Pediatric Palliative Care: Practice Variation and Recommendations

Louise Glaser, Katherine Schreiner, H. Homler, E. Schreiner, Q. Tran
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Abstract

Background: Palliative care provides holistic supportive care for people with complex life-limiting disease including symptom relief, navigation of complex medical decisions and support for their unique psychological, social, and spiritual needs to enhance their quality of life. Children are distinct from adults in many ways including their diagnoses, disease trajectories, symptom burden, and spectrum of caregivers. As medical technologies improve, the number of children who are appropriate for pediatric palliative care (PPC) expertise is increasing. This project sought to characterize …
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儿科姑息治疗:实践变化和建议
背景:姑息治疗为患有复杂生命限制疾病的患者提供全面的支持性护理,包括症状缓解,复杂医疗决策的导航以及对他们独特的心理,社会和精神需求的支持,以提高他们的生活质量。儿童在许多方面与成人不同,包括他们的诊断、疾病轨迹、症状负担和照顾者的范围。随着医疗技术的进步,适合儿科姑息治疗(PPC)专业知识的儿童人数正在增加。这个项目试图描述……
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