Expert Practices in Hidradenitis Suppurativa Flare Management: A Cross-Sectional Survey Study

IF 1.4 Q3 DERMATOLOGY Skin Appendage Disorders Pub Date : 2024-01-24 DOI:10.1159/000536094
Rahul Masson, Sarah E. Park, Vivian Y Shi, Jennifer L. Hsiao, Maria A. Aleshin
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Abstract

Introduction: Hidradenitis suppurativa (HS) is a chronic skin condition with recurrent, debilitating flares. Although the majority of patients with HS endorse flares, there is a lack of research regarding HS experts’ flare management practices and perspectives. Methods: An anonymous online survey was distributed through an HS expert listserv. Board-certified dermatologists who saw 1 or more HS patient(s) per month were eligible for participation. Results: A total of 35 responses were collected; 97.1% self-identified as HS experts. Therapies used for HS flares by more than two-thirds of the respondents included systemic antibiotics (100%), nonprescription pain relievers (91.4%), intralesional triamcinolone injections (91.4%), prescription pain relievers (71.4%), oral corticosteroids (68.6%), and warm compresses (68.6%). The top 3 dermatologist-reported barriers that patients face in accessing care during flares include lack of clinic appointment availability (88.6%), distance that patients have to travel to reach clinic (85.7%), and lack of transportation for patients (62.9%). Conclusions: Overall, this study highlights variations in the ways that HS experts manage flares. Many of the treatment modalities used by the majority of respondents are not part of the official North American guidelines. Further prospective studies and expert consensus guidelines are needed to standardize the approach to flare management.
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化脓性扁桃体炎发作管理的专家实践:横断面调查研究
简介化脓性扁平湿疹(HS)是一种慢性皮肤病,会反复发作,使人衰弱。虽然大多数 HS 患者都认可复发,但缺乏有关 HS 专家对复发处理方法和观点的研究。调查方法通过 HS 专家列表服务器发布匿名在线调查。每月接诊 1 名或 1 名以上 HS 患者的经委员会认证的皮肤科医生均有资格参与调查。调查结果显示共收集到 35 份回复;97.1% 的回复者自称是 HS 专家。三分之二以上的受访者在 HS 复发时使用的治疗方法包括全身抗生素(100%)、非处方止痛药(91.4%)、点内注射曲安奈德(91.4%)、处方止痛药(71.4%)、口服皮质类固醇激素(68.6%)和热敷(68.6%)。据皮肤科医生报告,患者在复发期间获得护理时面临的前三大障碍包括:诊所预约时间不足(88.6%)、患者前往诊所的路程遥远(85.7%)以及患者缺乏交通工具(62.9%)。结论:总体而言,本研究强调了房颤专家在处理房颤发作方面的不同方法。大多数受访者使用的许多治疗方法并不属于北美官方指南的一部分。需要进一步开展前瞻性研究并制定专家共识指南,以规范复发管理方法。
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CiteScore
2.00
自引率
10.00%
发文量
69
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