How to Design Consent for Health Data Research? An Analysis of Arguments of Solidarity

IF 1.4 3区哲学 Q2 ETHICS Public Health Ethics Pub Date : 2023-12-12 DOI:10.1093/phe/phad025

Svenja Wiertz

引用次数: 0

Abstract

The article discusses the impact different concepts of solidarity can have on debates on models of consent for non-interventional research. It introduces three concepts of solidarity that have been referenced in bioethical debates: a purely descriptive concept, a concept that claims some derivative value for most but not all practices of solidarity, as well as a clearly normative concept where solidarity is tied to justice and taken to ground moral duties. It shows that regarding the rivalling models of study-specific consent, tiered consent and broad consent, the first two concepts can be taken to favour tiered consent while only normative solidarity supports a model of broad consent—or an argument to allow non-interventional research without requiring consent at all. As normative solidarity is tied to considerations of justice, however, the argument appears less straightforward than one might expect: It presupposes that the research contributes to overcoming existing social injustices.

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如何为健康数据研究设计同意书？团结论点分析

文章讨论了不同的团结概念对非干预性研究同意模式辩论的影响。文章介绍了生物伦理辩论中提到的三种团结概念：一种纯粹描述性的概念，一种声称大多数团结实践（而非所有团结实践）具有某种衍生价值的概念，以及一种明确的规范性概念，在这种概念中，团结与正义联系在一起，并被视为道德义务的基础。它表明，在针对特定研究的同意、分层同意和广泛同意这几种相互对立的模式中，前两种概念都可以被视为有利于分层同意，而只有规范性团结支持广泛同意的模式--或者说支持允许进行非干预性研究而无需征得同意的论点。然而，由于规范团结与正义的考虑相联系，这一论点似乎没有人们想象的那么直截了当：它预先假定研究有助于克服现有的社会不公正现象。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Public Health Ethics PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-MEDICAL ETHICS

CiteScore

3.10

自引率

9.50%

发文量

审稿时长

>12 weeks

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