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The Difficulties Experienced by Children with Celiac Disease in the Kahramanmaras Centered Earthquake in Turkey: A Qualitative Research.
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-25 DOI: 10.1016/j.pedhc.2024.11.015
Yeliz Suna Dağ, Mürşide Zengin, Emriye Hilal Yayan, Gülse Güleç

Introduction: In natural disasters, children encounter serious health problems.

Method: This qualitative phenomenological study investigated the problems encountered by children with a diagnosis of celiac disease who lived in the earthquake region of Kahramahmaras in Turkey. Colaizzi method, a phenomenological research method, was used in the study. Data collection involved in-depth interviews conducted with the 'Introductory Information Form' and 'Semi-structured Interview Form,' both developed by the researchers.

Results: This study was conducted with 17 children diagnosed with celiac disease living in the Kahramanmaras earthquake region of Turkey. Four main themes emerged from the data: (1) nutrition security and access problems, (2) dietary noncompliance, (3) psychological effects, and (4) difficulties in accessing health services.

Conclusions: The earthquake not only disrupted the physical and emotional well-being of children with celiac disease but also highlighted systemic vulnerabilities in disaster preparedness and response for individuals with special dietary needs.

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引用次数: 0
Retirement Transition: Challenges and Opportunities for PNPs in Academia, Professional Organizations, and Healthcare Institutions.
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-23 DOI: 10.1016/j.pedhc.2025.01.005
Cathy S Woodward
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引用次数: 0
Implementation of an Anxiety Management Process in Pediatric Primary Care: An Evidence-Based Practice Quality Improvement Initiative. 在儿科初级保健中实施焦虑管理过程:循证实践质量改进倡议。
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-09 DOI: 10.1016/j.pedhc.2024.11.016
Jennifer Uzzell, Jayne Jennings Dunlap, Jennifer Wilson, Cheryl Thaxton

Introduction: Pediatric anxiety is rapidly increasing, and in 2022, the US Preventive Services Task Force recommended universal anxiety screening using a validated tool for children 8-18 years.

Method: This evidence-based practice quality improvement initiative integrated an educational process, a validated anxiety screening tool, and a Caregiver Satisfaction Survey into all primary care wellness visits for patients aged 8-18 years.

Results: Significant increases in screening and referrals for mental healthcare were observed postinitiative implementation, especially in ages 8-11 years. Anxiety diagnosis and referral for treatment increased from 6.1% to 21.3%, demonstrating the importance of screening and early action at a younger age than previously recommended. However, many telephone follow-ups to caregivers for mental health referrals were unanswered.

Discussion: Integrating mental health services within pediatric primary care settings is recommended to increase timely treatment accessibility. Results from this initiative may be transferable to other primary care practices.

儿科焦虑正在迅速增加,2022年,美国预防服务工作组建议使用一种经过验证的工具对8-18岁儿童进行普遍焦虑筛查。方法:这项基于证据的实践质量改进计划将教育过程、有效的焦虑筛查工具和照顾者满意度调查整合到8-18岁患者的所有初级保健健康就诊中。结果:主动实施后,筛查和转诊心理保健的人数显著增加,特别是在8-11岁的儿童中。焦虑诊断和治疗转诊从6.1%增加到21.3%,表明筛查和早期行动的重要性比以前建议的更年轻。然而,许多心理健康转介护理人员的电话随访没有得到答复。讨论:建议在儿科初级保健机构中整合精神卫生服务,以增加及时治疗的可及性。这一举措的结果可能会转移到其他初级保健实践。
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引用次数: 0
The Importance of Addressing Burnout in Working Parents. 解决职场父母职业倦怠的重要性。
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-07 DOI: 10.1016/j.pedhc.2024.11.007
Sophia Sandgran
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引用次数: 0
Supporting Primary Care Providers to Improve Adolescent Behavioral and Mental Health. 支持初级保健提供者改善青少年行为和心理健康。
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-03 DOI: 10.1016/j.pedhc.2024.11.018
Naomi A Schapiro, Claire D Brindis

Behavioral and mental health (BMH) issues are increasing in adolescents as shortages of primary care and BMH providers are also rising. The healthcare burden has fallen especially hard on primary care providers (PCPs), who are showing increasing signs of burnout and making plans to reduce their work hours or leave the profession altogether. These factors impede their ability to be the first line of defense in providing emotional support to children and families. Current solutions to BMH provider shortages include integrated models for primary and BMH health care and child psychiatric consultation services for PCPs. However, this does not diminish PCP perceptions that they are doing more screening and struggling to offer BMH support, all within shorter visit times. In this paper, we explore potential solutions to increasing time with patients and efficiency of primary care visits, and proposals to increase reimbursement for primary care providers.

由于初级保健和BMH提供者的短缺,青少年的行为和心理健康(BMH)问题正在增加。初级保健提供者(pcp)的医疗负担尤其沉重,他们越来越表现出倦怠的迹象,并计划减少工作时间或完全离开这个行业。这些因素阻碍了他们成为向儿童和家庭提供情感支持的第一道防线的能力。目前解决BMH提供者短缺的办法包括初级和BMH保健的综合模式以及为pcp提供的儿童精神病学咨询服务。然而,这并没有削弱PCP的看法,即他们正在做更多的筛查,并努力提供BMH支持,所有这些都在更短的就诊时间内完成。在本文中,我们探讨潜在的解决方案,以增加与病人的时间和效率的初级保健访问,并建议增加初级保健提供者的报销。
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引用次数: 0
Implementing the 2017 NIAID Peanut Guidelines into a Pediatric Primary Care Provider Setting: A real-world experience. 在儿科初级保健提供者环境中实施2017年NIAID花生指南:真实世界的经验。
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-03 DOI: 10.1016/j.pedhc.2024.12.002
Sydney Borg, Ashley Marass, Ejaz Yousef

Background: Primary care physicians (PCPs) and nurse practitioners play a key role in guiding caregivers on early peanut protein (PP) introduction, yet many lack adequate knowledge.

Aim statement: This quality improvement study aimed to enhance understanding among PCPs and caregivers about evidence-based guidelines for early PP introduction in infants' diets.

Methods: Using the Stetler Model, PCP knowledge was evaluated through pre-test, educational video and some posttest material. Caregivers completed the Patient Education Materials Assessment Tool (PEMAT) survey after reviewing an educational handout RESULTS: The N = 22 PCPs pre-education test score had an average of 61.11% and noted N = 21 PCPs posteducation test score average to increase to 84.09%. The N = 68 caregivers completed the PEMAT survey, with results indicating enhanced caregiver knowledge. Infant participation in PP introduction was tracked, alongside ingestion frequency.

Conclusions: Findings in this study underscore the value of education in fostering proactive counseling and informed practices in clinical settings.

背景:初级保健医生(pcp)和执业护士在指导护理人员早期引入花生蛋白(PP)方面发挥着关键作用,但许多人缺乏足够的知识。目的声明:本质量改进研究旨在提高pcp和护理人员对在婴儿饮食中早期引入PP的循证指南的理解。方法:采用Stetler模型,通过前测、教学视频和部分后测材料对PCP知识进行评价。护理人员在阅读教育讲义后完成患者教育材料评估工具(PEMAT)调查。结果:N = 22名pcp的教育前测试成绩平均为61.11%,注意到N = 21名pcp的教育后测试成绩平均增加到84.09%。N = 68名护理人员完成了PEMAT调查,结果表明护理人员的知识有所提高。跟踪婴儿在PP引入中的参与情况,以及摄入频率。结论:本研究的发现强调了在临床环境中培养主动咨询和知情实践的教育价值。
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引用次数: 0
Biosimilars Versus Originators in Children With Juvenile Idiopathic Arthritis: A Real-World Experience. 生物仿制药与原研药在青少年特发性关节炎患儿中的应用:真实世界的经验。
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-01 Epub Date: 2024-08-30 DOI: 10.1016/j.pedhc.2024.08.003
Maria Francesca Gicchino, Giusy Capasso, Alessia Amodio, Emanuele Miraglia Del Giudice, Alma Nunzia Olivieri, Anna Di Sessa

Introduction: We aimed to evaluate the efficacy, safety, and immunogenicity profile of Etanercept (ETA) and Adalimumab (ADA) biosimilars (BIOs) compared to their originators in children with juvenile idiopathic arthritis (JIA).

Method: Eighty-one JIA children treated with ETA or ADA originators or BIOs were examined at baseline (T0) and after 3- (T1), 6- (T2), 12- (T3), and 24-(T4) months after starting treatment.

Results: Lower Juvenile Arthritis Disease Activity Score 10 (JADAS-10) scores were reported at T1, T2, T3, and T4 in JIA children treated with BIOs than originators (all p < 0.05). At T1 and T3, anti-drugs antibodies levels were lower in children receiving BIOs than originators (p = 0.04 and p = 0.0007, respectively), even after adjustments (both p < 0.05). Relapses were lower for BIOs compared to originators (p < 0.001). Safety profile was comparable between the groups (p > 0.05).

Discussion: A better overall profile of BIOs than originators was demonstrated in JIA children, but larger confirmatory studies are needed.

简介我们旨在评估Etanercept (ETA)和Adalimumab (ADA)生物仿制药(BIOs)与原研药相比,在幼年特发性关节炎(JIA)患儿中的疗效、安全性和免疫原性概况:方法:对81名接受ETA或ADA原研药或BIO治疗的幼年特发性关节炎患儿进行了基线(T0)和开始治疗后3个月(T1)、6个月(T2)、12个月(T3)和24个月(T4)的检查:结果:在T1、T2、T3和T4,接受BIO治疗的JIA患儿的青少年关节炎疾病活动度评分10(JADAS-10)得分均低于原研药(P均<0.05)。在T1和T3,接受BIO治疗的患儿的抗药物抗体水平低于原研药(分别为p = 0.04和p = 0.0007),即使经过调整也是如此(均为p < 0.05)。与原研药相比,BIO 的复发率更低(p < 0.001)。两组的安全性相当(P > 0.05):讨论:在JIA儿童中,BIOs的总体情况优于原研药,但还需要更大规模的确证研究。
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引用次数: 0
Burnout and Mental Health in Working Parents: Risk Factors and Practice Implications. 在职父母的职业倦怠与心理健康:风险因素和实践意义。
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-01 Epub Date: 2024-09-17 DOI: 10.1016/j.pedhc.2024.07.014
Kate Sustersic Gawlik, Bernadette Mazurek Melnyk, Alai Tan

Introduction: Burnout and mental health disorders in parents can have significant implications for families. Little is known about these conditions in working parents. The purpose of this study was to identify the prevalence and mental health risk factors for working parent burnout.

Method: De-identified data were collected on a convenience sample of 1285 working parents through an online survey.

Results: Sixty-five percent of working parents reported burnout. Depression, anxiety, attention deficient hyperactivity disorder, abuse, or history of a mental health disorder in the parent were significantly correlated with parental burnout. Anxiety, attention deficient hyperactivity disorder, presence of a mental health disorder in the child, or if parents thought their child might have a mental health disorder were significantly correlated with parent burnout. Parental burnout was significantly associated with greater risk of child maltreatment.

Discussion: This study provides insight into the prevalence and mental health risk factors for parental burnout specific to the working parent.

引言父母的职业倦怠和心理健康障碍会对家庭产生重大影响。人们对职场父母的这些情况知之甚少。本研究旨在确定职场父母职业倦怠的发生率和心理健康风险因素:方法:通过在线调查收集了 1285 名职场父母的去身份化数据:结果:65%的职场父母报告了职业倦怠。抑郁、焦虑、注意力缺陷多动障碍、虐待或父母有精神疾病史与父母职业倦怠有显著相关性。焦虑、注意力缺陷多动障碍、子女患有精神疾病或父母认为子女可能患有精神疾病与父母的职业倦怠有明显的相关性。父母的职业倦怠与儿童遭受虐待的风险明显相关:本研究深入探讨了父母职业倦怠的发生率和心理健康风险因素,特别是工作父母的职业倦怠。
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引用次数: 0
Uncommon Organisms in Neonatal Meningitis: Two Case Reports. 新生儿脑膜炎中的不常见病原体:两例报告
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-01 Epub Date: 2024-09-28 DOI: 10.1016/j.pedhc.2024.08.011
Mary Jean Ohns

These case reports describe two neonates, born at term, diagnosed with bacterial meningitis and septicemia caused by uncommon organisms. The clinical presentation, diagnostic reasoning, national guidelines, hospital course, and follow-up are discussed. Meningitis is among the differential diagnoses when there is a concern for neonatal sepsis. Concern for sepsis can arise from a variety of antepartum, intrapartum, and postpartum risk factors and present with a variety of symptoms. Neonatal sepsis is a significant cause of mortality, with 750,000 infant deaths annually. Effective treatment of neonatal sepsis requires timely diagnosis and tailored antimicrobial therapy that targets the causative pathogens.

这些病例报告描述了两名足月出生的新生儿被诊断为细菌性脑膜炎和败血症,由不常见的微生物引起。报告讨论了临床表现、诊断推理、国家指南、住院过程和随访。脑膜炎是新生儿败血症的鉴别诊断之一。对败血症的担忧可能源于产前、产中和产后的各种风险因素,并表现出各种症状。新生儿败血症是导致死亡的重要原因,每年有 75 万名婴儿死亡。新生儿败血症的有效治疗需要及时诊断和针对致病病原体的定制抗菌治疗。
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引用次数: 0
Failure Modes and Effects Analysis to Evaluate Discharge Delays of Postoperative Tonsillectomy Patients From the Medical-Surgical PICU. 评估扁桃体切除术术后患者从内外科 PICU 出院延迟的故障模式和影响分析。
IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2025-01-01 Epub Date: 2024-10-10 DOI: 10.1016/j.pedhc.2024.09.007
Emily R Hamilton, Marketa Rejtar, Michele DeGrazia, Youyang Yang

Background: Discharge delays of Medical-Surgical Pediatric Intensive Care Unit (PICU) patients with Obstructive Sleep Apnea (OSA) following tonsillectomy or tonsillectomy with adenoidectomy (T&A) negatively impact hospital bed availability.

Aim statement: This project identified process improvements to reduce discharge delays and increase PICU bed availability.

Methods: A Failure Modes and Effects Analysis (FMEA) was implemented to identify care and process failures that result in discharge delays.

Intervention: Through the FMEA, failure risk profile numbers with the highest impact were recognized for improvement (Institute for Healthcare Improvement, 2017; VHA National Center for Patient Safety, 2023).

Results: Forty failure modes were identified. High-impact failures included not administering dexamethasone early for patient pain or desaturation, intervening for desaturations consistent with the patient's baseline, and not anticipating family needs for discharge.

Conclusions: The FMEA identified several actionable changes that if implemented, could promote timely discharge of patients with OSA following tonsillectomy or T&A.

背景:扁桃体切除术或扁桃体切除加腺样体切除术(T&A)后,内外科儿科重症监护病房(PICU)阻塞性睡眠呼吸暂停(OSA)患者的出院延迟对医院床位的可用性产生了负面影响:该项目确定了改进流程的方法,以减少出院延迟并提高 PICU 病床的可用性:方法:实施故障模式和影响分析(FMEA),以确定导致出院延迟的护理和流程故障:干预措施:通过 FMEA,确认影响最大的故障风险概况编号,以便进行改进(医疗保健改进研究所,2017 年;VHA 国家患者安全中心,2023 年):结果:确定了 40 种故障模式。影响较大的故障包括:未针对患者疼痛或饱和度降低及早使用地塞米松、未根据患者的基线对饱和度降低进行干预,以及未预见出院时家属的需求:FMEA 确定了几项可行的改进措施,如果实施这些措施,可促进扁桃体切除术或 T&A 术后 OSA 患者及时出院。
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引用次数: 0
期刊
Journal of Pediatric Health Care
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