Pub Date : 2024-11-01Epub Date: 2024-06-20DOI: 10.1037/rep0000554
Jesús Privado, Elena Sanchis Sanchis, David Sancho-Cantus, Laura Cubero-Plazas, Esther Navarro-Illana, José Enrique de la Rubia Ortí
Purpose/objective: To propose a predictive model for caregivers' psychological distress (including anxiety, depression, and cognitive overload) based on different data gathered from amyotrophic lateral sclerosis (ALS) patients (cognitive level, psychological distress, type of ALS, and sex).
Research method/design: A cross-sectional study with a sample of 51 ALS patients and their respective main carers. Various instruments were used such as the Beck Anxiety Inventory, ALS Depression Inventory-12, and the Edinburgh Cognitive and Behavioral ALS Screen, Zarit Burden Interview, Self-Rating Depression Scale, and Self-Rating Anxiety Scale for caregivers.
Results: ALS type, sex, and cognition were predictive variables for caregiver distress, with the main explanatory variable being the distress of the patients themselves. Spinal ALS led to higher psychological distress in caregivers (β = .38), as did male patients with ALS and preserved cognition.
Conclusions/implications: The proposed confirmatory model demonstrates that patients' psychological distress is the best predictor of psychological distress in their caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的/目标:根据从肌萎缩性脊髓侧索硬化症(ALS)患者处收集的不同数据(认知水平、心理压力、ALS类型和性别),提出护理者心理压力(包括焦虑、抑郁和认知超负荷)的预测模型:研究方法/设计:横断面研究,样本为 51 名 ALS 患者及其主要照顾者。研究使用了多种工具,如贝克焦虑量表、ALS抑郁量表-12、爱丁堡认知和行为ALS筛查、Zarit负担访谈、抑郁自评量表和照顾者焦虑自评量表:ALS类型、性别和认知能力是预测照顾者痛苦的变量,而主要的解释变量是患者本身的痛苦。脊髓性脊髓侧索硬化症(ALS)会导致护理人员产生更高的心理压力(β = .38),男性 ALS 患者和认知能力受损的患者也会产生更高的心理压力:所提出的确认模型表明,患者的心理困扰是护理人员心理困扰的最佳预测指标。(PsycInfo Database Record (c) 2024 APA,版权所有)。
{"title":"Prediction of caregiver psychological distress in amyotrophic lateral sclerosis: A cross-sectional study.","authors":"Jesús Privado, Elena Sanchis Sanchis, David Sancho-Cantus, Laura Cubero-Plazas, Esther Navarro-Illana, José Enrique de la Rubia Ortí","doi":"10.1037/rep0000554","DOIUrl":"10.1037/rep0000554","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To propose a predictive model for caregivers' psychological distress (including anxiety, depression, and cognitive overload) based on different data gathered from amyotrophic lateral sclerosis (ALS) patients (cognitive level, psychological distress, type of ALS, and sex).</p><p><strong>Research method/design: </strong>A cross-sectional study with a sample of 51 ALS patients and their respective main carers. Various instruments were used such as the Beck Anxiety Inventory, ALS Depression Inventory-12, and the Edinburgh Cognitive and Behavioral ALS Screen, Zarit Burden Interview, Self-Rating Depression Scale, and Self-Rating Anxiety Scale for caregivers.</p><p><strong>Results: </strong>ALS type, sex, and cognition were predictive variables for caregiver distress, with the main explanatory variable being the distress of the patients themselves. Spinal ALS led to higher psychological distress in caregivers (β = .38), as did male patients with ALS and preserved cognition.</p><p><strong>Conclusions/implications: </strong>The proposed confirmatory model demonstrates that patients' psychological distress is the best predictor of psychological distress in their caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141427964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-02-15DOI: 10.1037/rep0000550
Melissa A Day, L Charles Ward, Dawn M Ehde, M Elena Mendoza, Kala M Phillips Reindel, Beverly E Thorn, Ingrid Bindicsova, Mark P Jensen
Purpose/objective: This study sought to develop and evaluate the psychometric properties of a brief measure of the quality of therapist treatment delivery that would be applicable for use across different types of psychosocial chronic pain treatments: the Therapist Quality Scale (TQS).
Research method/design: An initial pool of 14 items was adapted from existing measures, with items selected that are relevant across interventions tested in a parent trial comparing an 8-week, group, Zoom-delivered mindfulness meditation, cognitive therapy, and behavioral activation for chronic back pain from which data for this study were obtained. A random selection of 25% of video-recorded sessions from each cohort was coded for therapist quality (two randomly selected sessions per group), with 66 sessions included in the final analyses (n = 33 completed pairs). Items were coded on a 7-point Likert-type scale. Exploratory factor analysis (EFA) and reliability estimates were generated.
Results: EFA showed a single-factor solution that provided a parsimonious explanation of the correlational structure for both sessions. Eight items with factor loadings of ≥ .60 in both sessions were selected to form the TQS. Reliability analyses demonstrated all items contributed to scale reliability, and internal consistency reliabilities were good (αs ≥ .86). Scores for the eight-item TQS from the two sessions were significantly correlated (r = .59, p < .001).
Conclusions/implications: The TQS provides a brief measure with preliminary psychometric support that is applicable for use across different types of treatments to rate the quality of the therapist's delivery. The items assess quality in delivering specific techniques, maintaining session structure, and in developing and maintaining therapeutic rapport. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Initial development and psychometric properties of the Therapist Quality Scale.","authors":"Melissa A Day, L Charles Ward, Dawn M Ehde, M Elena Mendoza, Kala M Phillips Reindel, Beverly E Thorn, Ingrid Bindicsova, Mark P Jensen","doi":"10.1037/rep0000550","DOIUrl":"10.1037/rep0000550","url":null,"abstract":"<p><strong>Purpose/objective: </strong>This study sought to develop and evaluate the psychometric properties of a brief measure of the quality of therapist treatment delivery that would be applicable for use across different types of psychosocial chronic pain treatments: the Therapist Quality Scale (TQS).</p><p><strong>Research method/design: </strong>An initial pool of 14 items was adapted from existing measures, with items selected that are relevant across interventions tested in a parent trial comparing an 8-week, group, Zoom-delivered mindfulness meditation, cognitive therapy, and behavioral activation for chronic back pain from which data for this study were obtained. A random selection of 25% of video-recorded sessions from each cohort was coded for therapist quality (two randomly selected sessions per group), with 66 sessions included in the final analyses (<i>n</i> = 33 completed pairs). Items were coded on a 7-point Likert-type scale. Exploratory factor analysis (EFA) and reliability estimates were generated.</p><p><strong>Results: </strong>EFA showed a single-factor solution that provided a parsimonious explanation of the correlational structure for both sessions. Eight items with factor loadings of ≥ .60 in both sessions were selected to form the TQS. Reliability analyses demonstrated all items contributed to scale reliability, and internal consistency reliabilities were good (αs ≥ .86). Scores for the eight-item TQS from the two sessions were significantly correlated (<i>r</i> = .59, <i>p</i> < .001).</p><p><strong>Conclusions/implications: </strong>The TQS provides a brief measure with preliminary psychometric support that is applicable for use across different types of treatments to rate the quality of the therapist's delivery. The items assess quality in delivering specific techniques, maintaining session structure, and in developing and maintaining therapeutic rapport. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139736432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-08-22DOI: 10.1037/rep0000579
Karyssa A Courey, Felix Y Wu, Frederick L Oswald, Claudia Pedroza
Purpose/objective: Small sample sizes are a common problem in disability research. Here, we show how Bayesian methods can be applied in small sample settings and the advantages that they provide.
Method/design: To illustrate, we provide a Bayesian analysis of employment status (employed vs. unemployed) for those with disability. Specifically, we apply empirically informed priors, based on large-sample (N = 95,593) July 2019 Current Population Survey (CPS) microdata to small subsamples (average n = 26) from July 2021 CPS microdata, defined by six specific difficulties (i.e., hearing, vision, cognitive, ambulatory, independent living, and self-care). We also conduct a sensitivity analysis, to illustrate how various priors (i.e., theory-driven, neutral, noninformative, and skeptical) impact Bayesian results (posterior distributions).
Results: Bayesian findings indicate that people with at least one difficulty (especially ambulatory, independent living, and cognitive difficulties) are less likely to be employed than people with no difficulties.
Conclusions/implications: Overall, results suggest that Bayesian analyses allow us to incorporate known information (e.g., previous research and theory) as priors, allowing researchers to learn more from small sample data than when conducting a traditional frequentist analysis. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Dealing with small samples in disability research: Do not fret, Bayesian analysis is here.","authors":"Karyssa A Courey, Felix Y Wu, Frederick L Oswald, Claudia Pedroza","doi":"10.1037/rep0000579","DOIUrl":"10.1037/rep0000579","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Small sample sizes are a common problem in disability research. Here, we show how Bayesian methods can be applied in small sample settings and the advantages that they provide.</p><p><strong>Method/design: </strong>To illustrate, we provide a Bayesian analysis of employment status (employed vs. unemployed) for those with disability. Specifically, we apply empirically informed priors, based on large-sample (<i>N</i> = 95,593) July 2019 Current Population Survey (CPS) microdata to small subsamples (average <i>n</i> = 26) from July 2021 CPS microdata, defined by six specific difficulties (i.e., hearing, vision, cognitive, ambulatory, independent living, and self-care). We also conduct a sensitivity analysis, to illustrate how various priors (i.e., theory-driven, neutral, noninformative, and skeptical) impact Bayesian results (posterior distributions).</p><p><strong>Results: </strong>Bayesian findings indicate that people with at least one difficulty (especially ambulatory, independent living, and cognitive difficulties) are less likely to be employed than people with no difficulties.</p><p><strong>Conclusions/implications: </strong>Overall, results suggest that Bayesian analyses allow us to incorporate known information (e.g., previous research and theory) as priors, allowing researchers to learn more from small sample data than when conducting a traditional frequentist analysis. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142019121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-08-29DOI: 10.1037/rep0000576
Paul B Perrin, Samuel J West, Daniel W Klyce, Sarah W Clark, Tiffanie A Vargas, Alexander J Gates, Teague R Henry, Mia E Dini, Stephanie D Agtarap, C B Eagye, Jacob A Finn, Shannon B Juengst, Kristen Dams-O'Connor, Charles H Bombardier
Purpose/objective: Psychometric network analysis (PNA) is an application of dynamic systems theory that can inform measurement of complex rehabilitation phenomena such as depressive symptom patterns in veterans and service members (V/SMs) after traumatic brain injury (TBI). This study applied PNA to the Patient Health Questionnaire-9 (PHQ-9), a common measure of depressive symptoms, in a sample of V/SMs with TBI at Years 1 and 2 (Y1-2) postinjury.
Research method/design: A sample of 808 V/SMs with TBI participated, 594 contributing PHQ-9 data at Y1 and 585 at Y2. Participants were recruited while or after receiving inpatient postacute rehabilitation from one of five Veterans Affairs Polytrauma Rehabilitation Centers.
Results: The networks were stable and invariant over time. At both times, network structure revealed the cardinal depressive symptom "feeling down, depressed, or hopeless," as evidenced by its strength centrality. In the Y1 network, the suicidal ideation node was connected exclusively to the network through the guilt node, and in the Y2 network, the suicidal ideation node formed a second connection through the low mood node. The guilt node was the second most influential node at Y1 but was replaced by anhedonia node at Y2.
Conclusions/implications: This study demonstrated the potential of PNA in rehabilitation research and identified the primacy of feeling down, depressed, and hopeless after TBI at both Y1 and Y2, with guilt being the second most influential symptom at Y1, but replaced by anhedonia at Y2, providing supportive evidence that the relationships among depressive symptoms after TBI are dynamic over time. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Psychometric network analysis in rehabilitation research: A methodological demonstration in depression symptoms of veterans and service members at 1 and 2 years after traumatic brain injury.","authors":"Paul B Perrin, Samuel J West, Daniel W Klyce, Sarah W Clark, Tiffanie A Vargas, Alexander J Gates, Teague R Henry, Mia E Dini, Stephanie D Agtarap, C B Eagye, Jacob A Finn, Shannon B Juengst, Kristen Dams-O'Connor, Charles H Bombardier","doi":"10.1037/rep0000576","DOIUrl":"10.1037/rep0000576","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Psychometric network analysis (PNA) is an application of dynamic systems theory that can inform measurement of complex rehabilitation phenomena such as depressive symptom patterns in veterans and service members (V/SMs) after traumatic brain injury (TBI). This study applied PNA to the Patient Health Questionnaire-9 (PHQ-9), a common measure of depressive symptoms, in a sample of V/SMs with TBI at Years 1 and 2 (Y1-2) postinjury.</p><p><strong>Research method/design: </strong>A sample of 808 V/SMs with TBI participated, 594 contributing PHQ-9 data at Y1 and 585 at Y2. Participants were recruited while or after receiving inpatient postacute rehabilitation from one of five Veterans Affairs Polytrauma Rehabilitation Centers.</p><p><strong>Results: </strong>The networks were stable and invariant over time. At both times, network structure revealed the cardinal depressive symptom \"feeling down, depressed, or hopeless,\" as evidenced by its strength centrality. In the Y1 network, the suicidal ideation node was connected exclusively to the network through the guilt node, and in the Y2 network, the suicidal ideation node formed a second connection through the low mood node. The guilt node was the second most influential node at Y1 but was replaced by anhedonia node at Y2.</p><p><strong>Conclusions/implications: </strong>This study demonstrated the potential of PNA in rehabilitation research and identified the primacy of feeling down, depressed, and hopeless after TBI at both Y1 and Y2, with guilt being the second most influential symptom at Y1, but replaced by anhedonia at Y2, providing supportive evidence that the relationships among depressive symptoms after TBI are dynamic over time. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113504","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-03-14DOI: 10.1037/rep0000545
Oi-Man Kwok, Hsiang Yu Chien, Qiyue Zhang, Chi-Ning Chang, Timothy R Elliott, Anne-Stuart Bell
Purpose: Parallel process modeling (PPM) can be used to analyze co-occurring relationships between health and psychological variables over time. A demonstration is provided using data obtained from the British Household Panel Survey (years 2005, 2006, 2007, and 2008), examining predictors of ongoing changes in their distress and life satisfaction of a subsample from the survey.
Research method: In the 2005 survey, data were available from 7,970 participants based on the following demographic variables: gender, age, ever registered as disabled, and ever experienced any strokes (before or at 2005). Time-varying variables included distress and life satisfaction collected yearly from 2005 to 2008. Time-invariant variables included age (65 or older), gender, disability condition, and stroke survivor status.
Results: Steps of fitting the PPM are presented. Four distinct distress trajectory groups-chronic, recovery, delayed, and resilient-were identified from the PPM estimates. Resilient and recovery groups showed a positive trend in life satisfaction. The delayed distress and chronic groups had a slight decrease in satisfaction. The time-invariant covariates only significantly predicted baseline levels of distress and satisfaction (i.e., their intercepts).
Conclusions: PPM is a relatively simple and powerful tool for simultaneously studying relations between multiple processes. A step-by-step approach on decomposing the significant predictive relation from the change of distress to the change of satisfaction is presented. Properly decomposing any significant growth factor regressed on another growth factor is necessary to fully comprehend the intricate relationships within the results. Practical implications and additional methodological information about fitting PPM are discussed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Parallel processing modeling in longitudinal designs: An example predicting trajectories of distress and life satisfaction.","authors":"Oi-Man Kwok, Hsiang Yu Chien, Qiyue Zhang, Chi-Ning Chang, Timothy R Elliott, Anne-Stuart Bell","doi":"10.1037/rep0000545","DOIUrl":"10.1037/rep0000545","url":null,"abstract":"<p><strong>Purpose: </strong>Parallel process modeling (PPM) can be used to analyze co-occurring relationships between health and psychological variables over time. A demonstration is provided using data obtained from the British Household Panel Survey (years 2005, 2006, 2007, and 2008), examining predictors of ongoing changes in their distress and life satisfaction of a subsample from the survey.</p><p><strong>Research method: </strong>In the 2005 survey, data were available from 7,970 participants based on the following demographic variables: gender, age, ever registered as disabled, and ever experienced any strokes (before or at 2005). Time-varying variables included distress and life satisfaction collected yearly from 2005 to 2008. Time-invariant variables included age (65 or older), gender, disability condition, and stroke survivor status.</p><p><strong>Results: </strong>Steps of fitting the PPM are presented. Four distinct distress trajectory groups-chronic, recovery, delayed, and resilient-were identified from the PPM estimates. Resilient and recovery groups showed a positive trend in life satisfaction. The delayed distress and chronic groups had a slight decrease in satisfaction. The time-invariant covariates only significantly predicted baseline levels of distress and satisfaction (i.e., their intercepts).</p><p><strong>Conclusions: </strong>PPM is a relatively simple and powerful tool for simultaneously studying relations between multiple processes. A step-by-step approach on decomposing the significant predictive relation from the change of distress to the change of satisfaction is presented. Properly decomposing any significant growth factor regressed on another growth factor is necessary to fully comprehend the intricate relationships within the results. Practical implications and additional methodological information about fitting PPM are discussed. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140132869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Objective: This study investigated the predictive value of illness and treatment beliefs for patient satisfaction and health-related quality of life (HRQOL) in adolescents receiving inpatient rehabilitation treatment. In addition, we examined the relationship between fulfilled rehabilitation-related treatment expectations and patient satisfaction.
Method: In this longitudinal study (recruitment between April 2019 and March 2020), 170 participants (M = 14.3 years [SD = 1.6]) answered self-report questionnaires before and at the end of rehabilitation (6 weeks later). We applied multiple hierarchical regression analyses, controlling for sociodemographic and diagnoses variables.
Results: The results showed fulfilled expectations of treatment success and sustainability to be a significant predictor of patient satisfaction (p < .01). The illness belief dimension of emotional representation predicted HRQOL (p < .01). Rehabilitation-related treatment beliefs were not predictive of any outcome.
Conclusion: This study provides a first insight into the relationships between these constructs in the context of inpatient pediatric rehabilitation. However, future research is needed to further examine illness and treatment beliefs in this specific treatment setting. Practical implications concern the incorporation of children's and adolescents' beliefs into treatment management to optimize rehabilitation outcomes. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Patients' beliefs as predictors of patient satisfaction and health-related quality of life in pediatric rehabilitation.","authors":"Gloria Metzner, Cindy Höhn, Edith Waldeck, Manuela Glattacker","doi":"10.1037/rep0000562","DOIUrl":"10.1037/rep0000562","url":null,"abstract":"<p><strong>Objective: </strong>This study investigated the predictive value of illness and treatment beliefs for patient satisfaction and health-related quality of life (HRQOL) in adolescents receiving inpatient rehabilitation treatment. In addition, we examined the relationship between fulfilled rehabilitation-related treatment expectations and patient satisfaction.</p><p><strong>Method: </strong>In this longitudinal study (recruitment between April 2019 and March 2020), 170 participants (<i>M</i> = 14.3 years [<i>SD</i> = 1.6]) answered self-report questionnaires before and at the end of rehabilitation (6 weeks later). We applied multiple hierarchical regression analyses, controlling for sociodemographic and diagnoses variables.</p><p><strong>Results: </strong>The results showed fulfilled expectations of treatment success and sustainability to be a significant predictor of patient satisfaction (<i>p</i> < .01). The illness belief dimension of emotional representation predicted HRQOL (<i>p</i> < .01). Rehabilitation-related treatment beliefs were not predictive of any outcome.</p><p><strong>Conclusion: </strong>This study provides a first insight into the relationships between these constructs in the context of inpatient pediatric rehabilitation. However, future research is needed to further examine illness and treatment beliefs in this specific treatment setting. Practical implications concern the incorporation of children's and adolescents' beliefs into treatment management to optimize rehabilitation outcomes. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141634974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-03-28DOI: 10.1037/rep0000558
Ioanna Zygouri, Stefanos Mantzoukas, Fiona Cowdell, Mary Gouva, Avraam Ploumis
Purpose/objective: To explore how spousal caregivers of older people undergoing rehabilitation experience gender within the Greek community.
Research method/design: A psychological phenomenological design and analysis were used to illuminate the unique meanings 11 spousal caregivers attribute to their experience of gender by gathering qualitative data via interviews.
Results: The data provided an insight into the structure of the experience of gender for the spousal caregivers as a normative diachronic identity in a succession of phases: normative constitution, alienation, and reparation.
Conclusions/implications: The findings highlight the influence of gender stereotypes on spousal caregivers' self-concept, agency, caregiving evaluations, and practices, emphasizing the importance of adopting an intersectional perspective in future research and interventions, considering various factors such as ethnicity, gender, sexuality, age, power dynamics, and cultural norms. Spousal caregivers experience alienation on entering the caregiving journey, with gender-related vulnerabilities affecting their psychological well-being. Addressing these vulnerabilities can improve caregivers' mental health and foster effective coping strategies. The study emphasizes the moral aspect of caregiving, highlighting the relationship between a sense of obligation, feelings of guilt, gender norms, and motivations calling for challenging self-sacrificial morals and societal norms associated with them to empower caregivers to prioritize their well-being while maintaining their caregiving motivations. This shift in perspective can lead to a more positive and fulfilling caregiving experience. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的/目标:研究方法/设计:研究方法/设计:采用心理现象学设计和分析方法,通过访谈收集定性数据,揭示 11 名配偶照顾者对其性别体验的独特理解:结果:这些数据让我们了解到配偶照顾者的性别体验结构,即在规范构成、异化和补偿等连续阶段中的规范性非同步身份:研究结果强调了性别刻板印象对配偶照顾者的自我概念、能动性、照顾评价和实践的影响,强调了在未来的研究和干预中采用交叉视角的重要性,要考虑到种族、性别、性取向、年龄、权力动态和文化规范等各种因素。配偶照顾者在进入照顾旅程时会经历疏离感,与性别相关的脆弱性会影响他们的心理健康。解决这些脆弱因素可以改善照顾者的心理健康,培养有效的应对策略。研究强调了护理工作的道德层面,突出了义务感、负罪感、性别规范和动机之间的关系,呼吁挑战自我牺牲的道德观和与之相关的社会规范,使护理者在保持护理动机的同时,能够优先考虑自己的福祉。这种观点的转变可以带来更积极、更充实的护理体验。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"The experience of gender in spousal caregiving: A phenomenological psychological study (Greece).","authors":"Ioanna Zygouri, Stefanos Mantzoukas, Fiona Cowdell, Mary Gouva, Avraam Ploumis","doi":"10.1037/rep0000558","DOIUrl":"10.1037/rep0000558","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To explore how spousal caregivers of older people undergoing rehabilitation experience gender within the Greek community.</p><p><strong>Research method/design: </strong>A psychological phenomenological design and analysis were used to illuminate the unique meanings 11 spousal caregivers attribute to their experience of gender by gathering qualitative data via interviews.</p><p><strong>Results: </strong>The data provided an insight into the structure of the experience of gender for the spousal caregivers as a normative diachronic identity in a succession of phases: normative constitution, alienation, and reparation.</p><p><strong>Conclusions/implications: </strong>The findings highlight the influence of gender stereotypes on spousal caregivers' self-concept, agency, caregiving evaluations, and practices, emphasizing the importance of adopting an intersectional perspective in future research and interventions, considering various factors such as ethnicity, gender, sexuality, age, power dynamics, and cultural norms. Spousal caregivers experience alienation on entering the caregiving journey, with gender-related vulnerabilities affecting their psychological well-being. Addressing these vulnerabilities can improve caregivers' mental health and foster effective coping strategies. The study emphasizes the moral aspect of caregiving, highlighting the relationship between a sense of obligation, feelings of guilt, gender norms, and motivations calling for challenging self-sacrificial morals and societal norms associated with them to empower caregivers to prioritize their well-being while maintaining their caregiving motivations. This shift in perspective can lead to a more positive and fulfilling caregiving experience. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140307404","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2023-11-02DOI: 10.1037/rep0000530
Emily M Lund, Lauren R Khazem, Mana K Ali, Christopher R DeJesus, Katie B Thomas
Objective/purpose: Historically, psychology trainees from marginalized communities have been underrepresented both as researchers and as participants in research on trainee experiences and outcomes. The current research can be used to develop evidence-based strategies to understand and improve the recruitment, retention, advancement, and overall training experiences of trainees with marginalized identities.
Method: We review the existing literature on the experiences of psychology trainees, particularly that focused on trainees from marginalized backgrounds.
Results: Quantitative, qualitative, and archival data collection and analysis methods each carry their own benefits and limitations, which must be considered and addressed intentionally to optimize the impact of research findings for multiply marginalized individuals. Mixed methods approaches are also discussed. Matching each limitation with a research design strategy is recommended, including the use of sample weights from population archival data to contextualize sample results, incorporating flexibility for reasonable accommodations for intensive qualitative studies, and other strategies.
Conclusions/implications: We provide guidance on selecting a methodology based on specific research and dissemination goals within this area and discuss implications and recommendations for both rehabilitation psychology specifically and the field more broadly. Training programs, governing bodies, faculty, researchers, and other invested parties have shared accountability to deliver diverse, equitable, and inclusive education and training experiences, and conducting high-quality research on the experiences of multiply marginalized trainees, including those with disabilities, is a key component of that process. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Methodological considerations for collecting and analyzing data on multiply marginalized psychology trainees with disabilities.","authors":"Emily M Lund, Lauren R Khazem, Mana K Ali, Christopher R DeJesus, Katie B Thomas","doi":"10.1037/rep0000530","DOIUrl":"10.1037/rep0000530","url":null,"abstract":"<p><strong>Objective/purpose: </strong>Historically, psychology trainees from marginalized communities have been underrepresented both as researchers and as participants in research on trainee experiences and outcomes. The current research can be used to develop evidence-based strategies to understand and improve the recruitment, retention, advancement, and overall training experiences of trainees with marginalized identities.</p><p><strong>Method: </strong>We review the existing literature on the experiences of psychology trainees, particularly that focused on trainees from marginalized backgrounds.</p><p><strong>Results: </strong>Quantitative, qualitative, and archival data collection and analysis methods each carry their own benefits and limitations, which must be considered and addressed intentionally to optimize the impact of research findings for multiply marginalized individuals. Mixed methods approaches are also discussed. Matching each limitation with a research design strategy is recommended, including the use of sample weights from population archival data to contextualize sample results, incorporating flexibility for reasonable accommodations for intensive qualitative studies, and other strategies.</p><p><strong>Conclusions/implications: </strong>We provide guidance on selecting a methodology based on specific research and dissemination goals within this area and discuss implications and recommendations for both rehabilitation psychology specifically and the field more broadly. Training programs, governing bodies, faculty, researchers, and other invested parties have shared accountability to deliver diverse, equitable, and inclusive education and training experiences, and conducting high-quality research on the experiences of multiply marginalized trainees, including those with disabilities, is a key component of that process. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71427897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-02-15DOI: 10.1037/rep0000548
Frederike Svensson, Sarah Zwick, Cornelia Exner, Bettina K Doering
Purpose/objective: To investigate associations between illness appraisals, dyadic coping, and illness adjustment in individuals with stroke and their healthy partners.
Method/design: This longitudinal observational study examined dyadic data in 17 couples (patient and partner) after stroke. Patients and partners completed self-report measures on event centrality of the stroke (appraisal) at 2 months (t₁), common dyadic coping (CDC) at 5 months (t₂), and quality of life (adjustment) at 8 months (t₃) after the stroke. Dyadic data were analyzed using actor-partner interdependence models.
Results: Higher event centrality at t₁ predicted more CDC at t₂ in patients (b = 0.38, p < .05). For partners, the effect of event centrality on dyadic coping differed significantly from the patients' effect but was not significant itself (b = -0.17, p = .601). More CDC at t2 predicted higher physical (b = 3.21, p < .05) and psychological quality of life at t₃ (b = 3.66, p < .05) for partners but not for patients.
Conclusions/implications: Preliminary evidence suggests that patients and their healthy partners may endorse event centrality of the stroke differentially. Perceiving dyadic coping processes seems to be especially important to the healthy partners' illness adjustment. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Dyadic coping and illness adjustment after stroke: A longitudinal prospective study.","authors":"Frederike Svensson, Sarah Zwick, Cornelia Exner, Bettina K Doering","doi":"10.1037/rep0000548","DOIUrl":"10.1037/rep0000548","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To investigate associations between illness appraisals, dyadic coping, and illness adjustment in individuals with stroke and their healthy partners.</p><p><strong>Method/design: </strong>This longitudinal observational study examined dyadic data in 17 couples (patient and partner) after stroke. Patients and partners completed self-report measures on event centrality of the stroke (appraisal) at 2 months (<i>t</i>₁), common dyadic coping (CDC) at 5 months (<i>t</i>₂), and quality of life (adjustment) at 8 months (<i>t</i>₃) after the stroke. Dyadic data were analyzed using actor-partner interdependence models.</p><p><strong>Results: </strong>Higher event centrality at <i>t</i>₁ predicted more CDC at <i>t</i>₂ in patients (<i>b</i> = 0.38, <i>p</i> < .05). For partners, the effect of event centrality on dyadic coping differed significantly from the patients' effect but was not significant itself (<i>b</i> = -0.17, <i>p</i> = .601). More CDC at t2 predicted higher physical (<i>b</i> = 3.21<i>, p</i> < .05) and psychological quality of life at <i>t</i>₃ (<i>b</i> = 3.66, <i>p</i> < .05) for partners but not for patients.</p><p><strong>Conclusions/implications: </strong>Preliminary evidence suggests that patients and their healthy partners may endorse event centrality of the stroke differentially. Perceiving dyadic coping processes seems to be especially important to the healthy partners' illness adjustment. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139736431","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Leah M Adams, Kristina M Volgenau, Irene Regalario, Aaron D Hunt
Objective: Pain is prevalent among women living with HIV (WLWH); however, research on pain experience among WLWH in the United States is limited. This study used a network analysis to simultaneously examine the relationships between pain experience and psychosocial functioning among WLWH and human immunodeficiency virus (HIV)-negative women.
Method: A secondary analysis of public data from the Women's Interagency HIV Study, a U.S. longitudinal cohort study of the experiences of WLWH and women at increased risk for HIV (HIV negative), was completed. Data were from Visit 42 in 2015 and included 451 WLWH and 194 HIV-negative women who endorsed experiencing pain in the week prior to the interview. Similar to the sociodemographic characteristics of WLWH in the United States, the majority of women in the sample were racially and/or ethnically minoritized and of low socioeconomic position. Networks were modeled using measures of pain intensity, pain interference, depression symptoms, anxiety/worry symptoms, meaning in life, and emotional support.
Results: Network models for WLWH and HIV-negative women were comparable (ps > .05). Depression symptoms were a central construct (strength = 1.82 and 1.77, respectively) within the networks, and pain interference was associated with psychosocial constructs (ps < .05), while pain intensity was not (ps > .05). Meaning in life and emotional support were not directly associated with pain (ps > .05).
Conclusions: Network findings suggest that reducing depression symptoms may result in improved pain experience and broader positive impact for WLWH and for women at increased risk of HIV. This finding is consistent with research with other pain-focused populations. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的:疼痛在女性艾滋病病毒感染者(WLWH)中很普遍,但美国对女性艾滋病病毒感染者疼痛体验的研究却很有限。本研究采用网络分析方法,同时研究了女性艾滋病病毒感染者(WLWH)和人类免疫缺陷病毒(HIV)阴性女性的疼痛体验与心理社会功能之间的关系:对妇女机构间艾滋病研究(Women's Interagency HIV Study)的公开数据进行了二次分析,该研究是美国一项纵向队列研究,研究对象是妇女艾滋病患者和艾滋病风险增加的妇女(HIV阴性)。数据来自 2015 年的第 42 次访谈,包括 451 名 WLWH 和 194 名 HIV 阴性女性,她们均认可在访谈前一周经历过疼痛。与美国 WLWH 的社会人口学特征相似,样本中的大多数女性在种族和/或民族上属于少数群体,社会经济地位较低。研究使用疼痛强度、疼痛干扰、抑郁症状、焦虑/烦恼症状、生活意义和情感支持等指标对网络进行建模:结果:WLWH 和 HIV 阴性女性的网络模型具有可比性(Ps > .05)。抑郁症状是网络中的核心结构(强度分别为 1.82 和 1.77),疼痛干扰与心理社会结构相关(PS < .05),而疼痛强度与心理社会结构无关(PS > .05)。生活意义和情感支持与疼痛没有直接关系(PS > .05):网络研究结果表明,减少抑郁症状可能会改善 WLWH 和艾滋病高危妇女的疼痛体验,并产生更广泛的积极影响。这一发现与其他以疼痛为重点的人群的研究结果一致。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"Examining the relationships between pain symptoms and psychosocial functioning among women living with and at risk for human immunodeficiency virus using a cross-sectional psychological network analysis.","authors":"Leah M Adams, Kristina M Volgenau, Irene Regalario, Aaron D Hunt","doi":"10.1037/rep0000588","DOIUrl":"https://doi.org/10.1037/rep0000588","url":null,"abstract":"<p><strong>Objective: </strong>Pain is prevalent among women living with HIV (WLWH); however, research on pain experience among WLWH in the United States is limited. This study used a network analysis to simultaneously examine the relationships between pain experience and psychosocial functioning among WLWH and human immunodeficiency virus (HIV)-negative women.</p><p><strong>Method: </strong>A secondary analysis of public data from the Women's Interagency HIV Study, a U.S. longitudinal cohort study of the experiences of WLWH and women at increased risk for HIV (HIV negative), was completed. Data were from Visit 42 in 2015 and included 451 WLWH and 194 HIV-negative women who endorsed experiencing pain in the week prior to the interview. Similar to the sociodemographic characteristics of WLWH in the United States, the majority of women in the sample were racially and/or ethnically minoritized and of low socioeconomic position. Networks were modeled using measures of pain intensity, pain interference, depression symptoms, anxiety/worry symptoms, meaning in life, and emotional support.</p><p><strong>Results: </strong>Network models for WLWH and HIV-negative women were comparable (<i>p</i>s > .05). Depression symptoms were a central construct (strength = 1.82 and 1.77, respectively) within the networks, and pain interference was associated with psychosocial constructs (<i>p</i>s < .05), while pain intensity was not (<i>p</i>s > .05). Meaning in life and emotional support were not directly associated with pain (<i>p</i>s > .05).</p><p><strong>Conclusions: </strong>Network findings suggest that reducing depression symptoms may result in improved pain experience and broader positive impact for WLWH and for women at increased risk of HIV. This finding is consistent with research with other pain-focused populations. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-10-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142394293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}