Lived experiences: Growing up with a seriously mentally ill parent

IF 2.4 3区 医学 Q1 NURSING Journal of Nursing Scholarship Pub Date : 2024-01-02 DOI:10.1111/jnu.12955
Alexander Shestiperov MSN, BSN, RN, Orli Grinstein-Cohen PhD, MSN, BSN, RN, Deborah Lindell DNP, MSN, RN, CNE, ANEF, FAAN, Elliane Irani PhD, RN, Ilya Kagan PhD, MA, MBA, RN
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The interviews were recorded and transcribed, and inductive thematic analysis was used to identify main and overarching themes.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>The overarching theme of transition from childhood survival to adulthood survival emerged and included four main themes: (1) a traumatic childhood, (2) perceived control, (3) resilience and general self-efficacy, and (4) adult quality of life. A traumatic childhood consisted of experiences of neglect and abuse, while participants used perceived control to achieve personal growth, self-care, and care of others. Resilience and general self-efficacy emerged during the transition to adulthood and helped participants further their social status and strengthen family bonds. Lastly, adult quality of life was described as being disturbed by feelings of loneliness and being burdensome, stemming from an inherent tendency to rely solely on themselves, leading to trust issues and mental health complications. 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Abstract

Introduction

Individuals with serious mental illness often have persistent and disruptive symptoms. These can profoundly affect their children's lives, exposing them to adverse social and psychological conditions. Such conditions can result in traumatic lived experiences during childhood, which can carry over into adulthood, influencing their self-perceptions and shaping their attitudes toward themselves and society. To gain insights into this phenomenon, this study explored the lived experiences of adults who grew up with a parent with serious mental illness and their perceptions of their lives in adulthood.

Design

This study used an interpretive phenomenological design.

Methods

Participants were invited to voluntarily participate in the study through a call posted on social media. Semi-structured interviews were conducted with 30 adults (age range, 20–55 years) who grew up with a parent with serious mental illness. The interviews were recorded and transcribed, and inductive thematic analysis was used to identify main and overarching themes.

Results

The overarching theme of transition from childhood survival to adulthood survival emerged and included four main themes: (1) a traumatic childhood, (2) perceived control, (3) resilience and general self-efficacy, and (4) adult quality of life. A traumatic childhood consisted of experiences of neglect and abuse, while participants used perceived control to achieve personal growth, self-care, and care of others. Resilience and general self-efficacy emerged during the transition to adulthood and helped participants further their social status and strengthen family bonds. Lastly, adult quality of life was described as being disturbed by feelings of loneliness and being burdensome, stemming from an inherent tendency to rely solely on themselves, leading to trust issues and mental health complications. Therefore, these adults found it difficult to reach out and get help or treatment for their concerns, as they initially did not want to appear dysfunctional or in need.

Conclusion

This study has illuminated the lived experiences of a specific, vulnerable population that has not been intentionally explored until now. To delve into these experiences, we employed a distinctive qualitative approach, merging the interpretive phenomenological perspective with an inductive thematic analysis. This allowed for rich insight with a relatively large group of participants and enabled an in-depth exploration within this methodological framework. Consequently, this study constitutes a notable contribution to the extant body of knowledge, exploring the intricacies of personal growth and its impact on participants' quality of life. It uncovers the essence of resilience and general self-efficacy, revealing how these elements intertwine with the negative results observed. However, the study findings emphasize the need for healthcare professionals, including nurses and other caregivers, to be mindful of the long-lasting effects of the adverse experiences of children of patients with serious mental illness. Prioritizing active clinical assessment and implementing tailored interventions to address such children's specific needs and difficulties across different developmental stages is imperative. Such comprehensive and targeted approaches are crucial in providing appropriate support and promoting the well-being of these individuals.

Clinical Relevance

Enhanced clinical attention in holistic psychiatric care is crucial for individuals and their relatives, especially children. Comprehensive assessments of children and adults raised by seriously mentally ill parents can enable tailored and preventive interventions, positively impacting overall quality of life.

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生活经历与患有严重精神疾病的父母一起成长。
引言患有严重精神疾病的人通常会出现持续性和破坏性症状。这些症状会严重影响其子女的生活,使他们面临不利的社会和心理状况。这些情况可能会导致他们在童年时期遭受创伤性的生活经历,这种经历可能会延续到成年,影响他们的自我认知,并塑造他们对自己和社会的态度。为了深入了解这一现象,本研究探讨了与患有严重精神疾病的父母一起长大的成年人的生活经历,以及他们对自己成年后生活的看法:本研究采用解释现象学设计:方法:通过在社交媒体上发布征集令,邀请参与者自愿参与研究。我们对 30 名与患有严重精神疾病的父母一起长大的成年人(年龄在 20-55 岁之间)进行了半结构化访谈。对访谈进行了记录和转录,并采用归纳式主题分析来确定主要和首要主题:结果:从童年生存到成年生存的过渡这一总主题包括四个主要主题:(1) 创伤性童年,(2) 感知控制,(3) 复原力和一般自我效能,以及 (4) 成人生活质量。创伤性童年包括被忽视和被虐待的经历,而参与者则利用感知控制来实现个人成长、自我照顾和照顾他人。复原力和一般自我效能感出现在向成年过渡的过程中,帮助参与者提高社会地位和加强家庭纽带。最后,成人的生活质量受到孤独感和负担感的干扰,这是因为他们天生倾向于完全依赖自己,从而导致信任问题和心理健康并发症。因此,这些成年人发现自己很难伸出援手,寻求帮助或治疗,因为他们最初并不希望自己显得功能失调或需要帮助:这项研究揭示了一个特殊的弱势群体的生活经历,而到目前为止,我们还没有对这一群体的生活经历进行过有意的探索。为了深入了解这些经历,我们采用了一种独特的定性方法,将解释性现象学视角与归纳式主题分析相结合。这使得我们能够在一个相对较大的参与者群体中获得丰富的洞察力,并在这一方法框架内进行深入探讨。因此,本研究对现有知识体系做出了显著贡献,探索了个人成长的复杂性及其对参与者生活质量的影响。它揭示了复原力和一般自我效能感的本质,揭示了这些因素是如何与所观察到的负面结果交织在一起的。然而,研究结果强调,包括护士和其他护理人员在内的医护人员需要注意重症精神病患者子女的不良经历所带来的长期影响。当务之急是积极开展临床评估并实施有针对性的干预措施,以解决这些儿童在不同成长阶段的特殊需求和困难。这种全面而有针对性的方法对于提供适当的支持和促进这些人的福祉至关重要:加强对精神科整体护理的临床关注对个人及其亲属,尤其是儿童至关重要。对父母患有严重精神疾病的儿童和成人进行全面评估,可以采取有针对性的预防性干预措施,从而对整体生活质量产生积极影响。
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来源期刊
CiteScore
6.30
自引率
5.90%
发文量
85
审稿时长
6-12 weeks
期刊介绍: This widely read and respected journal features peer-reviewed, thought-provoking articles representing research by some of the world’s leading nurse researchers. Reaching health professionals, faculty and students in 103 countries, the Journal of Nursing Scholarship is focused on health of people throughout the world. It is the official journal of Sigma Theta Tau International and it reflects the society’s dedication to providing the tools necessary to improve nursing care around the world.
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