{"title":"A Call for Expanding the Diversity of Voices in Autism Research Engagement","authors":"M. Salt","doi":"10.15173/cjae.v1i1.4991","DOIUrl":null,"url":null,"abstract":"Recently, there has been a push to increase research engagement within the autism community. Historically, research engagement has largely focused on childhood disability research and participatory autism research remains rare (den Houting et al., 2021). This gap in the literature can often result in the substitution of parents’ voices for those of their Autistic children within the framework of family-centred services. This article argues that research engagement should be conducted in a way that can represent the wider autism community and cautions against allowing voices of one element of the autism community to speak for the whole. ","PeriodicalId":123262,"journal":{"name":"Canadian Journal of Autism Equity","volume":"10 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2021-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Canadian Journal of Autism Equity","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.15173/cjae.v1i1.4991","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
Recently, there has been a push to increase research engagement within the autism community. Historically, research engagement has largely focused on childhood disability research and participatory autism research remains rare (den Houting et al., 2021). This gap in the literature can often result in the substitution of parents’ voices for those of their Autistic children within the framework of family-centred services. This article argues that research engagement should be conducted in a way that can represent the wider autism community and cautions against allowing voices of one element of the autism community to speak for the whole.
最近,在自闭症群体中有一种增加研究参与的趋势。从历史上看,研究参与主要集中在儿童残疾研究上,参与式自闭症研究仍然很少(den Houting et al., 2021)。这种文献上的差距往往会导致在以家庭为中心的服务框架内,父母的声音取代了自闭症儿童的声音。这篇文章认为,研究参与应该以一种能够代表更广泛的自闭症群体的方式进行,并警告不要让自闭症群体中的一个人的声音代表整个群体的声音。