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Skills on wheels: caregiver perspectives on the design and long-term impact of a pediatric wheelchair Skills training program. 车轮上的技能:护理人员对儿科轮椅技能培训计划的设计和长期影响的看法。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-24 DOI: 10.1080/17483107.2024.2405896
Madison L Loeser, Tony Chase

Manual wheelchair skills training programs are novel developments, particularly in the United States. As perceived by the caregivers of participants, this study aimed to examine the long-term impact of the Skills on Wheels program on participants' occupational engagement and quality of life at home, at school, and in the community. Secondly, this study investigated the caregivers' perspectives of the program design of Skills on Wheels. This was a qualitative inquiry based upon thematic analyses of semi-structured interviews after participation in a pediatric wheelchair skills training program. The study participants were 9 caregivers whose children participated in this program over the 2021 and 2022 implementation years. Caregivers were given a 10-question semi-structured interview. The five overarching topics included program impact: (i) occupational engagement, (ii) program impact: quality of life factors, (iii) program resources/design, (iv) novelty/importance of program/wheelchair skills training, and (v) desired continued wheelchair skills practice in the future. Results provided tangible feedback to integrate into program design and supported the Skills on Wheels program's positive value as it relates to impact on quality of life and occupational engagement for participants.

手动轮椅技能培训计划是一项新发展,尤其是在美国。本研究旨在考察 "车轮上的技能 "项目对参与者在家庭、学校和社区中的职业参与和生活质量的长期影响。其次,本研究调查了照顾者对 "车轮上的技能 "项目设计的看法。这是一项基于参加儿科轮椅技能培训项目后的半结构式访谈主题分析的定性调查。研究的参与者是 9 位照顾者,他们的孩子在 2021 年和 2022 年参加了该项目。护理人员接受了 10 个问题的半结构式访谈。五个主要议题包括项目影响:(i) 职业参与;(ii) 项目影响:生活质量因素;(iii) 项目资源/设计;(iv) 项目/轮椅技能训练的新颖性/重要性;(v) 希望今后继续练习轮椅技能。调查结果显示,轮椅上的技能项目对参与者的生活质量和职业参与产生了积极的影响,为项目设计提供了切实的反馈,并支持了该项目积极的价值。
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引用次数: 0
Outcome measurement of cognitive impairment and dementia in serious digital games: a scoping review. 严肃数字游戏中认知障碍和痴呆症的结果测量:范围综述。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-23 DOI: 10.1080/17483107.2024.2405894
Verity Longley, Jordan Wilkey, Carol Opdebeeck

Purpose: Dementia prevalence is increasing worldwide. With the emergence of digital rehabilitation, serious digital games are a potential tool to maintain and monitor function in people living with dementia. It is unclear however whether games can measure changes in cognition. We conducted a scoping review to identify the types of outcomes measured in studies of serious digital games for people with dementia and cognitive impairment.

Methods: We included primary research of any design including adults with cognitive impairment arising from dementia or another health condition; reported data about use of serious digital games; and included any cognitive outcome. We searched Medline (via EBSCO), PsycInfo, CINAHL, Web of Science, from inception to 4th March 2024 and extracted study characteristics.

Results: We reviewed 5899 titles, including 25 full text studies. We found heterogeneity in domains and measures used: global cognition (n = 15), specific cognitive processes (n = 13), motor function (n = 5), mood (n = 6), activities of daily living (n = 5), physiological processes (n = 4) and quality of life (n = 2). Use of outcome measurement tools was inconsistent; the most frequently used measures were the Montreal Cognitive Assessment (n = 8), the Mini-Mental State Examination (n = 7), and the Trail Making Test (n = 7). Nine studies used in-game measures, most of which were related to game performance.

Conclusion: We found very few studies with assessment of cognition within the game. Studies of serious games for people with dementia and cognitive impairment should develop digital outcome tools based on recommendations in Core Outcome Sets, to increase consistency between studies.

目的:痴呆症的发病率在全球范围内不断上升。随着数字康复技术的出现,严肃的数字游戏成为维持和监测痴呆症患者功能的潜在工具。但是,目前还不清楚游戏是否能测量认知方面的变化。我们进行了一次范围界定审查,以确定针对痴呆症和认知障碍患者的严肃数字游戏研究中所测量的结果类型:我们收录了包括因痴呆症或其他健康问题导致认知障碍的成年人在内的任何设计的初级研究;报告了有关严肃数字游戏使用情况的数据;并收录了任何认知结果。我们检索了 Medline(通过 EBSCO)、PsycInfo、CINAHL 和 Web of Science(从开始到 2024 年 3 月 4 日),并提取了研究特征:我们审查了 5899 个标题,其中包括 25 项全文研究。我们发现了研究领域和所用测量方法的异质性:整体认知(15 项)、特定认知过程(13 项)、运动功能(5 项)、情绪(6 项)、日常生活活动(5 项)、生理过程(4 项)和生活质量(2 项)。结果测量工具的使用并不一致;最常用的测量工具是蒙特利尔认知评估(8 项)、小型精神状态检查(7 项)和寻迹测试(7 项)。有 9 项研究使用了游戏中的测量方法,其中大部分与游戏表现有关:结论:我们发现很少有研究在游戏中进行认知评估。针对痴呆症和认知障碍患者的严肃游戏研究应根据核心结果集的建议开发数字结果工具,以提高研究之间的一致性。
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引用次数: 0
Validity of a wrist-worn consumer-grade wearable for estimating energy expenditure, sedentary behaviour, and physical activity in manual wheelchair users with spinal cord injury. 用于估算脊髓损伤手动轮椅使用者能量消耗、久坐行为和体力活动的腕戴式消费级可穿戴设备的有效性。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-20 DOI: 10.1080/17483107.2024.2405895
Daniel P Bailey, Imran Ahmed, Daniel L Cooper, Katherine A Finlay, Hannah M Froome, Tom E Nightingale, Lee M Romer, Vicky L Goosey-Tolfrey, Louise Ferrandino

Purpose: To evaluate the validity of a consumer-grade wearable for estimating energy expenditure, sedentary behaviour, and physical activity in manual wheelchair users with spinal cord injury (SCI).

Materials and methods: Fifteen manual wheelchair users with SCI (C5-L1, four female) completed activities of daily living and wheelchair propulsion (2-8 km·h-1). Wrist-worn accelerometry data were collected using consumer-grade (z-Track) and research-grade (ActiGraph GT9X) devices. Energy expenditure was measured via indirect calorimetry. Linear regression was used to evaluate the prediction of criterion metabolic equivalent of task (MET) by each accelerometer's vector magnitude (VM). Area under the receiver operating characteristic curve (ROC-AUC) evaluated the accuracy of VM for discriminating between physical activity intensities and for identifying accelerometer cut-points.

Results: Standardised β-coefficients for the association between z-Track and ActiGraph VM for criterion MET were 0.791 (p < 0.001) and 0.774 (p < 0.001), respectively. The z-Track had excellent accuracy for classifying time in sedentary behaviour (ROC-AUC = 0.95) and moderate-to-vigorous physical activity (ROC-AUC = 0.93); similar values to the ActiGraph (ROC-AUC = 0.96 and 0.88, respectively). Cut-points for the z-Track were ≤37 g·min-1 for sedentary behaviour and ≥222 g·min-1 for moderate-to-vigorous physical activity.

Conclusions: This study supports the validity of a consumer-grade wearable to measure sedentary time and physical activity in manual wheelchair users with SCI.

目的:评估消费级可穿戴设备在估算脊髓损伤(SCI)手动轮椅使用者的能量消耗、久坐行为和体力活动方面的有效性:15名患有脊髓损伤(SCI)的手动轮椅使用者(C5-L1,4名女性)完成了日常生活活动和轮椅推进活动(2-8 km-h-1)。使用消费级(z-Track)和研究级(ActiGraph GT9X)设备收集腕戴式加速度计数据。能量消耗通过间接热量计测量。线性回归用于评估每个加速度计的矢量幅度(VM)对标准任务代谢当量(MET)的预测。接受者操作特征曲线下面积(ROC-AUC)评估了 VM 在区分体力活动强度和确定加速度计切点方面的准确性:结果:z-Track 和 ActiGraph VM 对标准 MET 的标准化 β 系数为 0.791(p p -1 用于久坐行为,≥ 222 g-min-1 用于中度至剧烈运动:本研究支持使用消费级可穿戴设备测量患有 SCI 的手动轮椅使用者的久坐时间和体力活动的有效性。
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引用次数: 0
Evaluating multi-channel interaction design for enhancing Pose accuracy in yoga training among visually impaired individuals. 评估多通道交互设计,提高视障人士瑜伽训练中姿势的准确性。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-20 DOI: 10.1080/17483107.2024.2402799
Xiaohan Zhu, Xuandong Zhao, Jianming Yang, Bowen Sun

Aim: Physical exercise is essential for the physical and mental health of visually impaired people, but they often face challenges such as inaccurate movements, lack of rhythm and difficulty in mastering postures during exercise. This project introduces an assistive device based on a multi-channel interaction design strategy to improve the accuracy of yoga practice for the visually impaired and to enable their independent exercise.

Methods: The system uses a 1:1 model combined with an output interaction model. The effectiveness was verified through controlled experiments with unassisted exercise as the control group and yoga-assisted exercise as the experimental group. Improvements in yoga accuracy and product usability were verified using the Assisted Accuracy Scale and the SUS Scale, respectively.

Results: The results showed that the multi-channel interaction design significantly improved the accuracy and usability of yoga exercises and enhanced the ability of visually impaired people to exercise independently.

Conclusion: Through this project, we hope to replicate this design strategy to help more visually impaired individuals independently perform effective physical exercise at home, in a gym, or in an outdoor space, thereby improving their quality of life and overall health.

目的:体育锻炼对视障人士的身心健康至关重要,但他们在锻炼过程中往往面临动作不准确、缺乏节奏感和难以掌握姿势等挑战。本项目介绍一种基于多通道交互设计策略的辅助设备,以提高视障人士练习瑜伽的准确性,使他们能够独立锻炼:该系统采用 1:1 模型与输出交互模型相结合的方式。方法:该系统采用 1:1 模型与输出交互模型相结合的方式,以无辅助练习为对照组,以瑜伽辅助练习为实验组,通过对照实验验证其有效性。分别使用辅助准确性量表和 SUS 量表验证了瑜伽准确性和产品可用性的提高:结果表明,多通道交互设计显著提高了瑜伽练习的准确性和可用性,增强了视障人士独立锻炼的能力:我们希望通过本项目复制这一设计策略,帮助更多的视障人士在家中、健身房或户外空间独立进行有效的体育锻炼,从而提高他们的生活质量和整体健康水平。
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引用次数: 0
How does moderate upper limb activity modify sitting forces for able-bodied persons and wheelchair users? 适度的上肢活动如何改变健全人和轮椅使用者的坐力?
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-19 DOI: 10.1080/17483107.2024.2402812
Clémence Paquin, Anthony Gelis, Laura Dubuis, Sophie Ciancia, Olivier Chenu, Sonia Duprey

Introduction: Most people with a spinal cord injury are concerned by pressure injuries (PrI). Since dynamic activities may involve distributions of forces over time that are different from static and given the significant impact of PrIs on healthcare costs, it is, important to study these sitting forces. We aim to investigate sitting forces (overall normal, shear forces and Peak Pressure Index (PPI)) assessed in both able-bodied and wheelchair users (WCU) under static and dynamic conditions. Our hypothesis is that wheelchair sitting forces encountered by able-bodied participants are significantly different from those of WCUs.

Material and methods: An experimental seat and a pressure mapping system were used to investigate forces in two different populations, 102 able-bodied and 15 WCUs, in static conditions and during synchronised hand-cycling. The analysis includes statistical comparisons of the sitting conditions (static/dynamic) and of the populations (able-bodied/WCUs).

Results and discussion: Significant differences in normal forces and PPI were observed between able-bodied and WCUs; conversely, differences in shear forces were non-significant. This suggests that contrary to shear forces, no conclusion on normal forces drawn from trials with healthy participants can directly be applied to WCUs. Secondly, the present results indicate significant reduced averaged: normal force, PPI, and shear forces for able-bodied performing a dynamic activity compared to static sitting. WCUs experienced non-significant lower averaged normal force and PPI but significant lower averaged shear forces.

Conclusion: While the present results seem to indicate lower forces for able-bodied performing a dynamic activity compared to static sitting, due to reduced averaged forces, this conclusion is less clear-cut for WCUs.

简介大多数脊髓损伤患者都对压力损伤(PrI)感到担忧。由于动态活动可能涉及不同于静态的随时间变化的力分布,并且鉴于脊髓损伤对医疗成本的重大影响,研究这些坐力非常重要。我们的目标是调查健全人和轮椅使用者(WCU)在静态和动态条件下的坐力(整体法向力、剪切力和峰值压力指数(PPI))评估。我们的假设是,健全参与者遇到的轮椅坐力与轮椅使用者明显不同:我们使用实验座椅和压力测绘系统调查了两个不同人群(102 名健全人和 15 名残疾人)在静态条件下和同步手循环过程中的坐力。分析包括坐姿(静态/动态)和人群(健全人/残疾人)的统计比较:在健全人和残疾人之间观察到了正常力和 PPI 的显著差异;相反,剪切力的差异并不显著。这表明,与剪切力相反,从健康参与者的试验中得出的关于正常力的结论不能直接用于残疾人。其次,本研究结果表明,与静态坐姿相比,进行动态活动的健全人的平均法向力、PPI 和剪切力显著降低。残疾人的平均法向力和PPI没有显著降低,但平均剪切力显著降低:虽然目前的结果似乎表明,与静态坐姿相比,进行动态活动的健全人由于平均力的降低而受到的力较小,但这一结论对于残疾人来说并不那么明确。
{"title":"How does moderate upper limb activity modify sitting forces for able-bodied persons and wheelchair users?","authors":"Clémence Paquin, Anthony Gelis, Laura Dubuis, Sophie Ciancia, Olivier Chenu, Sonia Duprey","doi":"10.1080/17483107.2024.2402812","DOIUrl":"https://doi.org/10.1080/17483107.2024.2402812","url":null,"abstract":"<p><strong>Introduction: </strong>Most people with a spinal cord injury are concerned by pressure injuries (PrI). Since dynamic activities may involve distributions of forces over time that are different from static and given the significant impact of PrIs on healthcare costs, it is, important to study these sitting forces. We aim to investigate sitting forces (overall normal, shear forces and Peak Pressure Index (PPI)) assessed in both able-bodied and wheelchair users (WCU) under static and dynamic conditions. Our hypothesis is that wheelchair sitting forces encountered by able-bodied participants are significantly different from those of WCUs.</p><p><strong>Material and methods: </strong>An experimental seat and a pressure mapping system were used to investigate forces in two different populations, 102 able-bodied and 15 WCUs, in static conditions and during synchronised hand-cycling. The analysis includes statistical comparisons of the sitting conditions (static/dynamic) and of the populations (able-bodied/WCUs).</p><p><strong>Results and discussion: </strong>Significant differences in normal forces and PPI were observed between able-bodied and WCUs; conversely, differences in shear forces were non-significant. This suggests that contrary to shear forces, no conclusion on normal forces drawn from trials with healthy participants can directly be applied to WCUs. Secondly, the present results indicate significant reduced averaged: normal force, PPI, and shear forces for able-bodied performing a dynamic activity compared to static sitting. WCUs experienced non-significant lower averaged normal force and PPI but significant lower averaged shear forces.</p><p><strong>Conclusion: </strong>While the present results seem to indicate lower forces for able-bodied performing a dynamic activity compared to static sitting, due to reduced averaged forces, this conclusion is less clear-cut for WCUs.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Initial validation and feasibility of a Standardized Navigation Of Winter Mobility & Accessibility Network (SNOWMAN) course for wheelchairs. 轮椅冬季移动和无障碍网络(SNOWMAN)标准化导航课程的初步验证和可行性。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-19 DOI: 10.1080/17483107.2024.2403669
Ed Giesbrecht, Jacquie Ripat, Jaimie Borisoff, Kara-Lyn Harrison

Many Canadian manual wheelchair users face many challenges in winter months such as slippage on ice- or snow-covered ramps, snow windrows, and casters becoming stuck in deep or hard packed snow. These barriers impact wheelchair users' ability to participate in the community. This study aimed to evaluate the validity and feasibility of a winter wheelchair obstacle course known as the Standardized Navigation Of Winter Mobility & Accessibility Network (SNOWMAN). The results demonstrated that the SNOWMAN course authentically represented real-world winter conditions, as confirmed by participant responses and qualitative feedback from four manual wheelchair users. The course was comprehensive, covering a range of winter obstacles typically encountered by wheelchair users. Construct validity was established by differentiating performance between manual wheelchairs and a motorized platform with snow tracks, showcasing varying completion times and device satisfaction levels. Feasibility was also assessed, with the administration protocol being mostly adhered to, safety measures implemented, and usability scores meeting acceptable thresholds. The SNOWMAN course showed promise for evaluating wheelchair adaptations and devices for winter conditions, as well as training users in winter mobility skills. Future research directions include comparing different wheeled mobility devices, exploring adaptations for usability in winter, and developing new technology tailored for challenging terrains and winter conditions. The SNOWMAN course could serve as a valuable tool for both research and clinical applications in enhancing winter mobility for wheelchair users.

许多加拿大手动轮椅使用者在冬季面临许多挑战,例如在冰雪覆盖的坡道上打滑、雪堆、脚轮卡在深雪或硬雪中。这些障碍影响了轮椅使用者参与社区活动的能力。这项研究旨在评估名为 "冬季行动能力和无障碍网络标准化导航"(SNOWMAN)的冬季轮椅障碍赛的有效性和可行性。研究结果表明,SNOWMAN 赛道真实地反映了现实世界的冬季条件,这一点从参与者的反应和四名手动轮椅使用者的定性反馈中得到了证实。该课程非常全面,涵盖了轮椅使用者通常会遇到的一系列冬季障碍。通过区分手动轮椅和带有雪道的电动平台的表现,展示不同的完成时间和设备满意度,从而确定了结构有效性。此外,还对可行性进行了评估,结果表明管理协议基本得到了遵守,安全措施得到了落实,可用性评分达到了可接受的临界值。SNOWMAN课程在评估轮椅在冬季条件下的适应性和装置,以及培训用户冬季移动技能方面都显示出了良好的前景。未来的研究方向包括比较不同的轮式移动设备,探索适应冬季可用性的改装方法,以及开发适合具有挑战性的地形和冬季条件的新技术。在提高轮椅使用者的冬季行动能力方面,SNOWMAN 课程可作为研究和临床应用的重要工具。
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引用次数: 0
Bridging the gap: challenges and opportunities of assistive technology loan library systems for individuals with intellectual disabilities in the United States. 缩小差距:美国智障人士辅助技术借阅图书馆系统的挑战与机遇。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-16 DOI: 10.1080/17483107.2024.2400997
Peshawa Mahmood, Jeffrey Ruffing, Onaedo Ilozumba, Ikenna D Ebuenyi

Purpose: In an increasingly technology-driven world, this study explores the accessibility of assistive technology for individuals with intellectual disabilities through assistive technology loan libraries. Assistive technology refers to devices or systems that enhance the ability of individuals with and without disabilities to function and undertake activities of daily living.

Materials and methods: The study, grounded in the Social Determinants of Health framework, employed multiple methods including both qualitative (interviews) and quantitative (questionnaire) methods, involving 19 participants comprising assistive technology professionals and users.

Results: Key findings from the study underscore the pivotal role of assistive technology loan libraries, which lend various assistive devices to individuals, enabling them to try these technologies before making a long-term commitment. However, challenges, such as a restricted variety of devices and extended waiting periods for access were highlighted. The research points to a need for improved training for both staff at the loan libraries and the users of the technology. It also suggests that policy enhancements are required to better align with rapid technological advancements and address the uneven regional distribution of these technologies.

Conclusions: Participants in the study highlighted the importance of expanding the range of assistive devices available in these libraries and improving the efficiency of the service they provide. The study advocates for targeted efforts to enhance the effectiveness and accessibility of assistive technology loan libraries, highlighting their critical role in empowering individuals with intellectual disabilities.

目的:在科技日益发达的今天,本研究探讨了智障人士通过辅助技术借阅图书馆获得辅助技术的可能性。辅助技术指的是能够提高残疾人或非残疾人日常生活能力的设备或系统:这项研究以健康的社会决定因素框架为基础,采用了多种方法,包括定性(访谈)和定量(问卷)方法,19 名参与者包括辅助技术专业人员和用户:研究的主要发现强调了辅助技术外借图书馆的关键作用,这些图书馆向个人外借各种辅助设备,使他们能够在做出长期承诺之前试用这些技术。不过,研究也强调了一些挑战,如设备种类有限、使用等待时间过长等。研究指出,需要加强对借阅图书馆工作人员和技术使用者的培训。研究还表明,需要加强政策,以更好地适应快速的技术进步,并解决这些技术在地区分布不均衡的问题:这项研究的参与者强调了扩大这些图书馆提供的辅助设备范围和提高服务效率的重要性。本研究提倡有针对性地努力提高辅助技术借阅图书馆的有效性和无障碍性,强调其在增强智障人士能力方面的关键作用。
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引用次数: 0
Introducing a self-managed early communication resource for parents - A mixed methods feasibility study of the Swedish "ComAlong online". 为家长引入自我管理的早期沟通资源--瑞典 "ComAlong 在线 "混合方法可行性研究。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-12 DOI: 10.1080/17483107.2024.2398606
Ellen Backman, Carmela Miniscalco, Gunilla Thunberg

Background: Web-based programmes offer parents of children with communication difficulties promising access to parent-mediated, early interventions. However, empirical evaluations of such programmes are limited. This study focused on parents and used mixed methods to examine the feasibility of ComAlong online.

Methods: ComAlong online is a Swedish, self-managed web-resource teaching parents supportive strategies to promote child communication. Data of different types were collected from a total of 71 parents: ten individual parent interviews, 21 pre-questionnaires and 10 post-questionnaires, and finally 50 anonymous digital evaluation surveys. Descriptive statistics and deductive qualitative content analysis were used.

Results: Findings indicate that parents perceived improved child communication and own competence after using the ComAlong online. The most valued parts included podcasts with experts and videos of parent-child interaction. Parents reported that the resource was easy to use, but they wanted to have gained access to the resource when the child was younger. Suggestions for changes included adding a chat function with experts, a parent net forum, and the possibility of creating personalised playlists of videos and podcasts. Evaluation of the research process revealed difficulties in recruiting parents from local child healthcare services and parents of children not yet with a diagnosis.

Conclusions: This study supports the potential for self-managed, web-based resources to disseminate evidence-based parent training for supporting early communication development. Importantly, parents lack individual guidance from experts and contact with other parents. Also, measures need to be made to disseminate the resources within local child healthcare services.

背景:基于网络的计划为有沟通障碍儿童的家长提供了以家长为中介的早期干预的机会。然而,对此类计划的实证评估非常有限。本研究以家长为重点,采用混合方法考察了 ComAlong 在线的可行性:方法:ComAlong 在线是一个瑞典自主管理的网络资源,向家长传授促进儿童沟通的支持性策略。共从 71 位家长那里收集了不同类型的数据:10 次家长个人访谈、21 份前期问卷和 10 份后期问卷,以及 50 份匿名数字评估调查。研究采用了描述性统计和演绎定性内容分析:研究结果表明,使用 ComAlong 在线课程后,家长认为孩子的沟通能力和自身能力都得到了提高。最受重视的部分包括专家播客和亲子互动视频。家长们表示,该资源易于使用,但他们希望在孩子更小的时候就能获得该资源。修改建议包括增加与专家聊天的功能、家长网络论坛以及创建个性化视频和播客播放列表的可能性。对研究过程的评估显示,在招募当地儿童医疗保健服务机构的家长和尚未确诊儿童的家长时遇到了困难:本研究证实了自我管理的网络资源在传播循证家长培训以支持早期沟通发展方面的潜力。重要的是,家长缺乏专家的个别指导和与其他家长的联系。此外,还需要采取措施在当地儿童医疗保健服务机构中推广这些资源。
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引用次数: 0
Prescription methodology integrated with equipment designed for customising racing wheelchair. 处方方法与为定制赛车轮椅而设计的设备相结合。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-12 DOI: 10.1080/17483107.2024.2396424
Thiago José Donegá, Jonas Profeta Borges, Sílvio Soares Dos Santos, Diego Augusto Costa Alves, Jéssica Firmino Ferreira, José Eduardo Arruda Neto, Lucas de Souza Cardoso, Cleudmar Amaral de Araújo

Background: Wheelchair racing is a traditional modality of Paralympic athletics. In general, racing wheelchairs are customized according to the athletes' anthropometric conditions, based on pre-established dimensions according to the manufacturer's manual. Usually, athletes choose the dimensions for their new sports wheelchairs, and when they are delivered for use, they often have problems due to incorrect body adjustments.

Purpose: To develop a new customization methodology that is made possible through a new multi-adjustable racing wheelchair prescription equipment (RWPE) for athletics. This equipment performs several measurements and adjustments according to the athlete's anthropometric characteristics, evaluating the best-fit athlete to obtain better performance in the personalized wheelchair.

Materials and methods: Customizing racing wheelchairs is based on anthropometric measurements of the individual and specific ergonomic adjustments for better performance and safety. The RWPE is a multi-adjustment device composed of modules that use measuring instruments to guarantee maximum precision and accuracy of the assessments. This project's innovation is associated with the multi-regulation equipment itself and a conventional process of manufacturing a racing wheelchair through an online form. The RWPE has a robust and rigid structure for conducting race-track experimental tests.

Results and conclusions: The experimental tests allowed the equipment to be validated regarding safety, comfort, and prescription methodology. A high-performance athlete validated the equipment and prescription methodology, and as a result, a new version of a parameterized wheelchair was also developed using the prescription methodology. A comparison between prescription tests showed better athlete performance regarding estimated average power, considering dimensions optimized through RWPE.

背景:轮椅比赛是残奥会田径比赛的一种传统方式。一般来说,比赛用轮椅都是根据运动员的人体测量条件,按照制造商手册中预先确定的尺寸定制的。通常情况下,运动员选择新运动轮椅的尺寸,而当轮椅交付使用时,他们往往会因为身体调整不正确而出现问题。目的:开发一种新的定制方法,通过一种新的可多次调整的田径赛车轮椅处方设备(RWPE)来实现。该设备可根据运动员的人体测量特征进行多次测量和调整,评估最合适的运动员,使其在个性化轮椅上获得更好的表现:定制赛车轮椅是基于对个人的人体测量和特定的人体工学调整,以提高性能和安全性。RWPE 是一种多重调整装置,由使用测量仪器的模块组成,可最大限度地保证评估的精确性和准确性。该项目的创新与多重调节设备本身以及通过在线表格制造赛车轮椅的传统工艺有关。RWPE 具有坚固的刚性结构,可用于进行赛道实验测试:实验测试对设备的安全性、舒适性和处方方法进行了验证。一名优秀运动员对设备和处方方法进行了验证,因此也使用处方方法开发了新版参数化轮椅。处方测试之间的比较显示,考虑到通过 RWPE 优化的尺寸,运动员在估计平均功率方面的表现更好。
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引用次数: 0
Evaluation of fatigue and fatigability in people with Duchenne muscular dystrophy using a dynamic arm support - a pilot study. 使用动态手臂支撑评估杜兴氏肌肉萎缩症患者的疲劳程度--一项试点研究。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-09-12 DOI: 10.1080/17483107.2024.2388284
Lonneke Alberts, Nicole Voet, Mariska Janssen

Background: Due to progressive muscle wasting and weakness in patients with Duchenne Muscular Dystrophy (DMD), physical fatigability increases, upper extremity function reduces, which negatively impacts quality of life. Assistive technology such as dynamic arm supports (DAS) may help reduce this fatigability. This study aims to assess whether the novel Yumen 'EXone' DAS can reduce upper extremity fatigue and fatigability in DMD patients and healthy controls (HC), both with and without the DAS. Additionally, longitudinal changes in DMD patients were evaluated.

Methods: Five DMD patients from the Yumen Bionics pioneer program and five HCs participated. Two submaximal tests simulating drinking and reaching were performed for two minutes, each with and without DAS. DMD participants completed these tests twice, at baseline (T0) and after 6-9 months (T1), while HCs completed them once. Physical fatigability was measured by the number of repetitions and changes in surface electromyography (sEMG) amplitude. Subjective fatigue was assessed using the Borg Scale (6-20) Rate of Perceived Exertion (RPE).

Results: DMD participants generally performed more repetitions with the DAS than without. HCs showed similar or increased repetitions with the DAS. Assessing fatigability with sEMG was difficult due to the compensatory mechanisms used for the tests. Subjective fatigue scores on the Borg Scale were lower with the DAS for both DMD patients and HCs.

Conclusion: The Yumen 'EXone' DAS effectively reduces both fatigue and fatigability in DMD patients and healthy controls. Despite the methodological shortcomings, this research is one of the first studies investigating the impact of DAS on fatigue and fatigability.

背景:由于杜兴氏肌肉萎缩症(DMD)患者的肌肉逐渐萎缩和虚弱,身体疲劳度增加,上肢功能降低,对生活质量产生了负面影响。动态手臂支撑(DAS)等辅助技术可帮助减轻这种疲劳感。本研究旨在评估新型玉门 "EXone "DAS 是否能减轻 DMD 患者和健康对照组(HC)的上肢疲劳。此外,还评估了 DMD 患者的纵向变化:五名来自玉门仿生先驱项目的 DMD 患者和五名健康对照组参加了此次研究。在有 DAS 和没有 DAS 的情况下,分别进行了两分钟的模拟喝水和伸手的亚极限测试。DMD 参与者分别在基线(T0)和 6-9 个月后(T1)完成了两次测试,而 HC 参与者只完成了一次。身体疲劳度通过重复次数和表面肌电图 (sEMG) 振幅的变化进行测量。主观疲劳度采用博格量表(6-20)知觉劳累率(RPE)进行评估:结果:使用 DAS 的 DMD 参与者的重复次数普遍高于不使用 DAS 的参与者。使用 DAS 时,HCs 的重复次数与使用 DAS 时相似或有所增加。由于在测试中使用了补偿机制,因此用 sEMG 评估疲劳度比较困难。使用 DAS 时,DMD 患者和 HC 的博格量表主观疲劳评分均较低:结论:玉门 "EXone "DAS 可有效减轻 DMD 患者和健康对照组的疲劳感。尽管存在方法上的不足,但这项研究是首批调查 DAS 对疲劳和易疲劳性影响的研究之一。
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引用次数: 0
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Disability and Rehabilitation-Assistive Technology
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