The Barriers to Shared Decision-making in Exercise Prescription for Children With Asthma: A Qualitative Study From Parents’ Perspective

IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Journal of Pediatric Health Care Pub Date : 2024-09-01 DOI:10.1016/j.pedhc.2024.01.001
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Abstract

Introduction

The knowledge of barriers from the parental perspective is essential for facilitating shared decision-making in the field of pediatric asthma.

Method

Participants who were parents of children with a diagnosis of asthma were recruited, and in-depth, semistructured interviews were conducted. The interview transcripts were analyzed thematically using framework methods.

Results

Seventeen participants undertook interviews. Three themes and nine subthemes emerged: (1) decision-making need level—limited understanding of decision-making knowledge, ambiguity regarding self-empowerment roles, and lack of family member support; (2) decision-making support level—insufficient ability to evaluate information, inefficient communication with health care professionals, and excessive use of professional terminology; and (3) decision-making outcome level—doubts about the final decision-making choices, time constraints on decision-making, and absence of mechanisms to track decisions made.

Discussion

The findings would serve as crucial foundations for the development of decision-aid programs within the context of pediatric asthma.

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哮喘儿童运动处方共同决策的障碍:从家长视角出发的定性研究
方法招募了哮喘患儿的父母作为参与者,并进行了深入的半结构式访谈。结果17名参与者接受了访谈。访谈中出现了三个主题和九个次主题:(1) 决策需求层面--对决策知识的理解有限、自我赋权角色不明确、缺乏家庭成员支持;(2) 决策支持层面--评估信息的能力不足、与医护人员沟通不畅、过度使用专业术语;(3) 决策结果层面--对最终决策选择的疑虑、决策时间限制、缺乏决策跟踪机制。讨论这些发现将为儿科哮喘决策辅助计划的发展奠定重要基础。
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来源期刊
CiteScore
3.40
自引率
10.70%
发文量
140
审稿时长
24 days
期刊介绍: The Journal of Pediatric Health Care, the official journal of the National Association of Pediatric Nurse Practitioners, provides scholarly clinical information and research regarding primary, acute and specialty health care for children of newborn age through young adulthood within a family-centered context. The Journal disseminates multidisciplinary perspectives on evidence-based practice and emerging policy, advocacy and educational issues that are of importance to all healthcare professionals caring for children and their families.
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