What are the experiences of families facilitating the repatriation of their relatives with learning disabilities and/or autism back to Guernsey?

Abstract

Background

Recent Government guidelines have promoted returning people with learning disabilities and/or autism from out-of-area placements to their local communities. These transitions not only impact the individuals but also their families.

Methods

This study explores the experiences of family members who have been involved in the repatriation of people with learning disabilities and/or autism to their local community in Guernsey. Using semi-structured interviews, participants' experiences were analysed using Interpretative Phenomenological Analysis.

Findings

Three superordinate themes emerged: ‘distress, powerlessness and hopelessness’, ‘not feeling included’ and ‘parental role’.

Conclusions

The findings highlight the barriers and successes family members experience when supporting a relative with learning disabilities and/or autism to move back to Guernsey. Recommendations for healthcare services such as requirements for better communication and to include families in decision-making are discussed.