Emma Cooke PhD , Caitlin Smith BPsycSc(Hons) , Maria Carmen Miguel BSN , Sally Staton PhD , Karen Thorpe PhD , Jasneek Chawla PhD
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引用次数: 0
Abstract
Objective
Adverse effects of sleep disruption are identified in parents who live with a child with Down Syndrome (DS), yet there is no research on siblings’ experiences. This study addresses this knowledge gap.
Design
A qualitative research study using semi-structured interviews to understand the experiences of siblings of a child with DS and sleep difficulties from the perspectives of parents and siblings.
Participants
Eleven siblings aged 5-15 years old, and 11 parents, from 8 families with a child with DS in Australia.
Methods
Semi-structured sibling interviews explored what it was like to have a sibling with DS and sleep difficulties; the participant’s own sleep; how their sleep affected how they felt during the day; how sleep impacted their family; and advice that they would give to other siblings. Parent interviews included similar topics; here we report on excerpts in which parents reference siblings. Interviews were audio recorded, transcribed verbatim, and analyzed using a reflexive thematic analysis.
Results
Siblings and parents acknowledge sleep disruption for siblings; yet sleep disruption is normalized, viewed with acceptance and inevitability. Siblings report adverse effects from sleep disruption, view sleep in a relational way, and cope with sleep disruption. Parents can underestimate siblings’ sleep disruption and are uncertain whether siblings’ symptoms result from sleep disruption or other causes.
Conclusions
Siblings of a child with DS experience sleep disruption and may be at risk of developing long-term health problems without focused support.
期刊介绍：
Sleep Health Journal of the National Sleep Foundation is a multidisciplinary journal that explores sleep''s role in population health and elucidates the social science perspective on sleep and health. Aligned with the National Sleep Foundation''s global authoritative, evidence-based voice for sleep health, the journal serves as the foremost publication for manuscripts that advance the sleep health of all members of society.The scope of the journal extends across diverse sleep-related fields, including anthropology, education, health services research, human development, international health, law, mental health, nursing, nutrition, psychology, public health, public policy, fatigue management, transportation, social work, and sociology. The journal welcomes original research articles, review articles, brief reports, special articles, letters to the editor, editorials, and commentaries.
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