The needs of carers who support people living with schizophrenia and a substance use disorder: a multiperspective evaluation

IF 0.8 Q4 PSYCHOLOGY, CLINICAL Advances in Dual Diagnosis Pub Date : 2024-01-02 DOI:10.1108/add-07-2023-0015
Karine Gaudreault, Joël Tremblay, Karine Bertrand
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Abstract

Purpose Those who care for people with schizophrenia and substance use disorders (PLS-SUD) are faced with the complex demands of a long journey to recovery. For the carers, this translates into specific needs related to various areas of their lives. However, few studies have contributed to the understanding of these carers’ needs. The purpose of this qualitative evaluative study is to identify, understand and prioritize the needs of PLS-SUD carers in the context of intervention design from the viewpoint of carers themselves (n = 9), those they were accompanying (n = 5) and other key actors involved (n = 10). Design/methodology/approach A design of action research was employed. Data analysis was done in three phases: concept map analysis, thematic analysis and transversal analysis of the results from two focus groups, 28 interview transcriptions and a logbook. Findings Over 60 needs were identified. After review, 39 of those were selected for prioritization. For needs related to the carers’ role as clients of the health-care system, the committee prioritized the needs for support, sharing with other carers and improving their own well-being. For the role of supporter, knowledge about substance use disorders and their interactions with psychotic disorders as well as skills such as communication and problem resolution were considered priorities. Needs to be prioritized relating to the role of partner were fewer. Research limitations/implications The results of this study highlight the diversity and complexity of the needs experienced by carers. Originality/value This is among the first needs surveys carried out by stakeholders to describe the needs of PLS-SUD carers.
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照顾精神分裂症患者和药物使用障碍患者的护理人员的需求:多视角评估
目的 照顾精神分裂症和药物滥用障碍(PLS-SUD)患者的人面临着漫长的康复过程中的复杂需求。对于照护者来说,这意味着与他们生活各方面相关的特殊需求。然而,很少有研究有助于了解这些照护者的需求。本定性评估研究的目的是在干预设计的背景下,从照护者自身(9 人)、他们的陪伴者(5 人)和其他主要参与者(10 人)的角度,识别、理解 PLS-SUD 照护者的需求并确定其优先次序。 设计/方法/途径 采用行动研究设计。数据分析分三个阶段进行:概念图分析、专题分析以及对两个焦点小组、28 份访谈记录和一本日志的结果进行横向分析。 研究结果 确定了 60 多项需求。经过审查,从中选出 39 项需求进行优先排序。在与照顾者作为医疗系统客户的角色相关的需求方面,委员会优先考虑了支持、与其他照顾者分享以及改善自身福祉的需求。至于支持者的角色,有关药物使用障碍及其与精神障碍相互作用的知识以及沟通和解决问题等技能被视为优先事项。与伴侣角色有关的优先需求较少。 研究局限性/影响 本研究结果凸显了照护者需求的多样性和复杂性。 原创性/价值 这是利益相关者为描述 PLS-SUD 照护者需求而开展的首次需求调查之一。
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来源期刊
Advances in Dual Diagnosis
Advances in Dual Diagnosis PSYCHOLOGY, CLINICAL-
CiteScore
1.50
自引率
33.30%
发文量
15
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