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Canadian Journal of Autism Equity最新文献

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British Columbia’s Autism Funding Policies 不列颠哥伦比亚省的自闭症资助政策
Pub Date : 2024-05-01 DOI: 10.15173/cjae.v4i1.5669
Elliot Gustafson
Autism Spectrum Disorder (ASD) affects one out of 100 children worldwide (World Health Organization, 2023). In Canada, public debates about policies related to autism funding have been ongoing. This research paper provides an analysis of the autism funding policies in British Columbia from inception to present day. Using an economic, social, and educational lens, this paper will examine the progress that has been made to support children living with ASD over two decades and the issues that exist within current autism funding policies that require addressing to improve access and quality of care, support services, and education for those with ASD.
全世界每 100 名儿童中就有一名患有自闭症(ASD)(世界卫生组织,2023 年)。在加拿大,有关自闭症资助政策的公开辩论一直在进行。本研究论文对不列颠哥伦比亚省自闭症资助政策从开始到现在的情况进行了分析。本文将从经济、社会和教育的角度,审视二十年来在支持自闭症儿童方面取得的进展,以及当前自闭症资助政策中存在的问题,这些问题需要解决,以改善自闭症患者获得护理、支持服务和教育的途径和质量。
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引用次数: 0
Autistic Perspective on Workplace Disclosure and Accommodation 从自闭症视角看工作场所的信息披露与包容
Pub Date : 2024-05-01 DOI: 10.15173/cjae.v4i1.5422
Eric Samtleben
The negative stereotypes associated with autism have created many barriers to employment. As a result, the autistic population has some of the lowest workforce participation rates among all types of disability; with about only one-quarter of the working age population actively participating. These low unemployment rates persist despite many autistic people expressing the desire to work and being more than capable to do so. Among successfully employed autistic people, disclosure and effective accommodations appear to be key factors for the maintenance of long-term employment. Thus, the present study aimed to provide a qualitative exploration of autistic perspectives on how managers/organizations can encourage disclosure and accommodation requests. In addition, this project sought to explore how managers and/or organizations can best support their autistic employees following an accommodation request. Results from the thematic analysis revealed four primary themes (i.e., authentic culture of caring and inclusivity; strengths approach; individualization and collaboration; and clear and consistent structure/communication) stratified by two categories (i.e., encouraging disclosure and accommodation requests; and supporting autistic employees). The results from this study provide managers/organizations with a practical framework for encouraging disclosure and informing the accommodation process.
与自闭症相关的负面刻板印象给就业造成了许多障碍。因此,在所有残疾类型中,自闭症人群的劳动力参与率最低;大约只有四分之一的工作年龄人口积极参与其中。尽管许多自闭症患者表达了工作的愿望,并且完全有能力工作,但低失业率依然存在。在成功就业的自闭症患者中,信息披露和有效的适应措施似乎是维持长期就业的关键因素。因此,本研究旨在从自闭症患者的角度,对管理者/组织如何鼓励自闭症患者披露自己的情况和提出便利要求进行定性探讨。此外,本项目还试图探讨管理者和/或组织如何在自闭症员工提出便利请求后为其提供最佳支持。专题分析的结果显示了四个主要专题(即真正的关爱和包容文化;优势方法;个性化和协作;清晰一致的结构/沟通),并按两个类别(即鼓励披露和调适请求;支持自闭症员工)进行了分层。本研究的结果为管理者/组织提供了一个实用的框架,用于鼓励信息披露和告知调适过程。
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引用次数: 0
Autistic Children and Group Homes 自闭症儿童与集体之家
Pub Date : 2024-05-01 DOI: 10.15173/cjae.v4i1.5680
Stephen Bedard
There is no guaranteed outcome for an autistic person when it comes to housing. It can range from complete independent living to living with family to being placed in a group home. In this personal account, the story of one family with two autistic children with high needs is shared. Placing a child in a group home is difficult for any parent. The emotional cost is great enough but there are additional challenges that can add to the pain of the situation. What is shared is not meant to generalize to the experience of all autistic people, not even all autistic people who are placed in group homes. This account is a snapshot of one family’s experience that may highlight some of the problems with the system and potentially point to areas for improvement.
自闭症患者在住房方面没有一定的结果。从完全独立生活,到与家人同住,再到被安置在集体之家,不一而足。在这篇亲身经历的文章中,我们将分享一个家庭的故事,这个家庭有两个有高度需求的自闭症儿童。将孩子安置在集体之家对任何父母来说都是一件困难的事。精神上的代价已经够大了,但还有一些额外的挑战会增加这种情况的痛苦。我们分享的内容并不是要概括所有自闭症患者的经历,甚至不是所有被安置在集体之家的自闭症患者的经历。这只是一个家庭经历的缩影,可能会凸显出系统中的一些问题,并可能指出需要改进的地方。
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引用次数: 0
Maison de groupe fondée sur la recherche, inspirée par les personnes autistes 受自闭症患者启发的研究型集体之家
Pub Date : 2024-05-01 DOI: 10.15173/cjae.v4i1.5681
Anne-Marie Nader
Le développement d’habitation adaptées et valorisantes pour les personnes autistes répond à la volonté d’œuvrer en vue d’une meilleure justice sociale en créant des milieux de vie inclusifs en accord avec les besoins et les attentes des personnes autistes. Le présent projet vise à décrire un exemple de partenariat recherche-communauté qui a mené à la conception d'un milieu de vie de groupe conçu en fonction des préférences des personnes autistes.
根据自闭症患者的需求和期望,创造包容性的生活环境,从而努力实现更大的社会公正,这就是开发适合自闭症患者并受其重视的住宅的初衷。本项目旨在介绍一个研究与社区合作的实例,通过这种合作,根据自闭症患者的喜好设计了一个集体生活环境。
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引用次数: 0
cohabitation en mixité sociale 群居
Pub Date : 2024-05-01 DOI: 10.15173/cjae.v4i1.5679
Isabelle Courcy, Nuria Jeanneret, Baudouin Forgeot d'Arc
L’inclusion des personnes autistes dans la communauté est un élément essentiel à considérer dans le développement de projets résidentiels qui leur sont destinés. La cohabitation en mixité sociale est une approche intéressante pour favoriser cette inclusion dans la communauté. Toutefois, peu de recherches ont été menées à ce jour sur ce que souhaitent les personnes autistes en matière de logement et d’habitation. Encore plus rares sont celles qui abordent la question sous l’angle de la cohabitation en mixité sociale. Qu’en disent les personnes autistes ? Sont-elles intéressées à cohabiter avec des familles, des personnes de différentes générations ou des personnes étudiantes ? En collaboration avec un organisme communautaire en autisme, un sondage a été réalisé (n = 370). Les résultats indiquent qu’environ 4 personnes sur 5 sont intéressées à cohabiter dans un projet résidentiel en mixité sociale composée de personnes autistes et de personnes non autistes. Cet intérêt varie peu selon les caractéristiques sociodémographiques et les besoins de soutien ou d’accompagnement à la vie autonome. L’analyse qualitative des commentaires offre des pistes pour mieux comprendre les raisons pour lesquelles les personnes sont intéressées (ou non) à cohabiter en mixité sociale. Les résultats montrent que la cohabitation en mixité sociale est un modèle qui pourrait convenir à plusieurs, mais que des défis sont craints en raison du manque de connaissance perçu de la population générale à l’égard des différentes réalités de l’autisme.
在为自闭症患者开发住宅项目时,将他们融入社区是一个需要考虑的基本要素。社会混合同居是促进自闭症患者融入社区的一个有趣方法。然而,迄今为止,关于自闭症患者对住房的需求的研究还很少。从社会混合同居的角度来研究这个问题的研究就更少了。自闭症患者对此有何看法?他们对与家人、不同年代的人或学生一起居住感兴趣吗?我们与一个社区自闭症组织合作开展了一项调查(n = 370)。结果显示,大约五分之四的人有兴趣与自闭症患者和非自闭症患者一起居住在社会混合住宅项目中。这种兴趣根据社会人口特征和独立生活的支持或援助需求而变化不大。通过对评论意见的定性分析,可以深入了解人们对在社会混合社区居住感兴趣(或不感兴趣)的原因。结果表明,社会混合同居是一种适合许多人的模式,但由于一般人对自闭症的不同现实情况缺乏了解,因此担心会面临挑战。
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引用次数: 0
Fostering Inclusion Around Housing Transitions 围绕住房过渡促进包容
Pub Date : 2024-05-01 DOI: 10.15173/cjae.v4i1.5688
Allison Annesley, Maddy Dever
This qualitative research project was designed to determine how Community Connectors can best support neurodiverse residents when they move into new housing. The research team also sought to generate greater awareness of the Connector role and support for a pilot. Team members collected and analyzed a range of perspectives, including lived experience, by running focus groups, conducting key informant interviews, and consulting with a diverse advisory panel. A Community Connector assisting neurodiverse residents as they transition to more independent housing can have an outsized impact, on housing success, housing stability, and quality of life. The Social Finance for Social Inclusion Solutions Lab has developed an outcomes-based pilot model to increase access to Community Connectors. Connectors help residents form relationships and over time, develop a new network of support. Housing providers may also be more willing to welcome these tenants, knowing they have adequate support. Connectors can also facilitate volunteer or employment opportunities, further integrating residents as full and valued members of the community. We found a social impact bond could be a novel way of increasing access to Community Connectors. Both impact investors and government funders are interested in the outcomes a pilot would likely achieve. Social impact bonds are just one idea though. Any funding model that could pay for an outcomes-based pilot with independent evaluation, would generate the evidence required to scale and increase access to this important resource.
该定性研究项目旨在确定社区联络员如何在神经多样性居民搬入新住房时为他们提供最佳支持。研究团队还希望提高人们对社区联络员角色的认识,并为试点工作提供支持。团队成员通过开展焦点小组活动、进行关键知情人访谈以及咨询多元化顾问小组,收集并分析了包括生活经验在内的各种观点。社区联络员协助神经多样性居民过渡到更加独立的住房,对他们的住房成功率、住房稳定性和生活质量都会产生巨大的影响。社会包容解决方案实验室(Social Finance for Social Inclusion Solutions Lab)开发了一种基于结果的试点模式,以增加社区联系人的使用机会。社区联络员帮助居民建立关系,并随着时间的推移发展出新的支持网络。住房提供者知道这些租户有足够的支持后,也会更愿意接纳他们。社区联系人还可以为居民提供志愿服务或就业机会,使他们进一步融入社区,成为有价值的正式成员。我们发现,社会影响债券可能是增加社区联络员的一种新方法。社会企业投资者和政府资助者都对试点可能取得的成果感兴趣。不过,社会影响债券只是一个想法。任何能够为基于成果的试点项目支付费用并进行独立评估的资助模式,都将为扩大规模和增加这一重要资源的使用提供所需的证据。
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引用次数: 0
Risk Factors and Preventative methods of Self-Harm and Suicidality for Autistic People 自闭症患者自残和自杀的危险因素及预防方法
Pub Date : 2023-04-25 DOI: 10.15173/cjae.v3i1.5127
Kai Elias Forcey-Rodriguez
Non-suicidal self-injury (NSSI) and suicide are not new concepts. However, prevention and intervention strategies are evolving. This paper explores NSSI/Self-Harm and suicidality in the context of autism spectrum disorders (ASD), starting with neurotypical children and adolescents aged 10-24 to compare differences. Suicide is a leading cause of death in adolescents and young adults and is disturbingly high in the autistic community. While evidence about causes and risk factors for NSSI, self-harm, and suicidal behavior in autistic people exist, a comprehensive review of peer-reviewed publications revealed significant gaps in research about severe mental health concern prevention. With high chances of developing mental health disorders, autistic people have higher rates of experiencing self-injury of various types throughout their lives and increased cases of suicide than neurotypical people. Four major risk factors for autistic people: Demographics/SES, ableism and otherness, autism camouflaging, and autistic burnout. Three recommendations for educators are provided on how to support autistic mental health. The implicit focus on causation and behavior identification in research needs to be addressed instead of comprehensive preventative strategy creation. If educators and mental health practitioners know mental health literacy methods and risk factors for suicide and self-harm, specifically for neurotypical students, neurodivergent students deserve equitable support and attention.
非自杀性自伤和自杀并不是一个新概念。然而,预防和干预策略正在演变。本文探讨自闭症谱系障碍(ASD)背景下的自伤/自残和自杀行为,从10-24岁的神经正常儿童和青少年开始比较差异。自杀是青少年和年轻人死亡的主要原因,在自闭症群体中自杀率高得令人不安。虽然有证据表明自闭症患者的自伤、自残和自杀行为的原因和危险因素,但对同行评审出版物的全面审查显示,在严重心理健康问题预防方面的研究存在重大差距。由于患精神疾病的几率很高,自闭症患者一生中经历各种自残的几率更高,自杀的几率也比正常人高。自闭症患者的四大风险因素:人口统计学/社会经济地位、残疾和他人、自闭症伪装和自闭症倦怠。就如何支持自闭症心理健康向教育工作者提出了三项建议。需要解决研究中对因果关系和行为识别的隐性关注,而不是全面的预防策略创建。如果教育者和心理健康从业者知道心理健康素养的方法和自杀和自残的风险因素,特别是对于神经正常型学生,神经发散型学生应该得到公平的支持和关注。
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引用次数: 0
Heuristics in medicine: 医学中的启发式:
Pub Date : 2023-04-25 DOI: 10.15173/cjae.v3i1.5075
H. Gillespie
Heuristics, or mental shortcuts, are used by everyone to make decision making easier and quicker in daily life. In jobs such as medicine, however, using heuristics can lead to biased decision making and, in turn, misdiagnosis of patients. Doctors are not immune to being biased, or stereotyping. In fact, many healthcare professions have implicit bias training to try and minimize this. Knowledge about one’s own bias can make a difference short term, but the person will be thinking more about whether they are being biased and less on how they can solve the problem in front of them. Bias is, unfortunately, something that must be acknowledged in all corners of society. So, how do we accommodate our biases to get the best results — knowing that we will fall back on heuristics and stereotyping?
启发式,或心理捷径,被每个人用来在日常生活中更容易、更快地做出决策。然而,在医学等工作中,使用启发式可能会导致有偏见的决策,进而导致对患者的误诊。医生也难免受到偏见或成见的影响。事实上,许多医疗保健专业人员都有内隐偏见培训,以尽量减少这种情况。了解自己的偏见可以在短期内产生影响,但这个人会更多地考虑他们是否有偏见,而不是如何解决面前的问题。不幸的是,偏见在社会的各个角落都必须得到承认。那么,在知道我们将依靠启发式和刻板印象的情况下,我们如何适应我们的偏见以获得最好的结果呢?
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引用次数: 2
Teaching Strategies for Autistic Students 自闭症学生的教学策略
Pub Date : 2023-04-25 DOI: 10.15173/cjae.v3i1.5316
Rebekah Kintzinger
This article explores teaching and the educational environment with the Autistic student in mind. It begins by approaching the medical and social models of disability and discussing the implications of their use in an educational setting, focusing on why a social model of disability best supports the learning of Autistic and neurodivergent students in order to be as inclusive as possible in the education setting. The article then goes into detail on the strategies found within the support tiers of Communication, Visual Aide, and Environment in a classroom setting to bolster the success of Autistic and neurodivergent students. This includes a comprehensive breakdown of best ways to support students in these areas, and why this is important. Focussing on the idea that all behavior is communication, the article discusses the importance of inclusivity in the classroom, and preserving the agency of Autistic students. This article aims to give educators the tools they need to support students who are Autistic and neurodivergent, so that they are experiencing less stress and an improved school experience across their learning journey.
本文从自闭症学生的角度探讨教学和教育环境。它首先探讨残疾的医学和社会模式,并讨论在教育环境中使用这些模式的影响,重点是为什么残疾的社会模式最能支持自闭症和神经分化学生的学习,以便在教育环境中尽可能具有包容性。然后,文章详细介绍了在教室设置的沟通,视觉辅助和环境的支持层中发现的策略,以促进自闭症和神经分化学生的成功。这包括在这些领域支持学生的最佳方式的全面分解,以及为什么这很重要。文章聚焦于所有行为都是交流的观点,讨论了课堂包容的重要性,以及保留自闭症学生的能动性。本文旨在为教育工作者提供他们需要的工具来支持自闭症和神经分化的学生,这样他们在学习过程中就会经历更少的压力和更好的学校体验。
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引用次数: 0
Past, Present and Future of Early Childhood Inclusion in Canada 加拿大幼儿融合的过去、现在和未来
Pub Date : 2023-04-25 DOI: 10.15173/cjae.v3i1.5028
Adora Wong
This article examines the roots of inclusion in Canada’s educational and early childhood settings as a colonized nation. It discusses how to address the damage done to create inclusive environments where every child is empowered. While we have moved away from exclusion and segregation, inclusion policies are still resisted by parents, educators, and policymakers due to a turbulent past and the lack of coherent programming and funding (Halfton & Friendly, 2015). The author examines the dichotomy of care and education in relation to inclusion, criticizes using children as objects of scientific inquiry, and maintains the importance of upholding a capable image of the child. Modern-day inclusion policies may harm autistic children instead of helping, as they may not truly be in the best interest of children with disabilities.
本文考察了加拿大作为一个殖民国家在教育和早期儿童环境中包容的根源。它讨论了如何解决造成的损害,以创造包容的环境,使每个儿童都能获得权力。虽然我们已经摆脱了排斥和隔离,但由于动荡的过去和缺乏连贯的规划和资金,包容政策仍然受到家长、教育工作者和政策制定者的抵制(Halfton & Friendly, 2015)。作者考察了与包容有关的关怀和教育的二分法,批评将儿童作为科学探究的对象,并坚持维护儿童有能力的形象的重要性。现代的包容政策可能会伤害自闭症儿童,而不是帮助他们,因为它们可能并不真正符合残疾儿童的最佳利益。
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引用次数: 0
期刊
Canadian Journal of Autism Equity
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