Shared-decision-making and communication in paediatric palliative care within Uganda

J Downing PhD, RGN , E Namukwaya MBchB, PhD , J Nakawesi MMed, MPH, MD , M Mwesiga MPH, MMS
{"title":"Shared-decision-making and communication in paediatric palliative care within Uganda","authors":"J Downing PhD, RGN ,&nbsp;E Namukwaya MBchB, PhD ,&nbsp;J Nakawesi MMed, MPH, MD ,&nbsp;M Mwesiga MPH, MMS","doi":"10.1016/j.cppeds.2024.101556","DOIUrl":null,"url":null,"abstract":"<div><p><span>The first palliative care services were started in Uganda 30 years ago with services continuing to develop since then. The Ministry of Health and the Palliative Care Association of Uganda have played key roles in the development of </span>paediatric palliative care<span> in the country. There are a range of paediatric palliative care service providers in Uganda, and these have developed alongside educational programmes and research in PPC. Care is provided across the Uganda health system and across the age range from neonates through to adolescents and young adults. Whilst recognising the importance of shared decision-making there is little literature with regards to this in the Ugandan context. However, a variety of factors have been shown to influence decision-making, along with the challenges and recommendations for the future. Uganda has made significant strides in the provision of paediatric palliative care although there is still a way to go before all children with palliative care needs, and their families, can access palliative care.</span></p></div>","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":"54 1","pages":"Article 101556"},"PeriodicalIF":3.0000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Current Problems in Pediatric and Adolescent Health Care","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S1538544224000014","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PEDIATRICS","Score":null,"Total":0}
引用次数: 0

Abstract

The first palliative care services were started in Uganda 30 years ago with services continuing to develop since then. The Ministry of Health and the Palliative Care Association of Uganda have played key roles in the development of paediatric palliative care in the country. There are a range of paediatric palliative care service providers in Uganda, and these have developed alongside educational programmes and research in PPC. Care is provided across the Uganda health system and across the age range from neonates through to adolescents and young adults. Whilst recognising the importance of shared decision-making there is little literature with regards to this in the Ugandan context. However, a variety of factors have been shown to influence decision-making, along with the challenges and recommendations for the future. Uganda has made significant strides in the provision of paediatric palliative care although there is still a way to go before all children with palliative care needs, and their families, can access palliative care.

查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
乌干达儿科姑息治疗中的共同决策和沟通。
30 年前,乌干达开始提供首批姑息关怀服务,此后,姑息关怀服务不断发展。乌干达卫生部和姑息关怀协会在该国儿科姑息关怀的发展中发挥了关键作用。乌干达有一系列儿科姑息关怀服务提供商,这些服务提供商是与儿科姑息关怀的教育计划和研究同时发展起来的。乌干达医疗系统提供的姑息关怀服务涵盖了从新生儿到青少年的各个年龄段。虽然认识到共同决策的重要性,但在乌干达很少有这方面的文献。不过,有多种因素被证明会影响决策,同时也存在挑战和对未来的建议。乌干达在提供儿科姑息关怀方面取得了长足的进步,尽管距离所有有姑息关怀需求的儿童及其家庭都能获得姑息关怀还有很长的路要走。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 去求助
来源期刊
CiteScore
4.60
自引率
0.00%
发文量
61
审稿时长
5 days
期刊介绍: Recognized for its probing, comprehensive, and evidence-based reviews, Current Problems in Pediatric and Adolescent Health Care devotes each issue to a timely and practical topic in pediatric medicine, presented by leading authorities in the field. The journal offers readers easily accessible information that enhances professional experience and is pertinent to daily pediatric practice. Each issue''s review article is accompanied by an additional special feature designed to highlight a particular aspect of the topic presented.
期刊最新文献
Table of contents Cerebral palsy in children: A clinical practice review Caring for children with cerebral palsy: A commentary on cerebral palsy in children: a clinical practice review Cerebral palsy Foreword Editorial Board Page
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1