Haematological symptoms

M. Chan, K. Weingarten
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Abstract

The management of symptomatic anaemia, minor bleeding, and other rarer haematological symptoms in the palliative phase illustrates very well the challenging decisions that face professionals who are working with dying children. On the one hand, modern medical interventions have the capacity to relieve some of the symptoms that haematological abnormalities can cause. On the other hand, the interventions themselves carry morbidity and can cause not only symptoms related to physical reactions, but also often emotional and psychological issues related to otherwise avoidable hospital attendance. The ethical issues involved in subjecting a child—whose voice is often unheard—to treatments just because they are available should also be carefully considered. The best clinical decision can only be made by considering the needs of the individual child and their family, giving appropriate weight to the risks and potential benefits of giving an intervention, both physical and otherwise, and the risks and potential benefits of withholding it. In this respect, management of haematological symptoms is typical of thoughtful and skilled childhood palliative care in general.
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血液学的症状
在姑息期对症状性贫血、小出血和其他罕见血液学症状的管理很好地说明了处理垂死儿童的专业人员所面临的具有挑战性的决定。一方面,现代医疗干预有能力减轻血液学异常可能引起的一些症状。另一方面,干预措施本身也会引起疾病,不仅会引起与身体反应有关的症状,而且往往还会引起与本来可以避免的住院有关的情绪和心理问题。仅仅因为可以得到治疗,就让孩子接受治疗——他们的声音往往是听不到的——所涉及的伦理问题也应该仔细考虑。最好的临床决定只能通过考虑每个孩子及其家庭的需要,适当权衡进行身体和其他干预的风险和潜在益处,以及不进行干预的风险和潜在益处来做出。在这方面,血液病症状的管理是典型的周到和熟练的儿童姑息治疗一般。
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