposes a practice framework for CBR programme evaluation in Namibia that integrates the WHO CBR Matrix, Photovoice method, WHOQOL-BREF and highlights from the other frameworks. Further studies are required to validate the framework.
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纳米比亚两个村庄中残疾人的经历及其生活质量
目的:本研究旨在确定Photovoice方法与WHOQOL-BREF评估在整合残疾人社区康复经验及其生活质量方面的趋同与差异。它还旨在为纳米比亚社区康复方案评价提出一个共同框架。方法:采用定性现象学设计。12名参与者参与了这项研究。用于分析的主要数据集是使用Photovoice方法在研究期间拍摄的照片和WHOQOL-BREF问卷调查的结果。Photovoice过程先于WHOQOL-BREF问卷的完成。参与者的信息是在这两个阶段收集的。利用世界卫生组织开发的CBR矩阵来确定Photovoice方法的主题。将Photovoice的研究结果与WHOQOL-BREF的结果相结合,以确定趋同和分歧。结果:值得注意的是,两个研究地点的大多数参与者(n=8)在社会关系和环境质量方面得分较低。此外,Photovoice方法揭示了参与者在环境方面的负面经历(人身安全和保障、家庭环境、财政资源、健康和社会护理、获取信息、娱乐和休闲、物理环境和交通)。总的来说,Photovoice方法与WHOQOL-BREF评价的收敛性强于发散性。结论和启示:尽管调查深入,但样本量小限制了研究结果的普遍性。需要更大样本量的研究来证实这些发现,特别是关于WHOQOL-BREF评估。本研究为纳米比亚的CBR规划评估提出了一个实践框架,该框架整合了世卫组织CBR矩阵、Photovoice方法、WHOQOL-BREF以及其他框架的亮点。需要进一步的研究来验证该框架。
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