Perspectives on healthcare for people with intellectual disabilities in Poland

IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2024-01-09 DOI:10.1111/jppi.12488
Magdalena Agnieszka Wrzesińska, Sylwia Wrona, Dorota Prysak, Katarzyna Weronika Binder-Olibrowska
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Abstract

This paper presents current information on policy developments, service design, best practices, and approaches to empower the users of health and medical care services for people with intellectual disabilities in Poland. Polish regulations allow systemic support to be provided for all people with disabilities. However, Polish patients with intellectual disabilitiy (PwID) and their caregivers face many barriers. Although a key obstacle is the lack of a standard definition that approaches disability in an interdisciplinary way, PwID are also more likely to experience difficulties in personal communication in medical settings and less likely to encounter specialists prepared to work with this group. There is also a need to pay greater attention to the expectations of PwID. To facilitate a holistic approach to diagnosis and therapy, there needs to be coordination between different specialists, including medical staff, paramedics, psychologists, and teachers. Providing personal communication training for medical personnel, as well as developing dedicated procedures for PwID in primary health care, clinics and hospitals, will improve equal access to health and health literacy for all in Poland. Even so, it is important to respect the autonomy of PwID and the commitment of caregivers.

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波兰智障人士医疗保健展望
本文介绍了波兰智障人士健康和医疗服务的政策发展、服务设计、最佳实践以及增强用户能力的方法等方面的最新信息。波兰的法规允许为所有残疾人提供系统性支持。然而,波兰的智障病人(PwID)及其照顾者面临着许多障碍。虽然一个主要障碍是缺乏一个以跨学科方式处理残疾问题的标准定义,但智障病人在医疗环境中也更有可能遇到个人交流方面的困难,而且不太可能遇到准备好为这一群体服务的专家。此外,还需要更加关注残疾人的期望。为了促进采用综合方法进行诊断和治疗,需要协调不同专家之间的关系,包括医务人员、护理人员、心理学家和教师。为医务人员提供个人交流培训,并在初级卫生保健、诊所和医院中为残疾人制定专门的程序,这将改善波兰所有人平等获得卫生保健和卫生知识的机会。即便如此,尊重残疾人的自主权和护理人员的承诺也是非常重要的。
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来源期刊
CiteScore
4.10
自引率
5.90%
发文量
38
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