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Patient Experiences of Acute Pain Communication in Sickle Cell Disease and Perspectives on Improving Clinician Communication. 镰状细胞病患者急性疼痛沟通的经验及改善临床沟通的展望。
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-03-23 DOI: 10.1007/s10880-026-10136-1
Miranda Ravicz Adelmann, Michelle S Diop, Sharl S Azar, Dima Hendricks, Piper K Tingleaf, Miriam A Osei, Stephanie B Kiser, Ana-Maria Vranceanu, Areej El-Jawahri, Christine S Ritchie

Pain in sickle cell disease (SCD) causes profound emotional and psychological consequences. Poor communication between clinicians and people with SCD can worsen the acute pain experience, yet strategies to improve these interactions remain unclear. We aimed to understand how people with SCD communicate with clinicians about pain and how patient-clinician communication could be improved.We conducted semi-structured qualitative interviews with people with SCD aged 16 and older (n = 30). We used rapid qualitative analysis to provide early insights into intervention development.Five themes emerged: 1) people with SCD want clinicians to believe their pain experiences, to show they care, and to demonstrate knowledge about SCD; 2) SCD-related pain directly impacts the ability to communicate; 3) communication about SCD pain should be tailored in content and pace based on the pain severity; 4) prior experiences influence how people with SCD communicate about pain; and 5) healthcare system and institutional factors can positively influence patient-clinician communication in SCD.Empathic communication from clinicians can have significant impact on the pain experiences of people with SCD, who adapt their communication strategies to access proper medical care. Training clinicians in SCD-specific communication skills may improve pain care for this population.

镰状细胞病(SCD)的疼痛引起深刻的情感和心理后果。临床医生与SCD患者之间沟通不畅会加重急性疼痛体验,但改善这些互动的策略尚不清楚。我们旨在了解SCD患者如何与临床医生就疼痛进行沟通,以及如何改善患者与临床医生的沟通。我们对16岁及以上的SCD患者进行了半结构化的定性访谈(n = 30)。我们使用快速定性分析来提供干预措施开发的早期见解。出现了五个主题:1)SCD患者希望临床医生相信他们的疼痛经历,表现出他们的关心,并展示他们对SCD的了解;2) scd相关疼痛直接影响沟通能力;3) SCD疼痛的沟通应根据疼痛的严重程度量身定制内容和节奏;4)既往经历影响SCD患者对疼痛的沟通;5)医疗体制和制度因素对SCD医患沟通有正向影响。临床医生的移情沟通可以对SCD患者的疼痛体验产生重大影响,他们调整沟通策略以获得适当的医疗护理。培训临床医生在scd特定的沟通技巧可以改善这一人群的疼痛护理。
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引用次数: 0
Reviewer Recognition and Appreciation. 审稿人的认可和赞赏。
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-03-13 DOI: 10.1007/s10880-026-10145-0
Andrea Bradford
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引用次数: 0
Preparing the Psychology Workforce: Outcomes of a Novel Post-Baccalaureate Training Program at an Academic Medical Center. 准备心理劳动力:在学术医疗中心的一个新的学士学位后培训计划的结果。
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-03-11 DOI: 10.1007/s10880-026-10143-2
Charleen I Roche, Megan M Griffith, Chenelle Miller, Cynthia A Gerhardt, Ahna Pai, Canice E Crerand, Leena Nahata

Graduate school admissions are competitive, and few studies have documented post-baccalaureate (post-bacc) training program outcomes. This paper describes a post-bacc training program at an academic medical center and aims to (a) characterize participants and program recruitment, (b) examine productivity and graduate school matriculation, and (c) assess change in key outcomes (e.g., publications), demographic characteristics, and program reflections. Seventy-nine post-baccs have completed the post-bacc training program since 2017. Publication data were obtained via institution record-keeping and public resources (e.g., PubMed). Starting in 2021, new post-baccs (n = 28) completed entry and exit surveys (reporting demographics/academic history, awards/honors, publications/presentations, research skill confidence, and next steps). Of 79 post-baccs, 89% (n = 70) matriculated to graduate or medical school (41% clinical psychology). The median number of publications during training was three. Publications, presentations, and confidence were higher at exit vs. entry (p's < .05). There were no differences based on underrepresented group status (p > .05). Program satisfaction was high. Findings demonstrate success preparing post-baccs for admission into advanced degree programs, improving research productivity/skill (regardless of underrepresented group status), and garnering high satisfaction among post-baccs. This program model can serve as a bridge, offering rigorous clinical research training for the future workforce of clinical psychologists and related professionals.

研究生入学竞争激烈,很少有研究记录了学士学位后(post-bacc)培训项目的结果。本文描述了一个学术医疗中心的学士学位后培训项目,旨在(a)描述参与者和项目招聘的特征,(b)检查生产力和研究生入学情况,以及(c)评估关键成果(如出版物)、人口特征和项目反思方面的变化。2017年以来,已有79人完成了本科后培训。发表数据通过机构记录和公共资源(如PubMed)获得。从2021年开始,新的学士学位后(n = 28)完成了入学和退出调查(报告人口统计/学术历史、奖项/荣誉、出版物/演讲、研究技能信心和下一步)。在79名本科毕业生中,89% (n = 70)进入了研究生院或医学院(41%为临床心理学)。培训期间出版物的中位数为3篇。发表、演讲和信心在退出时比进入时更高(p = 0.05)。项目满意度很高。研究结果表明,成功地为进入高级学位课程做好了准备,提高了研究效率/技能(无论未被充分代表的群体地位如何),并在博士后中获得了高满意度。这个项目模式可以作为一个桥梁,为未来的临床心理学家和相关专业人员提供严格的临床研究培训。
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引用次数: 0
The Impact of Empathy and Coping Traits on Psychological Responses: A Longitudinal Study on Medical and Nursing Students. 共情和应对特质对医护生心理反应的影响:一项纵向研究
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-03-10 DOI: 10.1007/s10880-026-10144-1
Taku Saito, Norihito Noguchi, Kotaro Shoji, Fumiko Waki, Masanori Nagamine

Introduction: Healthcare professionals are expected and motivated to engage empathetically with patients, their families, yet how different components of empathy, coping traits interact to shape psychological responses remains unclear. This study examined these relationships in medical, nursing students to inform tailored educational interventions METHODS: Participants who completed two surveys 2 years apart (30 medical students and 88 nursing students) were included. Empathy traits were assessed using the Interpersonal Reactivity Index, coping traits using the Brief Coping Orientation to Problems Experienced Inventory, and psychological responses using the Professional Quality of Life Scale. Mixed-effects models for repeated measures analyzed the impact of empathy and coping traits. Latent profile analysis (LPA) classified participants by empathy and coping traits.

Results: Personal distress was significantly associated with increased secondary traumatic stress (STS) and burnout, and decreased compassion satisfaction. Empathic concern was associated with increased compassion satisfaction. Active coping and support seeking were associated with increased compassion satisfaction and reduced burnout, whereas indirect coping was associated with increased STS and burnout. LPA identified three distinct profiles of empathy and coping traits, showing significant differences in psychological responses.

Discussion: Differences in empathy and coping traits influence psychological responses in medical and nursing students. Tailored interventions that consider these traits may be more effective.

导读:医疗保健专业人员被期望并被激励与患者及其家属进行共情,然而,共情的不同组成部分,应对特征如何相互作用以形成心理反应尚不清楚。方法:选取间隔2年完成两次问卷调查的参与者(30名医学生和88名护学生)为研究对象。共情特征采用人际反应指数评估,应对特征采用问题经验简短应对取向量表评估,心理反应采用职业生活质量量表评估。重复测量的混合效应模型分析了共情和应对特质的影响。潜在特征分析(LPA)根据共情和应对特征对被试进行分类。结果:个体痛苦与继发性创伤应激(STS)和倦怠增加、同情满意度降低显著相关。共情关怀与同情满意度的增加有关。积极应对和寻求支持与同情满意度的增加和倦怠感的降低有关,而间接应对与STS和倦怠感的增加有关。LPA识别出三种不同的共情和应对特征,显示出心理反应的显著差异。讨论:医护生共情和应对特质差异对心理反应的影响。考虑到这些特征的量身定制的干预措施可能更有效。
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引用次数: 0
Loneliness, Binge Eating, and Type 2 Diabetes: A Novel Theoretical Model Evaluation. 孤独、暴食和2型糖尿病:一个新的理论模型评估。
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-03-08 DOI: 10.1007/s10880-026-10141-4
Emma Reid, Melissa Oxlad, Alicia Carter, Talitha Best

Binge eating disorder and loneliness have both been identified as risk factors for developing Type 2 Diabetes (T2DM), and thus require attention and intervention. The interpersonal model of binge eating proposes that interpersonal problems lead to binge eating via the mediating pathway of negative affect. However, it is unclear whether the interpersonal construct of loneliness may serve a similar function. The current study aimed to test a loneliness model of binge eating in a T2DM population. Study participants (n = 192; mean age = 48.68 ± 14.85; 52.1% female gender) completed an online survey including measures of loneliness (UCLA Three-item Loneliness Scale and direct loneliness question), negative affect (Patient Health Questionnaire-4) and binge eating (Binge Eating Disorder Screener-7). We used structural equation modelling to assess the model and analysed mediation effects. The loneliness model of binge eating showed excellent model fit, and negative affect fully mediated the relationship between loneliness and binge eating (95% CI: 0.33, 0.90). Our findings indicate that interventions addressing loneliness may also be effective in reducing binge eating behaviours, contributing to the growing body of research emphasising the impact of loneliness on those living with T2DM.

暴食症和孤独感都被认为是2型糖尿病(T2DM)的危险因素,因此需要引起重视和干预。暴饮暴食的人际关系模型认为人际关系问题是通过负性情绪的中介途径导致暴饮暴食的。然而,目前尚不清楚孤独感的人际结构是否具有类似的功能。目前的研究旨在测试2型糖尿病人群暴食的孤独模型。研究参与者(n = 192,平均年龄= 48.68±14.85,女性占52.1%)完成了一项在线调查,包括孤独感(UCLA三项孤独量表和直接孤独问题)、负面影响(患者健康问卷-4)和暴食(暴食障碍筛查-7)。我们使用结构方程模型来评估模型并分析中介效应。暴饮暴食的孤独模型拟合良好,负性情绪完全介导了孤独与暴饮暴食的关系(95% CI: 0.33, 0.90)。我们的研究结果表明,解决孤独感的干预措施也可能有效地减少暴饮暴食行为,这有助于越来越多的研究强调孤独感对2型糖尿病患者的影响。
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引用次数: 0
Practice Members' Perspectives on the Implementation of Colorado Integrated Behavioral Health Plus (CIBH +). 实践成员对科罗拉多州综合行为健康+ (CIBH +)实施的看法。
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-03-06 DOI: 10.1007/s10880-026-10134-3
Jodi Summers Holtrop, Dennis Gurfinkel, Vanessa Owen, Douglas H Fernald, Lakshmi Karra, Patrick Hosokawa, Shandra Brown Levey, Lauren Tolle, Jay Shore

Integrated Behavioral Health is a key solution in addressing significant problems of access and quality of care. This study assessed practice members' perspectives on the feasibility, acceptability, and appropriateness of an integrated care model called Colorado Integrated Behavioral Health Plus (CIBH +) in a large integrated health system. Seven family medicine practices implemented CIBH + . Practice members completed surveys regarding feasibility, acceptability, and appropriateness (analyzed with descriptive statistics) and semi-structured interviews (analyzed using a grounded theory hermeneutic editing approach). A total of 156 practice members responded to the survey (62% response rate) and 46 participated in interviews (78% response rate). Respondents indicated high levels of agreement about the perceived feasibility, acceptability, and appropriateness of CIBH + . Qualitative themes included: (1) observing the benefits to patients and comprehensive team care reinforced the value of integrating care; (2) supports from teamwork, leadership, and telehealth facilitated implementation; and (3) limitations from role clarity, staffing, space, telehealth, and lack of long-term care options remained challenging for implementation. Identifying the key features of CIBH + may make practical implementation in other settings more feasible to implement and acceptable for patients and care teams to use.

综合行为健康是解决获得保健和保健质量等重大问题的关键解决办法。本研究评估了实践成员对科罗拉多综合行为健康+ (CIBH +)综合护理模式在大型综合卫生系统中的可行性、可接受性和适当性的看法。7家家庭医学实践实施了CIBH +。实践成员完成了关于可行性、可接受性和适当性的调查(用描述性统计分析)和半结构化访谈(用基础理论解释性编辑方法分析)。共有156名执业成员回应了调查(62%的回复率),46名参加了访谈(78%的回复率)。受访者对CIBH +的可行性、可接受性和适当性表示高度一致。定性主题包括:(1)观察对患者的益处和综合团队护理增强了整合护理的价值;(2)团队合作、领导和远程医疗的支持促进了实施;(3)角色明确、人员配备、空间、远程医疗和缺乏长期护理选择等方面的限制仍然是实施的挑战。确定CIBH +的关键特征可能会使在其他环境中的实际实施更加可行,并且患者和护理团队可以接受使用。
{"title":"Practice Members' Perspectives on the Implementation of Colorado Integrated Behavioral Health Plus (CIBH +).","authors":"Jodi Summers Holtrop, Dennis Gurfinkel, Vanessa Owen, Douglas H Fernald, Lakshmi Karra, Patrick Hosokawa, Shandra Brown Levey, Lauren Tolle, Jay Shore","doi":"10.1007/s10880-026-10134-3","DOIUrl":"https://doi.org/10.1007/s10880-026-10134-3","url":null,"abstract":"<p><p>Integrated Behavioral Health is a key solution in addressing significant problems of access and quality of care. This study assessed practice members' perspectives on the feasibility, acceptability, and appropriateness of an integrated care model called Colorado Integrated Behavioral Health Plus (CIBH +) in a large integrated health system. Seven family medicine practices implemented CIBH + . Practice members completed surveys regarding feasibility, acceptability, and appropriateness (analyzed with descriptive statistics) and semi-structured interviews (analyzed using a grounded theory hermeneutic editing approach). A total of 156 practice members responded to the survey (62% response rate) and 46 participated in interviews (78% response rate). Respondents indicated high levels of agreement about the perceived feasibility, acceptability, and appropriateness of CIBH + . Qualitative themes included: (1) observing the benefits to patients and comprehensive team care reinforced the value of integrating care; (2) supports from teamwork, leadership, and telehealth facilitated implementation; and (3) limitations from role clarity, staffing, space, telehealth, and lack of long-term care options remained challenging for implementation. Identifying the key features of CIBH + may make practical implementation in other settings more feasible to implement and acceptable for patients and care teams to use.</p>","PeriodicalId":15494,"journal":{"name":"Journal of Clinical Psychology in Medical Settings","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2026-03-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147365403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Measuring Physician Trust: An In-Depth Psychometric Analysis of the Trust in Physicians Scale Considering Social Desirability. 测量医生信任:考虑社会期望的医生信任量表的深度心理测量分析。
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-03-04 DOI: 10.1007/s10880-026-10139-y
Chloe Lau, Francesco Bruno, Georgia Marunic, Lena Quilty, Catherine Li, Donald Saklofske, Francesca Chiesi

While the Trust in Physicians Scale demonstrates strong reliability and validity in previous findings, further research is necessary to continue evaluating item response theory parameters and the effects of social desirability. Undergraduate participants (N = 730) between 17 and 48 years of age (M = 18.41, SD = 1.63) completed the Trust in Physicians questionnaire and criterion validity measures. Results from Gulliksen's Pool indicated suitability for factor analysis and goodness of fit was appropriate for a unidimensional model (GFI = 1.00; RMSEA = .09; CFI = .98). When controlling for social desirability, factor loadings ranged from .39 to .84 for the Trust in Physicians factor. Loadings on the social desirability control scale ranged from .08 to .25, suggesting positive links with trust in physician and social desirability. Item response theory analyses under Samejima's graded response model reveal item discrimination values between .42 and 1.71 (m = 1.01). Proper measurement may enable physicians to identify patients who may require attention to therapeutic rapport.

虽然“医生信任量表”在先前的研究结果中显示出较强的信度和效度,但需要进一步的研究来继续评估项目反应理论参数和社会期望的影响。年龄在17 - 48岁之间的本科生(N = 730) (M = 18.41, SD = 1.63)完成了对医生的信任问卷和标准效度测量。Gulliksen’s Pool的结果表明,因子分析的适宜性和拟合优度适合一维模型(GFI = 1.00; RMSEA = 0.09; CFI = 0.98)。在控制社会可取性时,因子负荷范围从。39 . to。84对医生的信任因素。社会期望控制量表的负荷范围从。08到。25,这表明对医生的信任与社会期望呈正相关。在Samejima的分级反应模型下进行的项目反应理论分析,揭示了项目间的区别值。42和1.71 (m = 1.01)。适当的测量可以使医生识别可能需要注意治疗关系的患者。
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引用次数: 0
Musculoskeletal Clinicians' Perspectives on Integrated Digital Personalized Feedback Interventions to Address Risky Alcohol use and PTSD after Musculoskeletal Injury. 肌肉骨骼临床医生对综合数字个性化反馈干预的观点,以解决肌肉骨骼损伤后的危险酒精使用和创伤后应激障碍。
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-02-25 DOI: 10.1007/s10880-026-10137-0
Jafar Bakhshaie, Sina Ramtin, Jonathan Greenberg, Arun Aneja, Thuan Ly, Anka Vujanovic, David Ring, Michael Zvolensky

Risky alcohol use and post-traumatic stress disorder (PTSD) commonly co-occur with musculoskeletal injury-related pain, forming a recovery-delaying cycle. Web/app-based digital Personalized Feedback Interventions (dPFIs) show promise as a first-step adjunct for addressing this comorbidity. We conducted an exploratory cross-sectional survey of 138 musculoskeletal clinicians assessing (1) screening/referral practices for risky alcohol use and PTSD, and (2) interest in a dPFI for alcohol/PTSD treatment engagement, integrated with pain-coping skills. Clinicians indicated that risky alcohol use and PTSD impose multiple recovery challenges. Screening was largely interview-driven (alcohol: 40.4%; PTSD: 55.8%) with low use of validated questionnaires (~ 6% for both). Notably, 6.5% and 9.4% never discussed risky alcohol use and PTSD respectively, and 50.7% reported no on-site PTSD services. Referrals were fragmented: for risky alcohol use, 39.9% referred to primary care, exceeding specialty options; for PTSD, on-site treatment was most common (22.5%) yet half reported no on-site service. Adoption readiness was high: 89.1% expressed interest in an integrated web/app-based dPFI for alcohol and PTSD, 78.3% believed patients would benefit, and referral likelihood was strong (90.6% for each condition/comorbidity). Rates of app-favoring exceeded medication-assisted-treatment-favoring (37.2% vs. 13.9%). Findings support the development and implementation of accessible, scalable integrated dPFIs for PTSD, risky alcohol use, and pain in orthopedic settings.

危险的酒精使用和创伤后应激障碍(PTSD)通常与肌肉骨骼损伤相关的疼痛同时发生,形成一个延迟恢复的循环。基于网络/应用程序的数字化个性化反馈干预(dpfi)有望成为解决这一合并症的第一步辅助手段。我们对138名肌肉骨骼临床医生进行了一项探索性横断面调查,评估(1)高风险酒精使用和创伤后应激障碍的筛查/转诊实践,(2)对酒精/创伤后应激障碍治疗参与dPFI的兴趣,并结合疼痛应对技能。临床医生指出,危险的酒精使用和创伤后应激障碍带来了多重恢复挑战。筛查主要由访谈驱动(酒精:40.4%;创伤后应激障碍:55.8%),有效问卷的使用率较低(两者约为6%)。值得注意的是,分别有6.5%和9.4%的人从未讨论过危险饮酒和PTSD, 50.7%的人报告没有现场PTSD服务。转诊是分散的:对于危险酒精使用,39.9%转诊到初级保健,超过专科选择;对于创伤后应激障碍,现场治疗最为常见(22.5%),但一半的人报告没有现场治疗。采用意愿很高:89.1%的人表示对基于网络/应用程序的综合dPFI治疗酒精和创伤后应激障碍感兴趣,78.3%的人认为患者会受益,转诊可能性很高(每种病症/合并症90.6%)。应用程序偏好率超过药物辅助治疗偏好率(37.2% vs 13.9%)。研究结果支持开发和实施可获得的、可扩展的综合dpfi,用于治疗创伤后应激障碍、高风险酒精使用和骨科疼痛。
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引用次数: 0
Patient Perspectives on the Process and Outcome of Group Emotional Awareness and Expression Therapy for Chronic Pain. 慢性疼痛群体情绪意识与表达治疗的过程与结果。
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-02-25 DOI: 10.1007/s10880-026-10125-4
Mark A Lumley, Gali Lawrence, Sarah Campbell, Katherine Brain, Amy G McNeilage, Maisa S Ziadni, Claire E Ashton-James

Emotional Awareness and Expression Therapy (EAET) targets traumatic or conflictual emotional and interpersonal contributors to chronic pain. This qualitative study examined patients' experiences of 4-session, group EAET conducted in an Australian tertiary pain clinic. Interviews with 10 adults who completed the therapy were analyzed via thematic analysis. Seven themes were identified. Patients noted that EAET was emotionally "challenging but worth it," and that the group "provided strength in numbers, usually." Although only some patients reported pain reduction, most reported that EAET was beneficial in various respects, including improving their relationship to pain ("pain takes a back seat") and improved interpersonal and emotional functioning ("changing relationships"). Regarding therapy structure and content, patients experienced "validation in pain education," but felt that the program was too short and needed additional care provision given its high intensity ("healing takes time" and "need for ongoing care"). All patients recommended EAET, although with some caveats, especially about format and patient readiness. This study finds that EAET is viewed as helpful by people with chronic pain, especially regarding their emotional and interpersonal functioning, and with some improvement in pain or how it is experienced. Yet, EAET is also emotionally challenging, and the 4-session version conducted here is too brief; attention needs to be given to extending its length and monitoring and responding to individual differences among patients.

情绪意识和表达疗法(EAET)针对慢性疼痛的创伤性或冲突性情绪和人际关系因素。本定性研究考察了在澳大利亚三级疼痛诊所进行的4次组EAET治疗的患者经历。通过主题分析对10名完成治疗的成年人进行访谈。确定了七个主题。患者指出,EAET在情感上“具有挑战性,但值得”,而且该小组“通常提供了数量上的力量”。虽然只有一些患者报告疼痛减轻,但大多数患者报告EAET在各个方面都是有益的,包括改善他们与疼痛的关系(“疼痛退居次要地位”)和改善人际关系和情感功能(“改变关系”)。关于治疗结构和内容,患者经历了“疼痛教育的验证”,但认为该计划太短,需要额外的护理提供,因为它的高强度(“愈合需要时间”和“需要持续护理”)。所有患者都推荐EAET,尽管有一些注意事项,特别是关于格式和患者准备情况。这项研究发现,EAET被认为对慢性疼痛患者有帮助,特别是在他们的情感和人际功能方面,并在一定程度上改善疼痛或如何体验疼痛。然而,EAET在情感上也具有挑战性,这里进行的4个阶段的版本太简短了;需要注意延长其长度,监测和应对患者的个体差异。
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引用次数: 0
Psychologists in Cardiogenetics: A Viewpoint Advocating for a Structured Role in Patient Care. 心脏遗传学心理学家:提倡在病人护理中扮演结构化角色的观点。
IF 1.9 3区 心理学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-02-25 DOI: 10.1007/s10880-026-10130-7
Saartje Van Pottelberghe, Nina Kupper, Frederik Hes, Julie Nekkebroeck

Inherited cardiac conditions (ICC) require lifelong management and raise significant psychological challenges. Patients with suspected ICCs typically begin their journey with a clinical diagnosis in cardiology, an often-distressing experience that leaves them feeling vulnerable. Yet, psychological care remains inconsistently integrated into cardiogenetics, while fields such as oncogenetics, reproductive genetics, and neurogenetics have integrated psychological support much earlier. These latter fields are driven by ethically complex decisions like prophylactic surgery, pregnancy termination, and predictive testing for conditions such as Huntington's disease. Consequently, psychologists in those fields are routinely involved across all stages of genetic testing, offering emotional support and guiding decision-making. Despite growing openness to biopsychosocial approaches, cardiogenetics has traditionally prioritized symptom management, medical interventions, and risk stratification, with less attention for emotional and psychosocial needs.As a result, patients with ICCs may remain vulnerable to distress, grief, and uncertainty, especially when a genetic risk (carriership of a pathogenic variant in an ICC gene) is discovered, following events like the sudden cardiac death of a relative. Many carriers struggle with guilt, fear of passing on a pathogenic variant, and challenges in family communication, all of which can impact adherence to medical advice.Drawing on international experiences of disparities observed across countries and centres, this viewpoint calls for the structured integration of psychologists in cardiogenetic care teams, emphasizing their role in patient-centred communication, informed decision-making, and long-term psychological support.

遗传性心脏病(ICC)需要终生管理,并提出了重大的心理挑战。疑似icc的患者通常以心脏病学的临床诊断开始他们的旅程,这往往是一种痛苦的经历,使他们感到脆弱。然而,心理治疗仍然不一致地融入心脏遗传学,而诸如肿瘤遗传学、生殖遗传学和神经遗传学等领域更早地整合了心理支持。这些领域是由复杂的伦理决定推动的,比如预防性手术、终止妊娠和亨廷顿舞蹈病等疾病的预测性检测。因此,这些领域的心理学家经常参与基因测试的各个阶段,提供情感支持和指导决策。尽管对生物心理社会方法越来越开放,但心脏遗传学传统上优先考虑症状管理、医疗干预和风险分层,对情感和社会心理需求的关注较少。因此,ICC患者可能仍然容易受到痛苦、悲伤和不确定性的影响,特别是在发现遗传风险(ICC基因中携带致病变异)之后,如亲属心脏性猝死等事件。许多携带者都在内疚中挣扎,害怕将致病变异遗传给下一代,以及家庭沟通方面的挑战,所有这些都可能影响对医疗建议的依从性。根据不同国家和中心观察到的差异的国际经验,这一观点要求心理学家在心脏遗传护理团队中有组织地整合,强调他们在以患者为中心的沟通、知情决策和长期心理支持方面的作用。
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引用次数: 0
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Journal of Clinical Psychology in Medical Settings
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