Contextualising an online mindfulness-based intervention for young people with cancer: A qualitative study

Abstract

Background

Despite improved prognosis, living with cancer can still negatively impact young people’s psychosocial well-being. Mindfulness-based interventions (MBI) have been shown to help manage cancer-related stress but tailored interventions for young people are warranted. In addition, attendance at intensive face-to-face MBI is often a barrier to access and adherence.

Aim

This study aims to contextualise an online MBI, for young people with cancer (YPWC).

Methods

This study modified an online MBI using a qualitative research approach through several phases, including a discussion with experts, a workshop with YPWC (n = 6), followed by focus groups with health professionals (n = 5) and YPWC (n = 7).

Findings

The qualitative thematic analysis of data from the workshop discussion and focus groups identified two key themes, which were (i) developing mindfulness skill and adopting into daily living and appropriateness; and (ii) accessibility of design and delivery of an MBI eBook. The participants in the workshop and focus group provided various recommendations and as a result of these data, the modules were modified and further tailored both at the design level and the module contents.

Discussion

This study contextualised a self-directed, online MBI through the participation from YPWC and healthcare providers. This participatory approach enabled the development of a young people friendly intervention that incorporated cancer-focused case studies with mindful reflections, all of which were well-received by YPWC.

Conclusion

The involvement of end-users in the development phase significantly improved the acceptability of this intervention design. The tailored MBI potentially aids the psychosocial well-being of YPWC.