Go Zika Go: feasibility study with modified motorized ride-on cars for the mobility of children with Congenital Zika Syndrome (CZS).

IF 2.2 4区 医学 Q2 REHABILITATION Disability and Rehabilitation-Assistive Technology Pub Date : 2024-10-01 Epub Date: 2024-01-02 DOI:10.1080/17483107.2023.2300052
Jean Bendito Felix, Ana Carolina de Campos, Samuel W Logan, Julianne Machado, Karoline Souza Monteiro, Egmar Longo
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Abstract

Purpose: To explore the feasibility of an intervention using modified ride-on cars in terms of acceptability and potential changes in goal attainment, mobility, social function, and participation of children with Congenital Zika Syndrome (CZS).

Materials and methods: A pre- and post-intervention feasibility study was conducted with children with CZS, levels IV and V of the Gross Motor Function Classification System (GMFCS). The intervention consisted of 12 weeks of training (3 times a week for 40 min per session) and 4 weeks of follow-up. The primary outcomes included adherence, satisfaction, and learning in mobility. Secondary outcomes encompassed goal attainment, mobility, social/cognitive function, and participation. Descriptive statistics were performed. To explore potential individual changes with the intervention, Wilcoxon test was used to analyze Pediatric Evaluation of Disability Inventory - Computer Adaptive Test (PEDI-CAT) data and Young Children's Participation and Environment Measure (YC-PEM)/Participation and Environment Measure for Children and Youth (PEM-CY), along with standard error measurements of the PEDI-CAT domains.

Results: Four children participated (median age 4.75 years; two females: three at level V on the GMFCS). Adherence was 75% of the total intervention time, and family members reported being satisfied or very satisfied. Children showed gains in learning the use of the modified ride-on cars and an increase in goal attainment after the intervention. Individual changes were observed in the PEDI-CAT domains (mobility and social/cognitive), but there were no significant changes in participation outcomes.

Conclusions: Children with CZS at GMFCS levels IV and V can learn to use motorized ride-on cars, attainment goals, and experience satisfaction.

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寨卡出发:改装电动乘骑车用于先天性寨卡综合症(CZS)儿童行动的可行性研究。
目的:从先天性寨卡综合征(CZS)儿童在目标实现、活动能力、社会功能和参与方面的可接受性和潜在变化的角度,探讨使用改装乘骑车进行干预的可行性:对患有先天性寨卡综合症(CZS)、粗大运动功能分类系统(GMFCS)四级和五级的儿童进行了干预前后的可行性研究。干预包括 12 周的训练(每周 3 次,每次 40 分钟)和 4 周的随访。主要结果包括坚持率、满意度和移动能力学习。次要结果包括目标达成度、活动能力、社交/认知功能和参与度。研究人员进行了描述性统计。为了探究干预可能带来的个体变化,研究人员使用Wilcoxon检验来分析儿科残疾评估量表--计算机自适应测试(PEDI-CAT)数据、幼儿参与和环境测量(YC-PEM)/儿童和青少年参与和环境测量(PEM-CY),以及PEDI-CAT各领域的标准误差测量:四名儿童(中位数年龄为 4.75 岁;两名女性:三人处于 GMFCS 五级水平)参加了此次活动。坚持干预的时间占总干预时间的 75%,家庭成员表示满意或非常满意。干预后,儿童在学习使用改装后的乘骑小汽车方面取得了进步,目标达成度也有所提高。在PEDI-CAT领域(活动能力和社交/认知能力)观察到了个体变化,但在参与结果方面没有显著变化:结论:GMFCS IV级和V级的CZS儿童可以学会使用电动乘骑车、实现目标并获得满足感。
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CiteScore
5.70
自引率
13.60%
发文量
128
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