Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.519
Katharine Davidoff, B. Moresco, E. Jones, C. Ullrich, J. Wolfe, S. Liaw, J. Snaman, Elliot C Rabinowitz, Terrance Murphy
{"title":"Can You Hear My Empathy? Rapid Implementation of a Pediatric Palliative Care Virtual Visit Initiative during the COVID-19 Pandemic","authors":"Katharine Davidoff, B. Moresco, E. Jones, C. Ullrich, J. Wolfe, S. Liaw, J. Snaman, Elliot C Rabinowitz, Terrance Murphy","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.519","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.519","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"55 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114302830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.543
Haoyang Yan, Arslanian-Engoren Cynthia, K. Pituch, P. Deldin, Stephanie K. Kukora
{"title":"Parent Experiences And Considerations When Facing Tracheostomy Decisions For A Critically Ill Child","authors":"Haoyang Yan, Arslanian-Engoren Cynthia, K. Pituch, P. Deldin, Stephanie K. Kukora","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.543","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.543","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"26 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127046421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.547
T. Vente, K. Ross
Introduction: Social media has become part of the developmental experience for adolescents and young adults (AYA) who remain its most prolific users. The impact of social media use across medical disciplines is an area of developing interest. Studies have shown that adolescents use the internet to gather information about their health. Diagnosis of a serious illness among AYA can …
{"title":"Title: Snapchat story: I Need A Heart Transplant","authors":"T. Vente, K. Ross","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.547","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.547","url":null,"abstract":"Introduction: Social media has become part of the developmental experience for adolescents and young adults (AYA) who remain its most prolific users. The impact of social media use across medical disciplines is an area of developing interest. Studies have shown that adolescents use the internet to gather information about their health. Diagnosis of a serious illness among AYA can …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"13 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122990945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.541-A
A. Kiefer, Alexis Morvant, C. Buckingham, A. Vaden, J. Zeringue
{"title":"Louisiana Pediatric Hospice Concurrent Care: Rewriting Culture and Language","authors":"A. Kiefer, Alexis Morvant, C. Buckingham, A. Vaden, J. Zeringue","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.541-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.541-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"85 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124909842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.548
N. Lawal, Tatiana M. Arevalo Soriano, Shimei S. Nelapati, D. Mahoney
{"title":"Towards a Narrative Medicine Curriculum for Fellows in Hospice and Palliative Medicine","authors":"N. Lawal, Tatiana M. Arevalo Soriano, Shimei S. Nelapati, D. Mahoney","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.548","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.548","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"44 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116557802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.533-A
A. Trowbridge, Jori F. Bogetz, Molly Taylor, Jenny Kingsley, A. Rosenberg, Krysta S. Barton
{"title":"How We Get Through Each Day: Resilience Among Parents of Adolescents and Young Adults with Advanced Cancer","authors":"A. Trowbridge, Jori F. Bogetz, Molly Taylor, Jenny Kingsley, A. Rosenberg, Krysta S. Barton","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.533-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.533-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"177 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114017921","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.522
Vivien Phung, S. Dabagh
{"title":"Complete Trisomy 22 and Congenital Heart Repair: The Impact of Shared Decision Making","authors":"Vivien Phung, S. Dabagh","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.522","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.522","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"27 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128093223","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.530-A
J. Anderson, A. Yee, Allie Kiley, Kristin A Shadman, S. Srinivasan, Margo L Hoover-Regan
{"title":"Family Centered Care For Patients With Congenital Heart Defects: Enhancing The Role Of Palliative Care","authors":"J. Anderson, A. Yee, Allie Kiley, Kristin A Shadman, S. Srinivasan, Margo L Hoover-Regan","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.530-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.530-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"9 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133461502","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.524
T. Chatmethakul, Abimbola Olayinka, T. Elgin
{"title":"Cultural Complexity As A Barrier To Shared Decision Making In Neonatal End Of Life Discussions.","authors":"T. Chatmethakul, Abimbola Olayinka, T. Elgin","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.524","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.524","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114384763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.545
J. Reichman, C. Samsel, Emily Morell, David W Brown, M. Miller, Eleni G. Elia, L. Sleeper, E. Blume
Background: Although survival of children with advanced heart disease (AHD) has been improving, long-term morbidity remains high, leading to chronic conditions. There is little data on the perspectives of fathers caring for chronically ill children. This study describes the experience and prognostic awareness of fathers of hospitalized children with AHD. Methods: Cross-sectional survey study of parents caring for children hospitalized with AHD (age 30 d - 19 yr) admitted for ≥ 7 d between 2/18-2/19. Inclusion criteria: single ventricle, pulmonary vein stenosis, pulmonary hypertension, length of stay >30 d, …
背景:虽然患有晚期心脏病(AHD)的儿童生存率有所提高，但长期发病率仍然很高，导致慢性疾病。很少有关于父亲照顾慢性病儿童的观点的数据。本研究描述adhd住院儿童父亲的经验与预后意识。方法:对2月18日至2月19日住院≥7天AHD患儿(年龄30 d - 19岁)的家长进行横断面调查研究。纳入标准:单心室、肺静脉狭窄、肺动脉高压、住院时间>30 d、…
{"title":"Perception of Fathers of Hospitalized Children with Advanced Heart Disease","authors":"J. Reichman, C. Samsel, Emily Morell, David W Brown, M. Miller, Eleni G. Elia, L. Sleeper, E. Blume","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.545","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.545","url":null,"abstract":"Background: Although survival of children with advanced heart disease (AHD) has been improving, long-term morbidity remains high, leading to chronic conditions. There is little data on the perspectives of fathers caring for chronically ill children. This study describes the experience and prognostic awareness of fathers of hospitalized children with AHD. Methods: Cross-sectional survey study of parents caring for children hospitalized with AHD (age 30 d - 19 yr) admitted for ≥ 7 d between 2/18-2/19. Inclusion criteria: single ventricle, pulmonary vein stenosis, pulmonary hypertension, length of stay >30 d, …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128675978","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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