The subjective and objective quality of life score (SOQOLTM) for the quantification of general health status: a preliminary study with initial normative population values.

IF 2.4 Q2 HEALTH CARE SCIENCES & SERVICES Journal of Patient-Reported Outcomes Pub Date : 2024-01-18 DOI:10.1186/s41687-024-00684-1
Ralph J Mobbs, R Dineth Fonseka, Pragadesh Natarajan, Lianne Koinis, Monish Maharaj
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Abstract

Background: Established health-related quality of life scores do not consider both subjective and objective indices of health. We propose the subjective and objective quality of life score (SOQOL) for the comprehensive assessment of health-related quality of life and aim to provide normative population data. The SOQOL is compatible with smartphone applications, allowing widespread use on a global scale.

Methods: Normative SOQOL population data was sourced from pre-existing datasets on the EQ-5D-5L, daily step count, and walking speed. Normative values were calculated using weighted grand means. We trialled the SOQOL in a group of five patients presenting to a spinal neurosurgery clinic.

Results: SOQOL scores decreased with age, and women had lower scores in every age group. In our case series, the spine patients with the biggest SOQOL deficit compared to age- and sex-matched population averages were found to be surgical while the rest were non-surgical.

Conclusions: The SOQOL shows promise as a simple and effective scoring tool that is compatible with smartphones, potentially useful for screening in primary and specialized care settings, and for assessment following healthcare interventions. This study, however, is preliminary, and the findings are primarily suggestive. They underline the necessity for future, more comprehensive studies to validate and expand upon these initial observations. The conclusion of both this abstract and the full paper will clearly state these limitations and the preliminary nature of the study.

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用于量化总体健康状况的主观和客观生活质量评分 (SOQOLTM):一项具有初始标准人口值的初步研究。
背景:现有的与健康相关的生活质量评分并未同时考虑健康的主观和客观指标。我们提出了主观和客观生活质量评分(SOQOL),用于全面评估与健康相关的生活质量,并旨在提供标准人群数据。SOQOL 与智能手机应用程序兼容,可在全球范围内广泛使用:方法:SOQOL 的常模人群数据来自已有的 EQ-5D-5L、每日步数和步行速度数据集。正常值采用加权总平均值计算。我们在脊柱神经外科门诊的五名患者中试用了 SOQOL:结果:SOQOL得分随着年龄的增长而降低,女性在每个年龄段的得分都较低。在我们的病例系列中,与年龄和性别匹配的人群平均值相比,SOQOL 缺陷最大的脊柱患者是手术患者,而其他患者则是非手术患者:SOQOL是一种简单有效的评分工具,与智能手机兼容,可用于初级和专科医疗机构的筛查以及医疗干预后的评估。不过,这项研究还只是初步的,研究结果主要是提示性的。它们强调了未来进行更全面研究的必要性,以验证和扩展这些初步观察结果。本摘要和论文全文的结论都将明确指出这些局限性以及本研究的初步性质。
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来源期刊
Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes Health Professions-Health Information Management
CiteScore
3.80
自引率
7.40%
发文量
120
审稿时长
20 weeks
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