運用復原力於一位末期腎臟疾病病童之照護經驗

陳燁 陳燁, 陳珍緯 陳珍緯
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Abstract

本文描述一位十六歲末期腎臟疾病病童,於2010年開始血液透析治療,因病程複雜導致頻繁出入院,進而嚴重影響生活品質。臨床上透析病童少見,醫護人員缺乏照護經驗,故對症狀評估及執行護理措施等均有困難。護理其間於2020年6月20日至9月20日,透過聊天、遊戲等方法與案童建立良好治療性人際關係,藉由照護、觀察、身體評估等方式收集資料,評估案童四大層面健康問題,問題包含復原力障礙、舒適障礙及營養不均衡,運用復原力概念降低危險因子及提升保護因子,增加正向健康行為以適應疾病,啟動跨團隊照護改善其營養不均衡,運用舒適護理緩解不適症狀。建議護理人員運用關懷及復原力,賦能案童對自我照顧技巧,引導病童探索自我價值,以增強對疾病的適應與提升照護品質。  This article describes a 16-year-old child with end-stage renal disease who started hemodialysis in 2010. The severe and complicated disease led to frequent admissions and discharges, which seriously affected the quality of life. End-stage renal diseases requiring chronic dialysis are rare in childhood and adolescence. However, medical staff with lack of relevant care experience, have difficulty to assess symptoms and implement nursing measures. The duration of nursing care, from June 20 to September 20, 2020, through chatting, games and other methods to establish a good therapeutic relationship with the child and their family members. The author was through direct care, observation, revisited to identify the patient’s resilience in the dimensions of physiology, mental status, society, and spirituality. It is confirmed that there are three health problems: (1) resilience disorder, (2) comfort disorder, and (3) nutritional imbalance. Therefore, in the process of building trust in the nursing relationship and use the concept of resilience to provide individual caring schemes of patient and their families, reduce risk factors and improve protective factors, increase positive healthy behaviors to improve quality of life and adapt to diseases. The author also initiates cross-team care to improve the patient nutritional imbalances, relieve itching and pain symptoms with comfort care. It is recommended that use care and resilience to provide individual caring schemes based on the perspective and strengthen the recognition, self-caring techniques, and family supportive systems of patients, increasing patient perceptions of self-worth, restoring their confidence, promoting their adaption to their disease, and improving life of quality.
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運用復原力於一位末期腎臟疾病病童之照護經驗
本文描述一位十六歲末期腎臟疾病病童,於2010年開始血液透析治療,因病程複雜導致頻繁出入院,進而嚴重影響生活品質。臨床上透析病童少見,醫護人員缺乏照護經驗,故對症狀評估及執行護理措施等均有困難。護理其間於2020年6月20日至9月20日,透過聊天、遊戲等方法與案童建立良好治療性人際關係,藉由照護、觀察、身體評估等方式收集資料,評估案童四大層面健康問題,問題包含復原力障礙、舒適障礙及營養不均衡,運用復原力概念降低危險因子及提升保護因子,增加正向健康行為以適應疾病,啟動跨團隊照護改善其營養不均衡,運用舒適護理緩解不適症狀。建議護理人員運用關懷及復原力,賦能案童對自我照顧技巧,引導病童探索自我價值,以增強對疾病的適應與提升照護品質。 本文描述了一名 16-岁的终末期肾病患儿,他于2010年开始接受血液透析治疗。由于病情严重且复杂,患儿频繁入院和出院,严重影响了生活质量。需要长期透析的终末期肾病在儿童和青少年时期很少见。然而,缺乏相关护理经验的医务人员难以评估症状和实施护理措施。本次护理时间为2020年6月20日至9月20日,通过聊天、游戏等方式与患儿及其家属建立良好的治疗关系。笔者通过直接护理、观察、回访,从生理、心理状态、社会、精神等维度对患者的抗病能力进行了确认。证实存在三个健康问题:(1)恢复力障碍;(2)舒适感障碍;(3)营养失衡。因此,在护理关系建立信任的过程中,运用抗逆力的理念,对患者及其家属提供个体化的关怀方案,减少危险因素,改善保护因素,增加积极健康行为,提高生活质量,适应疾病。作者还发起了跨团队护理,以改善患者营养失衡,通过舒适护理缓解瘙痒和疼痛症状。建议从患者的角度出发,利用护理和复原力提供个体护理方案,加强患者的认知、自我护理技巧和家庭支持系统,增加患者对自我价值的感知,恢复患者的信心,促进患者对疾病的适应,提高生活质量。
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