Factors affecting the health-related quality of life of children with cerebral palsy in Indonesia: a cross-sectional study.

Q3 Medicine Child Health Nursing Research Pub Date : 2024-01-01 Epub Date: 2024-01-31 DOI:10.4094/chnr.2023.027
Ade Febrina Lestari, Mei Neni Sitaresmi, Retno Sutomo, Firda Ridhayani
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Abstract

Purpose: Children with cerebral palsy (CP) and their parents experience various problems that can affect their quality of life. This study examined factors affecting the quality of life of children with CP.

Methods: A cross-sectional study was conducted in Yogyakarta, Indonesia, from January to August 2019. The participants were consecutively recruited children with CP aged 2 to 18 years and their parents. Ninety-eight children with CP and their parents, specifically their mothers, were recruited. Children's health-related quality of life (HRQoL) was measured using the Pediatrics Quality of Life Cerebral Palsy. Parental HRQoL and stress were measured using the WHOQOL-BREF and Parenting Stress Index (PSI).

Results: Functional level V was the most common category for both Gross Motor Function Classification System (GMFCS) and Bimanual Fine Motor Function (BFMF) (35% and 28%, respectively). Children's mean HRQoL was medium (49.81±20.35). The mean total PSI score was high (94.93±17.02), and 64% of parents experienced severe stress. Bivariate analysis showed that GMFCS, BFMF, number of comorbidities, presence of pain, and parental stress were significantly correlated with the total score for children's HRQoL (p<.05). Multiple linear regression analysis (p<.05) demonstrated that more severe GMFCS and parental stress were associated with lower mean HRQoL scores in children.

Conclusion: Factors including the level of GMFCS and parental stress affected the HRQoL of children with CP. Parental stress management should be included in the comprehensive management of these children.

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影响印度尼西亚脑瘫儿童健康相关生活质量的因素:一项横断面研究。
目的:脑瘫(CP)患儿及其父母会遇到各种可能影响其生活质量的问题。本研究探讨了影响 CP 儿童生活质量的因素:2019年1月至8月在印度尼西亚日惹进行了一项横断面研究。参与者为连续招募的 2 至 18 岁的 CP 儿童及其父母。共招募了98名患有CP的儿童及其父母,特别是他们的母亲。儿童的健康相关生活质量(HRQoL)采用儿科脑瘫生活质量进行测量。父母的 HRQoL 和压力通过 WHOQOL-BREF 和养育压力指数 (PSI) 进行测量:在粗大运动功能分类系统(GMFCS)和双足精细运动功能(BFMF)中,功能等级V是最常见的类别(分别为35%和28%)。儿童的平均 HRQoL 为中等(49.81±20.35)。平均 PSI 总分较高(94.93±17.02),64% 的家长有严重压力。双变量分析表明,GMFCS、BFMF、合并症数量、疼痛的存在和父母的压力与儿童的 HRQoL 总分显著相关(p 结论:GMFCS、BFMF、合并症数量、疼痛的存在和父母的压力与儿童的 HRQoL 总分显著相关:GMFCS水平和父母压力等因素影响了CP患儿的HRQoL。家长压力管理应纳入这些儿童的综合管理中。
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来源期刊
Child Health Nursing Research
Child Health Nursing Research Medicine-Pediatrics, Perinatology and Child Health
CiteScore
1.70
自引率
0.00%
发文量
30
审稿时长
7 weeks
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