Psychosocial factors and well-being among adults with Charcot-Marie-Tooth disease: A cross-sectional study.

IF 1.7 4区医学 Q3 PSYCHOLOGY, CLINICAL Rehabilitation Psychology Pub Date : 2023-11-01 DOI:10.1037/rep0000523

Payton D Rule, Patrick L Hill

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Abstract

Purpose/objective: The goal of the current study is to examine the relationships between psychosocial factors and well-being among adults with Charcot-Marie-Tooth (CMT) disease, a progressive neuromuscular disorder. Specifically, we aimed to examine associations between psychosocial factors and sense of purpose as well as the moderating role of sense of purpose on associations between psychosocial factors and two other measures of well-being (life satisfaction and health-related quality of life).

Research method/design: In 2021, we recruited 263 U.S. adults with CMT (M_age = 60.15 years, 58.56% female, 92.40% White) to take part in a cross-sectional study. Participants were asked to complete an online survey assessing components of well-being as well as various psychosocial factors.

Results: Moderate-to-strong associations were found between most psychosocial factors assessed and sense of purpose in individuals with CMT. In addition, sense of purpose moderated the relationship between multiple psychosocial factors and other measures of well-being.

Conclusions/implications: Psychosocial factors may be important to consider when examining well-being among individuals with CMT. Furthermore, sense of purpose may be a beneficial tool for promoting well-being in this population. (PsycInfo Database Record (c) 2023 APA, all rights reserved).

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成年腓骨肌萎缩症患者的心理社会因素与幸福感:一项横断面研究

目的/目的:本研究的目的是研究成人腓骨肌萎缩症(一种进行性神经肌肉疾病)患者的心理社会因素与幸福感之间的关系。具体而言，我们旨在研究社会心理因素与目标感之间的关联，以及目标感对社会心理因素与其他两个幸福指标(生活满意度和与健康相关的生活质量)之间关联的调节作用。研究方法/设计:2021年，我们招募了263名患有CMT的美国成年人(年龄为60.15岁，58.56%为女性，92.40%为白人)参加横断面研究。参与者被要求完成一项在线调查，评估幸福感的组成部分以及各种心理社会因素。结果:在CMT患者中，大多数被评估的社会心理因素与目标感之间存在中等到强烈的关联。此外，目的感调节了多种社会心理因素与其他幸福感指标之间的关系。结论/意义:在检查CMT患者的幸福感时，社会心理因素可能是重要的考虑因素。此外，目标感可能是促进这一人群福祉的有益工具。(PsycInfo数据库记录(c) 2023 APA，版权所有)。

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来源期刊

Rehabilitation Psychology Multiple-

CiteScore

4.80

自引率

7.40%

发文量

期刊介绍： Rehabilitation Psychology is a quarterly peer-reviewed journal that publishes articles in furtherance of the mission of Division 22 (Rehabilitation Psychology) of the American Psychological Association and to advance the science and practice of rehabilitation psychology. Rehabilitation psychologists consider the entire network of biological, psychological, social, environmental, and political factors that affect the functioning of persons with disabilities or chronic illness. Given the breadth of rehabilitation psychology, the journal"s scope is broadly defined.