Perceived Stigma in Patients with Autoimmune Hepatitis.

IF 1.6 3区心理学 Q3 PSYCHOLOGY, CLINICAL Journal of Clinical Psychology in Medical Settings Pub Date : 2024-06-01 Epub Date: 2023-12-21 DOI:10.1007/s10880-023-09983-z

Jessica P Naftaly, Estée C H Feldman, Rachel N Greenley

引用次数: 0

Abstract

Perceived stigma (PS) adversely impacts psychosocial and disease outcomes in patients with chronic liver diseases (CLD), and those with autoimmune hepatitis (AIH) may be at risk for PS given inaccurate assumptions about the origin of their diagnosis. The aims of the current study are to describe the frequency of PS in patients with AIH, compare rates of PS in AIH to rates of PS in primary biliary cholangitis (PBC) and CLD, and examine demographic correlates of PS. 262 adults with AIH (95% female, M_age = 51.53 years) completed online questionnaires on demographics, disease information, and PS. 54-68% reported PS with themes of selective disclosure, non-disclosure, or hiding diagnosis. PS was higher in those with AIH compared to those with PBC, but lower than those with various CLD. Age was inversely related to PS. Given the results, provider screening of PS and integration of clinical health psychologists may be helpful for identifying PS in patients with AIH.

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自身免疫性肝炎患者的耻辱感。

认知羞辱（PS）对慢性肝病（CLD）患者的社会心理和疾病预后产生了不利影响，而自身免疫性肝炎（AIH）患者可能会因为对其诊断起源的不准确假设而面临认知羞辱的风险。本研究的目的是描述自身免疫性肝炎（AIH）患者发生 PS 的频率，比较自身免疫性肝炎（AIH）与原发性胆汁性胆管炎（PBC）和慢性肝病（CLD）的 PS 发生率，并研究 PS 与人口统计学的相关性。262 名成人 AIH 患者（95% 为女性，年龄 = 51.53 岁）完成了关于人口统计学、疾病信息和 PS 的在线问卷调查。54-68%的患者报告了以选择性披露、不披露或隐瞒诊断为主题的PS。AIH患者的PS值高于PBC患者，但低于各种CLD患者。年龄与 PS 成反比。鉴于上述结果，医疗服务提供者的 PS 筛查和临床健康心理学家的整合可能有助于识别 AIH 患者的 PS。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Clinical Psychology in Medical Settings PSYCHOLOGY, CLINICAL-

CiteScore

4.00

自引率

4.50%

发文量

期刊介绍： Journal of Clinical Psychology in Medical Settings is an international forum for the publication of peer-reviewed original papers related to all areas of the science and practice of psychologists in medical settings. Manuscripts are chosen that have a broad appeal across psychology as well as other health care disciplines, reflecting varying backgrounds, interests, and specializations. The journal publishes original research, treatment outcome trials, meta-analyses, literature reviews, conceptual papers, brief scientific reports, and scholarly case studies. Papers accepted address clinical matters in medical settings; integrated care; health disparities; education and training of the future psychology workforce; interdisciplinary collaboration, training, and professionalism; licensing, credentialing, and privileging in hospital practice; research and practice ethics; professional development of psychologists in academic health centers; professional practice matters in medical settings; and cultural, economic, political, regulatory, and systems factors in health care. In summary, the journal provides a forum for papers predicted to have significant theoretical or practical importance for the application of psychology in medical settings.