Shared-decision-making and communication in paediatric palliative care within Uganda

J Downing PhD, RGN , E Namukwaya MBchB, PhD , J Nakawesi MMed, MPH, MD , M Mwesiga MPH, MMS
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Abstract

The first palliative care services were started in Uganda 30 years ago with services continuing to develop since then. The Ministry of Health and the Palliative Care Association of Uganda have played key roles in the development of paediatric palliative care in the country. There are a range of paediatric palliative care service providers in Uganda, and these have developed alongside educational programmes and research in PPC. Care is provided across the Uganda health system and across the age range from neonates through to adolescents and young adults. Whilst recognising the importance of shared decision-making there is little literature with regards to this in the Ugandan context. However, a variety of factors have been shown to influence decision-making, along with the challenges and recommendations for the future. Uganda has made significant strides in the provision of paediatric palliative care although there is still a way to go before all children with palliative care needs, and their families, can access palliative care.

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乌干达儿科姑息治疗中的共同决策和沟通。
30 年前,乌干达开始提供首批姑息关怀服务,此后,姑息关怀服务不断发展。乌干达卫生部和姑息关怀协会在该国儿科姑息关怀的发展中发挥了关键作用。乌干达有一系列儿科姑息关怀服务提供商,这些服务提供商是与儿科姑息关怀的教育计划和研究同时发展起来的。乌干达医疗系统提供的姑息关怀服务涵盖了从新生儿到青少年的各个年龄段。虽然认识到共同决策的重要性,但在乌干达很少有这方面的文献。不过,有多种因素被证明会影响决策,同时也存在挑战和对未来的建议。乌干达在提供儿科姑息关怀方面取得了长足的进步,尽管距离所有有姑息关怀需求的儿童及其家庭都能获得姑息关怀还有很长的路要走。
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来源期刊
CiteScore
4.60
自引率
0.00%
发文量
61
审稿时长
5 days
期刊介绍: Recognized for its probing, comprehensive, and evidence-based reviews, Current Problems in Pediatric and Adolescent Health Care devotes each issue to a timely and practical topic in pediatric medicine, presented by leading authorities in the field. The journal offers readers easily accessible information that enhances professional experience and is pertinent to daily pediatric practice. Each issue''s review article is accompanied by an additional special feature designed to highlight a particular aspect of the topic presented.
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